National Aphasia Association, Inc.

Rating: 4.86 stars   14 reviews

Issues: Health, Cancer

Location: 350 Seventh Ave Suite 902 New York NY 10001 USA

Mission: The NAA''s mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment. The NAA respects and values cultural and linguistic differences and makes every effort possible to acknowledge the impact of culture and language on the performance of each individual with aphasia. The NAA provides supportive and advocacy services to all persons with aphasia regardless of individuals'' race-ethnicity, religious affiliation, cultural and cognitive linguistic background or sexual orientation.
Programs: The NAA's programs include:

* providing information about aphasia to affected individuals, their families, and the larger community. We also provides referrals to local resources and connect aphasic individuals with each other. Basic information packets are provided free of charge. The information packets include general information about aphasia, tips for communicating with people with aphasia, and other material.

Our NAA web site (www.aphasia.org) offers a way to connect people with aphasia and their families with each other. It also updates visitors on NAA activities. It includes a list of publications available from the NAA, the text of many publications, and previous and current newsletters. The site is intended to be as easy to use as possible by people with aphasia.

Our toll-free telephone number is (800) 922-4622. Many individuals do not have access to computers or have questions that require more personal attention. Each one of the almost 4,000 calls to the toll-free number last year was answered personally by staff. The most frequently asked questions include: Where can I find a stroke support group that will welcome people with speech problems? Are there any clinics in my area that offer speech therapy? Where can I get help now that my insurance has run out? People may also order NAA literature by calling the toll-free number.

The NAA offers publications that are easy to read and include fact sheets, information about national and community resources, and tips for communicating with someone who has aphasia. Other information includes a list of videotapes, a summary of sources of information about the use of computers and adaptive technologies, and information regarding the legal aspects of aphasia. The NAA is committed to providing written materials on additional topics as needs are identified.

The NAA's State Representatives Network is a national network of health care professionals throughout the country that provides information about local resources including the availability of support groups, rehabilitation services, and social services. There are currently 146 state representatives in the network.

The NAA maintains a state-by-state directory of local aphasia groups that supply support and information for individuals with aphasia and their families. There are currently over 400 aphasia community groups listed, and the Resource Center refers individuals to these groups whenever possible. To encourage the growth of a network for younger individuals (ages 13-30) years old, the NAA publishes a directory of names of young people who have acquired aphasia and a list of organizational resources for them. For many people, these groups represent their first entree back into the larger community.

* The establishment of "Speaking Out," a biennial national conference for people with aphasia and their families as well as professionals who work with them.

* The designation of the month of June each year as National Aphasia Awareness Month to bring public attention to aphasia through materials supplied through the NAA.

* The distribution of the American edition of "The Aphasia Handbook: A Guide for Stroke and Brain Injury Survivors and their Families." This edition was edited by Martha Taylor Sarno, MA, MD (hon), an internationally recognized authority in the field of communication disorders and Joan Peters, previous Executive Director, NAA. The book was called "an essential resource for people with aphasia and their families" by Dr. Oliver Sacks, neurologist and author.* The Association's email bulletin, which is sent out monthly.

2011 Top-Rated Nonprofit
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Community Reviews

Role: Professional with expertise in this field
Rating: 5 stars  

As a Speech-Language Pathologist, I have seen first hand how the NAA has helped many of my clients and their families. What a great resource for those who knew nothing about aphasia until it totally changed their lives.

I've personally experienced the results of this organization in...

their empasis in educating people on aphasia.

If I had to make changes to this organization, I would...

give them unlimited funds!

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Rating: 5 stars  

I love the NAA website!! It's user-friendly. It provides valuable information to professionals, persons with aphasia and their loved ones as well the public. It's been a great resource to me and I appreciate the many volunteers who spend countless dedicated hours to keep the site updated and informative. Thanks NAA!! You do so much for so many!!

I've personally experienced the results of this organization in...

I receive the newsletter. It provides great information for me to pass on to persons with aphasia and their families. It's my favorite website to refer patients and their families.

If I had to make changes to this organization, I would...

Absolutely nothing!!

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Role: Professional with expertise in this field
Rating: 5 stars  

The NAA supports organizations all over the country in their advocacy and service to individuals with aphasia and their families. They are fully committed to the cause and connect all service providers with objectivity and inclusion. The NAA has provided our small nonprofit organization in NC with materials, educational resources and the like.

I've personally experienced the results of this organization in...

regards to their responsiveness to everyone they are in contact with.

If I had to make changes to this organization, I would...

Allow them to add staff and/or volunteers to help the director.

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Role: Professional with expertise in this field
Rating: 5 stars  

When a loved one loses language due to a stroke or head injury, it is quite frightening for family members to watch. Sometimes professionals have given the same information to patients so often that families are not given the time needed to process infromation before having to make decisions. So, families remain confused aboput what is happening to the family member with aphasia. The National Aphasia Association provides professionals and family members to assist families and patients who are trying to understand aphasia. There are representatives in every state in the United States, so finding people who can understand and relate to an individual's situation and resources is very possible. With the up-to-date resources contained at the NAA website as well as via NAA meetings across the country, volunteers can be sure to give families and patients current information in a compassionate, knowledgeable manner.

I've personally experienced the results of this organization in...

helping families and other professionals who have called me.

If I had to make changes to this organization, I would...

schedule regional and online meetings made available to volunteers in order to make the ability to access current information easier in this time when national travel is expensive for some volunteers.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

It quickly provides knowledge about aphasia to people in a crisis setting at little or no cost.

When was your last experience with this nonprofit?

2011

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Role: Professional with expertise in this field
Rating: 5 stars  

The National Aphasia Association [NAA] has for many years steadfastly led the advocacy efforts for people with aphasia [People With Aphasia] and their caregivers. In addition, the NAA has provided information; workshops and materials to educate both PWA, their caregivers and the public that has been invaluable in advancing independence, recovery and reintegration. The NAA programs for educating public employees in more effective communication with PWA and for serving multicultural clients changed lives.

I've personally experienced the results of this organization in...

my service as a state representative and on the multicultural task force. I have received numerous comments from PWA and their caregivers after their experiences with the NAA. I have also participated in the NAA regional outreach workshops [ SpeakOut] witnessing first hand the impact on PWA, caregivers and professionals.

If I had to make changes to this organization, I would...

grow the scope of how it services PWA.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

It is THE national voice for PWA.

When was your last experience with this nonprofit?

2011

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Role: Professional with expertise in this field
Rating: 4 stars  

This is the premier organization at the national level to help educate and support both the public and persons with aphasia. This organization has an amazing amount of information available to help those with aphasia. I had a client with aphasia who had gotten into legal trouble because the authorities would not read her Aphasia Card and didn't understand her condition. The NAA provided me with several articles and rulings about persons with aphasia and legal issues that I gave to my client. The NAA campaigns relentlessly to get the public to know more about aphasia. One of the best services they provide are hand-outs: stickers, aphasia cards, brochures, books, and other materials that educate about aphasia and provide a means for persons with aphasia to communicate in a pinch.

I've personally experienced the results of this organization in...

Attending Speaking Out conferences, speaking with the organizers at various conferences, requests for information, providing information about my organization

If I had to make changes to this organization, I would...

Give them more resources and money to help them update their services as needed. They are trying to do a huge job with a limited staff and resources.

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Role: Professional with expertise in this field
Rating: 4 stars  

The National Aphasia association remains the only unified voice for those with aphasia, serving to educate and support people across the country and even overseas. While it delivers no direct therapy service, it helps people learn about what services are available to assist them in recovery and adjustment to life with persisting communication challenges.

I've personally experienced the results of this organization in...

attending and participating in their regional and national conferences, and in seeing how networking can assist people with aphasia to live better.

If I had to make changes to this organization, I would...

increase its visibility and prominence nationally.

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