Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
14 Reviews
1234.857145
Write A Review
March 24, 2013

more

March 24, 2013

The National Aphasia Association is a wonderful organization that supports the friends and families of people with aphasia, as well as the survivor. When someone loses his speech, it affects everyone in his life. The NAA's list of support groups is very valuable, and the small-but-mighty staff is always patient and knowledgable. With the country's aging population, and thousands of troops returning home with brain injuries, I only see this resource becoming more relevant and more essential for us all!

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

November 7, 2012

more


1 previous review
June 22, 2011

When my 46 year old husband suffered a stroke, National Aphasia was the one agency that provided pertinent information and consolation. I found this resource in the back of a book about stroke. The ... more

November 7, 2012

When my husband survived a serious stroke sixteen years ago, he was left without language or comprehension, and he was only 46. I came across National Aphasia through a reference in a stroke info book and called. (I had already called American Heart and National Stroke, and their help was more general to stroke.) I was so comforted by the woman on the phone, who's husband had suffered the same loss, and the materials they sent. As a result of their good work, I became active in the Aphasia Community, and started the only support group in Indianapolis, IN for aphasia. Because of them, I was led to more specific therapies for my husband's recovery, and though very different, he has a high quality of life. They regularly have small conventions around the country to help people with aphasia adjust and learn more about their disorder. Being able to communicate is like breathing. They are the only association I am aware of devoted solely to Aphasia.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 22, 2011

When my 46 year old husband suffered a stroke, National Aphasia was the one agency that provided pertinent information and consolation.
I found this resource in the back of a book about stroke. The personal, caring way they reach out with every phone call speaks volumes about this wonderful
organization. Aphasia affects more people than Parkinson's Disease, but few people have every heard of it. National Aphasia works to bring knowledge, acceptance and support to our communities. The work they do is so important, and so unrecognized. I have been in the Aphasia Community since 1996, and since started a support group. Without them, we could not enjoy the success we have.
As a volunteer in the Aphasia community, and as a registered nurse, I sincerely support the work this organizations does.

The Great!

I've personally experienced the results of this organization in...

They were the first organization to help me deal with my husband's aphasia after his stroke. I have attended many of the Speaking Out conventions they have sponsored.

Ways to make it better...

If I had to make changes to this organization, I would...

Make more people aware of it and the good work they do.

June 28, 2011

more

June 28, 2011

As a Speech-Language Pathologist, I have seen first hand how the NAA has helped many of my clients and their families. What a great resource for those who knew nothing about aphasia until it totally changed their lives.

The Great!

I've personally experienced the results of this organization in...

their empasis in educating people on aphasia.

Ways to make it better...

If I had to make changes to this organization, I would...

give them unlimited funds!

June 25, 2011

more

June 25, 2011

I love the NAA website!! It's user-friendly. It provides valuable information to professionals, persons with aphasia and their loved ones as well the public. It's been a great resource to me and I appreciate the many volunteers who spend countless dedicated hours to keep the site updated and informative. Thanks NAA!! You do so much for so many!!

The Great!

I've personally experienced the results of this organization in...

I receive the newsletter. It provides great information for me to pass on to persons with aphasia and their families. It's my favorite website to refer patients and their families.

Ways to make it better...

If I had to make changes to this organization, I would...

Absolutely nothing!!

June 24, 2011

more

June 24, 2011

The NAA supports organizations all over the country in their advocacy and service to individuals with aphasia and their families. They are fully committed to the cause and connect all service providers with objectivity and inclusion. The NAA has provided our small nonprofit organization in NC with materials, educational resources and the like.

The Great!

I've personally experienced the results of this organization in...

regards to their responsiveness to everyone they are in contact with.

Ways to make it better...

If I had to make changes to this organization, I would...

Allow them to add staff and/or volunteers to help the director.

June 23, 2011

more

June 23, 2011

The National Aphasia Association was created in direct response to a great need to speak for a group of individuals who, literally, cannot speak at all for themselves or cannot effectively get their message out or access others in regard to a critical need for support. Persons with aphasia have experienced throughout their "pre-Aphasia" life the ability to communicate normally - to sit around the family table and tell stories, to read to their children, to give speeches or lectures, to order at a drive-through, to verbally express their affection for someone, to read a book or write a letter. Then, usually with a swift "brain attack" those taken-for-granted abilities are taken away or decreased significantly. The NAA was organized to provide advocacy with governmental agencies, healthcare providers, and other influential entities. We wanted to educate the public in general about aphasia and to let persons with aphasia and their families and friends have easy access to educational materials, provider lists, recommendations for improving communication, and ways they could also help each other. Though a small organization, it has touched the lives of thousands of people with aphasia, their families and healthcare professionals. With a meager budget and a lot of determination, a small group of dedicated advocates started an organization which has been amazingly effective in getting "the words" out about the dilemma and the needs of those lacking words to express it themselves. Funds have been raised, educational materials have been developed, easily accessed volunteer professionals have been made available for contact, and community groups have been organized for enhancing communication skills and supporting families. There is much work to be done but the story of NAA is a true wonder and deserves to be told.

The Great!

I've personally experienced the results of this organization in...

the community aphasia group I helped organize initially and, more recently, in the conversation group started as an outgrowth of that at a local hearing and speech center.

Ways to make it better...

If I had to make changes to this organization, I would...

N/A

June 22, 2011

more

June 22, 2011

I don't know where I would be without the NAA. My father has global aphasia from a stroke 6 years ago and has been living with this condition ever since. THere are not many resources out there for individuals with aphasia and their caregivers, and even fewer support networks. This is what makes the NAA so vital to all of us.

The Great!

I've personally experienced the results of this organization in...

The lives of individuals I speak with

Ways to make it better...

If I had to make changes to this organization, I would...

Make regional representatives more accesible (perhaps through paid part time positions)

June 22, 2011

more

June 22, 2011

When a loved one loses language due to a stroke or head injury, it is quite frightening for family members to watch. Sometimes professionals have given the same information to patients so often that families are not given the time needed to process infromation before having to make decisions. So, families remain confused aboput what is happening to the family member with aphasia. The National Aphasia Association provides professionals and family members to assist families and patients who are trying to understand aphasia. There are representatives in every state in the United States, so finding people who can understand and relate to an individual's situation and resources is very possible. With the up-to-date resources contained at the NAA website as well as via NAA meetings across the country, volunteers can be sure to give families and patients current information in a compassionate, knowledgeable manner.

The Great!

I've personally experienced the results of this organization in...

helping families and other professionals who have called me.

Ways to make it better...

If I had to make changes to this organization, I would...

schedule regional and online meetings made available to volunteers in order to make the ability to access current information easier in this time when national travel is expensive for some volunteers.

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

It quickly provides knowledge about aphasia to people in a crisis setting at little or no cost.

When was your last experience with this nonprofit?

2011

June 22, 2011

more

June 22, 2011

The National Aphasia Association [NAA] has for many years steadfastly led the advocacy efforts for people with aphasia [People With Aphasia] and their caregivers. In addition, the NAA has provided information; workshops and materials to educate both PWA, their caregivers and the public that has been invaluable in advancing independence, recovery and reintegration. The NAA programs for educating public employees in more effective communication with PWA and for serving multicultural clients changed lives.

The Great!

I've personally experienced the results of this organization in...

my service as a state representative and on the multicultural task force. I have received numerous comments from PWA and their caregivers after their experiences with the NAA. I have also participated in the NAA regional outreach workshops [ SpeakOut] witnessing first hand the impact on PWA, caregivers and professionals.

Ways to make it better...

If I had to make changes to this organization, I would...

grow the scope of how it services PWA.

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

It is THE national voice for PWA.

When was your last experience with this nonprofit?

2011

June 22, 2011

more

June 22, 2011

This is the premier organization at the national level to help educate and support both the public and persons with aphasia. This organization has an amazing amount of information available to help those with aphasia. I had a client with aphasia who had gotten into legal trouble because the authorities would not read her Aphasia Card and didn't understand her condition. The NAA provided me with several articles and rulings about persons with aphasia and legal issues that I gave to my client. The NAA campaigns relentlessly to get the public to know more about aphasia. One of the best services they provide are hand-outs: stickers, aphasia cards, brochures, books, and other materials that educate about aphasia and provide a means for persons with aphasia to communicate in a pinch.

The Great!

I've personally experienced the results of this organization in...

Attending Speaking Out conferences, speaking with the organizers at various conferences, requests for information, providing information about my organization

Ways to make it better...

If I had to make changes to this organization, I would...

Give them more resources and money to help them update their services as needed. They are trying to do a huge job with a limited staff and resources.

Write A Review

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers