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Nonprofit Overview

Causes: Health, Neurology & Neuroscience, Philanthropy, Private Grantmaking Foundations, Voluntary Health Associations & Medical Disciplines

Mission: The Myelin Repair Foundation''s mission is to accelerate the discovery of myelin repair treatments to improve the lives of people suffering from multiple sclerosis (MS), and to establish the Accelerated Research Collaboration™ (ARC™) model as a new paradigm for medical research.

With its innovative model for medical research, its narrow focus, and its five-year timeline, the Myelin Repair Foundation is on track toward achieving its goal to license at least one myelin repair drug target by 2009.

MRF’s Accelerated Research Collaboration model — bringing best-business practices to the world of academic research — is cutting the time to drug discovery in as much as one-half.

Target demographics: multiple sclerosis patients, people interested in speeding up research and development of treatments for diseases

Programs:

The Myelin Repair Foundation (MRF) is the world’s largest research organization exclusively focused on developing the next generation of treatments for multiple sclerosis — myelin repair. Myelin repair is the only current research approach that has the potential to actually repair nerve damage and halt the progress of multiple sclerosis.

What sets us apart from other multiple sclerosis research organizations is our aggressive Accelerated Research Collaboration™ (ARC™) model. The model is organized around one principle — to get a safe and effective myelin repair treatment to patients as quickly as humanly possible. Today we are on track toward the first myelin repair phase one clinical trial by 2014.

Community Stories

4 Stories from Volunteers, Donors & Supporters

15

Volunteer

Rating: 5

Myelin Repair Foundation is truly one of the best places that I could have volunteered for. I believe that their goal of trying to find myelin repair treatments for MS is unique but not too overambitious. I would love to continue to support and work with this organization, because I believe that they will truly do great things for MS patients, and for science, in the future.

13

Volunteer

Rating: 5

This is an amazing non-profit organization--the epitome of how non-profits should be. 84% of the money that comes in goes to research (compared to the National MS Society's 15-20%). Also, their collaborative ARC model breaks down barriers in the drug development process, which I believe will help them get to their goal of providing the world w/ MS treatments AND will influence the medical research field by making collaborative progress a norm instead of nonexistent.

20

Volunteer

Rating: 5

Hello: I was diagnosed with MS on October 6, 2000. For the first couple of years I was everyone's guinea pig. No matter what was tried, I continued to get worse. I was truly a story of "diagnose and adios." Neither my doctors nor I knew what to do. I was scared. The only clinical trials I had read about were for people with early relapsing-remitting MS. I had already progressed to secondary progressive MS. It seemed there was no hope. Then, while doing MS research on the computer, I came across the Myelin Repair Foundation. I soon discovered there were others like me and others that actually cared about what happened to me. My new motto in life is, "for real hope, visit www.myelinrepair.org. Because the founder of this nonprofit also has MS, I feel he has a vested interest in the nonprofit's success and that makes me feel good. Be well. . .Diana

20

Volunteer

Rating: 5

I have been an MRF volunteer for over 5 years. I've had MS for over 14 years. My experience with MRF has been very positive. MRF is truly the best organization when it comes to advancing research directed at finding better treatments for MS. The commitment of MRF staff and scientists is truly awe inspiring. I also know that the MRF runs an extremely efficient operation with approximately 90% of all donated dollars going directly to research. MRF President and Founder Scott Johnson has MS, so this is a very personal mission and commitment for him.