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August 19, 2009

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August 19, 2009

Myelin Repair Foundation is truly one of the best places that I could have volunteered for. I believe that their goal of trying to find myelin repair treatments for MS is unique but not too overambitious. I would love to continue to support and work with this organization, because I believe that they will truly do great things for MS patients, and for science, in the future.

The Great!

I've personally experienced the results of this organization in...

news articles and blog posts.

Ways to make it better...

If I had to make changes to this organization, I would...

do nothing differently. I think that it is run extraordinarily well.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

what I have learned from it. Also the feeling that I am making a difference in the world.

The kinds of staff and volunteers that I met were...

amazing. I honestly could not have worked with a better group of people.

If this organization had 10 million bucks, it could...

reach its latest fundraising goal!

Ways to make it better...

I had worked here longer so I got more of a feel for the place. But I could not due to my schedule.

In my opinion, the biggest challenges facing this organization are...

donations. But they are doing a good join at trying to get funding.

One thing I'd also say is that...

I will definitely stay involved with this organization.

When was your last experience with this nonprofit?

2009

August 19, 2009

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August 19, 2009

This is an amazing non-profit organization--the epitome of how non-profits should be. 84% of the money that comes in goes to research (compared to the National MS Society's 15-20%). Also, their collaborative ARC model breaks down barriers in the drug development process, which I believe will help them get to their goal of providing the world w/ MS treatments AND will influence the medical research field by making collaborative progress a norm instead of nonexistent.

The Great!

I've personally experienced the results of this organization in...

The support network they've already gathered. Being small, its been through the hope they've inspired and the extraordinary accomplishments/goals they've met in so little time (research tools/drug targets).

Ways to make it better...

If I had to make changes to this organization, I would...

continue the MRF's mission and find new ways to get to its goal faster and more efficiently.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people here inspire just by being in their presence. They are all (multi)talented and are very sincere about their goals. I've been asked to do so many different things and have used and learned many different skills.

The kinds of staff and volunteers that I met were...

The staff and volunteers were all genuine and were all only interested in finding new ways to efficiently meet the organization's goals. I've never met so many talented and diversified problem solvers. They were kind, personable and motivated.

If this organization had 10 million bucks, it could...

It would find a treatment for Multiple Sclerosis--not fiddle away most of it to pay off costs and bureaucrats.

Ways to make it better...

meh. couldn't have been better, really.

In my opinion, the biggest challenges facing this organization are...

Since it's so small compared to orgs like the National MS Society, it needs to continue to get its name and mission heard across all boards so that money that wants to go towards real, drug therapy driven research, can get where its needed most.

One thing I'd also say is that...

This experience has been so valuable for me. I've never before understood the non-profit and medical research world as much as I do now, and I know that what hte Foundation has taught me will continue to reverberate through much of my life. Thanks MRF!

When was your last experience with this nonprofit?

2009

April 21, 2009

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April 21, 2009

Hello: I was diagnosed with MS on October 6, 2000. For the first couple of years I was everyone's guinea pig. No matter what was tried, I continued to get worse. I was truly a story of "diagnose and adios." Neither my doctors nor I knew what to do. I was scared. The only clinical trials I had read about were for people with early relapsing-remitting MS. I had already progressed to secondary progressive MS. It seemed there was no hope. Then, while doing MS research on the computer, I came across the Myelin Repair Foundation. I soon discovered there were others like me and others that actually cared about what happened to me. My new motto in life is, "for real hope, visit www.myelinrepair.org. Because the founder of this nonprofit also has MS, I feel he has a vested interest in the nonprofit's success and that makes me feel good. Be well. . .Diana

The Great!

I've personally experienced the results of this organization in...

that it is beginning its first clinical trial.

Ways to make it better...

If I had to make changes to this organization, I would...

Do everything the same exact way as it is being done now.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the positive energy that flows from everyone involved and makes things feel good.

The kinds of staff and volunteers that I met were...

Very educated people and very nice people but nonetheless they were people just like me, afflicted by this horrible disease.

If this organization had 10 million bucks, it could...

Be as wonderful as it already is. One of the wonderful things about this nonprofit is that it takes its time and charts its course forward.

Ways to make it better...

My experience could not have been better.

In my opinion, the biggest challenges facing this organization are...

The government of the United States of America.

One thing I'd also say is that...

These people are so human I feel like I've known them for a lifetime.

When was your last experience with this nonprofit?

2009

April 20, 2009

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April 20, 2009

I have been an MRF volunteer for over 5 years. I've had MS for over 14 years. My experience with MRF has been very positive. MRF is truly the best organization when it comes to advancing research directed at finding better treatments for MS. The commitment of MRF staff and scientists is truly awe inspiring. I also know that the MRF runs an extremely efficient operation with approximately 90% of all donated dollars going directly to research. MRF President and Founder Scott Johnson has MS, so this is a very personal mission and commitment for him.

The Great!

I've personally experienced the results of this organization in...

The tremendous progress made towards developing a treatment that will repair nervous system damage caused by MS

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Being a part of an organization that is on the leading edge of MS research.

The kinds of staff and volunteers that I met were...

Highly competent, professional, passionate and committed. They're also very friendly too!

If this organization had 10 million bucks, it could...

Continue to fund all of the research that it wants to engage in. It would also take full advantage of the recent $10 million matching challenge grant made by a generous donor.

When was your last experience with this nonprofit?

2009

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