Myasthenia Gravis Foundation Of America Inc

Rating: 5 stars   4 reviews

Issues: Cancer

Location: Great Lakes Chapter Grand Rapids MI 49546 USA

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EIN 38-2110097
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Rating: 5 stars  

My local Myasthenia Gravis organization immediately put me in contact with one of its "listening ear" volunteers. It turned out the volunteer also had MG, was close to me in age, and lived only 5 minutes away! This wonderful woman had an arsenal of practical tips to help me cointinue to live my life and do the things that were important to me, even though a rocky first couple of years with the disease. The MGFA-Great Lakes Chapter performs extraordinary outreach! Truly above and beyond for people with MG and their families!!

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Very Well

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Rating: 5 stars  

1 person found this review helpful

Thank you MGFA Great Lakes Chapter for coming to the hospital every time I had a crisis, and there were a lot! For putting me in touch with other members. for raising funds for research and patient support. For spreading the word throughout the community and for coming up with countless creative ways to get the word out and drum up support.

I've personally experienced the results of this organization in...

helping to be there through very scary times in the hospital

If I had to make changes to this organization, I would...

I wouldn't change a thing!

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Rating: 5 stars  

The Myashtenia Gravis Foundation - Great Lakes Chapter has provided me with a ton of information, great support meetings and new friends as I was recently diagnosed with MG and had never heard of it. There is a huge benefit in speaking with others who have MG, and the Foundation is working to create public awareness of this relatively unkown disease. I have joined in fundraising events as a participant and as a volunteer. We're like a big family.

I've personally experienced the results of this organization in...

Learning about Myasthenia Gravis - it's symptoms, treatment options, lifestyle adaptations, means of support and encouragement.

If I had to make changes to this organization, I would...

Inspire all board members to reach out for the support of their friends, family, coworkers, etc. to get involved in the Foundation as a participant an/or funder.

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Rating: 5 stars  

8 people found this review helpful

The Great Lakes Chapter of the MGFA has been a beacon of support after learning I had Myasthenia Gravis. When 1st diagnosed they provided much needed information about my disease and treatment options for patients. The support group meetings are fun and informative. The executive director even came to see me in the hospital. I don't think I would have made it through this year as well as I did without their support and information.

I've personally experienced the results of this organization in...

the joy in other members faces at support group meetings. In not feeling so alone in my illness and how quick they are to assist emotionally or informatively if needed.

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