Mission: The Myasthenia Gravis Association is dedicated to improving the quality of life for those affected by this autoimmune, neuromuscular disease, through awareness, education and patient services.
Geographic areas served: Kansas & Missouri
Programs: The two MGA Clinics are a collaborative effort with local Neurologists who specialize in the treatment of MG. Physician offices make an effort to schedule MG patients the same day of the week so that MGA staff and volunteers can meet with patients/clients in the physician’s office before their appointment. A new diagnosis or coping with a chronic disease can cause anxiety and fear. Meeting with a MGA staff member or volunteer offers an informal, friendly and less medical opportunity for sharing. The purpose of the clinics is: • Provide support to MG clients and referrals to human services• Provide “New Member Packets” for newly diagnosed members• Provide opportunities to discuss coping with symptoms• Provide opportunities to discuss wellness techniques & healthy lifestyle• Provide informational material regarding links to MG and other health-related resources
I contracted MG in February of this year. It has affected my speech,neck muscles and jaw primarily. The doctor that diagnosed this told me they have no idea how you contract MG. I immediatel;y looked to see if there were any organizations that could help me with more information so I could understand my condition. I contacted the local chapet of MG here in Kansas City and I have never been more pleased with the response of "anything we can do to help you" along with all kinds of helpful literature as well. The local chapter
also has regular meetings where you can not only learn more about MG but meet other people who have been afflicted with this disease.