Mission: The Muscular Dystrophy Association is a voluntary health agency, a dedicated partnership between scientists and concerned citizens aimed at conquering more than 40 neuromuscular diseases that affect more than a million American adults and children. The diseases in MDA''s program include nine forms of muscular dystrophy, amyotrophic lateral sclerosis (Lou Gehrig''s disease), spinal muscular atrophy, Charcot-Marie-Tooth disease, metabolic diseases of muscle, myasthenia gravis, inflammatory myopathies, CMT, SMA, and other neuromuscular conditions.
MDA combats these diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. The Association''s programs are funded almost entirely by individual private contributors.
Programs: Local businesses sell green shamrock mobiles for $1 donation to MDA and gold shamrock mobiles for a $5 donation to MDA. The program runs February - March every year.
CMT: A TITLE, A LIFESTYLE Having CMT was not just a diagnosis for my but also for my kids, who also carry this diagnosis. We had to learn how to not only wear a title that no one knew about but to also live a life style that would change our lives forever. We could have given up and allowed circumstances to defeat us but our local MDA office and personnel came to our rescue. This is when we knew that their giving to us could only mean that our giving to others would result in a circle of love and support that could only produce healing and cure! Thus, our giving became our motivation to live, not just for ourselves but for others. Finding a place to learn more and grow with others like ourselves from the Hereditary Neuropathy Foundation was a heaven send. Having teens that do not accept a chronic illness decide to embrace a movement to help other like themselves and accept what can not be changed is a miracle by itself. Now we have a Giving story to tell and share with our friend and neighbors. Our giving cultivates a desire to go on and see what the end will bring, if not for us then maybe for someone else.