Multiple Sclerosis Association of America, Inc. Reviews
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April 11, 2011
2 people found this review helpful
I am writing this review both as a client served and a volunteer.
When my wife was diagnosed with MS three years ago and we sought out information and assistance, this organization was the first one to step forward with the programs and services they provided to the MS person and their family.
The quality of the programs they provide and the compassion shown to us were nothing short of exceptional. They did more than anyone could expect and made the information available to us to live with this dreadful disease.
From their mobility equipment, cooling and lending library programs, they have made our life and more importantly my wife's quality of life much better.
Since moving here to Arizona, we have also had the opportunity to attend their patient education programs. Again, mere words do not do justice when you talk about the quality of their programs. They are just outstanding. We recently had the opportunity to volunteer and not just attend, a program designed for children of parents with MS. The program was both moving and inspiring and brought tears to our eyes at times. The presenters of the program were very well familiar with the issues that we as parents face about what to tell our children about MS. The children also got to get a feel for what their parent is going through as well.
The MSAA is a spectular organizaion who lives up to its mission statement and they definitely take the "do no harm to the MS patient and their family or support system approach."
They are a leader for other MS organizations to follow and need to be given all the appropriate credit in that respect.
Finally I would like to say that having started an "MS Encouragement Group" here in Arizona, I can't say enough about how valuable the information and programs they provided and in particular to our members have helped enhance their quality of life as well.
Its very comforting to know that we have this great resource available to not only ourselves but to our members and that when you call, they are not afraid to roll up their sleeves and step in to see how they can help. They oftentimes offer help you did not even know was available.
What a valuable resource to the MS Community.
I've personally experienced the results of this organization in...
the way information and programs are administered to the MS community.
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