MLD FOUNDATION
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June 6, 2011
This Foundation has help us so much. Our family knew nothing about MLD and thanks to Dean and Teryn's help - they have connected us to many many families that are going through the same thing. The discussions have helped us with needs, pain management, symptoms.
They are wonderful and we would love to have them continued for ever and their help to try and get the word out as well as raise money for research has been terrific. Thank You Soooo Very Much MLD Foundation!!!
The Great!
I've personally experienced the results of this organization in...
my son
Ways to make it better...
If I had to make changes to this organization, I would...
nothing - just have more $$ raised for finding a cure
June 20, 2010
My son Jared was dx. with MLD in 2007. Since then the MLD Foundation has helped so much. They have helped us meet other families with this very rare disease. I had never in my life heard of this disease before my son was dx. with it. Dean and Teryn are wonderful people commited to helping families suffering from MLD. Every year they have a medical conference that all MLD families can attend so we are kept well informed of any medical advances for the disease. This is a wonderful foundation!
The Great!
I've personally experienced the results of this organization in...
in finding a place to feel comforted and joined together with others who are travelling the same path as myself and family. Having a child with an incurable, fatal illness is terrible. Meeting people through MLD foundation has helped me so much
Ways to make it better...
If I had to make changes to this organization, I would...
None. They are perfect.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Meeting other families affected with MLD
The kinds of staff and volunteers that I met were...
very kind and caring
If this organization had 10 million bucks, it could...
help cure MLD
Ways to make it better...
It is perfect the way it is
In my opinion, the biggest challenges facing this organization are...
we need more fundraising. we all need to help with that aspect
One thing I'd also say is that...
I think Dean and Teryn are doing a wonderful job. They have dedicated there lives to helping families and trying to overcome this monster...MLD
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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