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June 29, 2011

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June 29, 2011

My 10 year boy was born with a very rare medical and life threatning medical case called Venous Malformation , which required him travelling to different hospitals and inot different states. Due to my son's illness my husband was the only person working. Which made it very hard affording all the travelling expensses all the time espicially the flight tickets for three pepole. Miracle Flights help in a great deal I appreciate everything they did for us. It really gave us a big push to continure caring for my son. Thank you again very much.

The Great!

I've personally experienced the results of this organization in...

this organization gave a peas of mind and supported me with my financial situation this help to continue caring for my son

Ways to make it better...

If I had to make changes to this organization, I would...

to me they are doing a very good job wish them the best luck to help others thank you very much

June 29, 2011

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1 previous review
October 24, 2010

My daughter has a rare condition called Arnold-Chiari Malformation with complicating factors. For this reason, she sees a special pediatric neurosurgeon in Iowa. We live in Memphis. I am a divorced... more

June 29, 2011

This is a wonderful organization who has provided my daughter the opportunity to continue to see one of the top specialists in the world for her complicated medical condition. The flights have been provided at no cost, other than the application fee. They were fast, friendly, and compassionate! The flight schedule was emailed to me on the same day that all of the forms were received.

The Great!

I've personally experienced the results of this organization in...

receiving free flights to critical medical care for my daughter on two occasions.

Ways to make it better...

If I had to make changes to this organization, I would...

A template (Word doc) for the doctors to complete for the form letter that goes on their letterhead. Also, to allow a signed document to be scanned and emailed rather than requiring a fax for those of us who don't have easy access to a fax. Also, way out in the future, coordinate with the Ronald McDonald houses and shuttles or car rentals for a total trip package.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Word of mouth.

When was your last experience with this nonprofit?

2011

October 24, 2010

My daughter has a rare condition called Arnold-Chiari Malformation with complicating factors. For this reason, she sees a special pediatric neurosurgeon in Iowa. We live in Memphis. I am a divorced mother of two children and not working as I care for them both. To conserve in costs, I have formerly driven to these appointments which take about 16 hours each way. This is very difficult to do alone both for me and my daughter. On the first trip, I was so exhausted, that I fell asleep behind the wheel momentarily on the return trip. I decided from then on to not try to stretch the trip from 3 to 5 days so that I could stop at a hotel on the way up and on the way back. Also, I have an old car that is having a lot of problems. Finding this service was a Godsend and made the trip so much better for me and my daughter. The trip is safer and shorter. We would have not been able to afford it. So, we thank all of you for helping us in our time of need. Thank you from the bottom of my heart!

The Great!

I've personally experienced the results of this organization in...

August of 2010.

Ways to make it better...

If I had to make changes to this organization, I would...

Allow for online entry of information and forms.

June 24, 2011

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June 24, 2011

Miracle Flights for Kids is an amazing organization.They were kind, and quick in returning our phone calls. Rebecca Boyce was really accomodating to our needs. I felt like they had my child's best interests at heart.


Thank you

Tamiko Lewis

The Great!

I've personally experienced the results of this organization in...

My Son Reginald "Diddle" Lewis was diagnosed with a Juvenile Pilocytic Astrocytoma (a brain tumor),on 3/11/11. By God's grace the tumor was removed,however he needed to see his neurosurgeon and get follow-up MRI's every three months. We live in SC and his neurosurgeon is in TN. Miracle Flights for Kids purchased our plane tickets so he was able to continue to see his neurosurgeon in TN. When you are fighting for your child's life and the medical bills start coming in, organizations like Miracle Flights fo

Ways to make it better...

If I had to make changes to this organization, I would...

More advertising...to get more sponsors

June 24, 2011

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June 24, 2011

My daughter was diagnosed with a rare, incurable disease in September of 2009 - and the three pediatric rheumatologists that actually knew how to manage this disease were hundreds (if not thousands) of miles away from us. We scrimped together enough for the first few visits to fly from our home state of Arizona to Chicago to see THE top doc, but by the fourth visit, our savings was depleted, our family and friends had helped as much as they could and we had come to the realization that if we didn't find help, our daughter would not be able to continue to receive the life saving treatment she so desperately needed. And then a fellow JDM mom mentioned Miracle Flights for Kids. The application process was easy and straightforward, the people who run this organization are kind and I am not exaggerating when I say, we owe them EVERYTHING. I don't even want to think about where we would be without their help. I have joked that I would walk to Chicago with my daughter strapped to my back if that's what I needed to do. Thank God for MFFK, I don't have to do that :)

The Great!

I've personally experienced the results of this organization in...

the feeling I get knowing that my 8 year old daughter is receiving THE best care possible.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing. They are true life-savers.

June 14, 2011

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Review from Guidestar
1 previous review
December 22, 2010

My daughter has a very rare bone condition, and the doctor who knows how to treat her condition is on the other side of the country. In the past 3 and a half years, she has had 5 surgeries and severa... more

June 14, 2011

We have used Miracle Flights many times now to get our daughter the medical care she needs. We absolutely couldn't do it without them and are so grateful for their help.

The Great!

I've personally experienced the results of this organization in...

means to travel for medical care for my child

Ways to make it better...

If I had to make changes to this organization, I would...

have some sort of streamlined application feature for previous clients

December 22, 2010

My daughter has a very rare bone condition, and the doctor who knows how to treat her condition is on the other side of the country. In the past 3 and a half years, she has had 5 surgeries and several other follow up visits, including rehabilitation. Without Miracle Flights, this would not have been possible. They provide an invaluable service- and we have always been treated with kindness, respect, and professionalism. We can't say enough great things about this organization- or thank them enough!!

The Great!

I've personally experienced the results of this organization in...

receiving plane tickets to get my daughter the medical care she needs.

Ways to make it better...

If I had to make changes to this organization, I would...

nothing!

June 14, 2011

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Review from Guidestar
June 14, 2011

My 16 y/o son, who has a severe medical condition that could effect his future independency need specalized testing in Indanapolis, services not avaliable in NM, our family could not afford the round trip flight to get hime to the best medical care avaliable in the US. Miracle flights for kids
was a life saver for my son, and the outcome of the extensive testing was
successful in Indanapolis Univ Hospital. Miracle flight staff arranged the
round trip flight efficently without problems at the airline check in. We were stressed at first about the long flight, but once we arrived at the airport and checked status of correctiness of round trip flight info and our stress level was relieved when we saw we had the correct info on the flight info. We had no problem with the round trip flight.
Thank you so very much Miracle Flights, from our hearts.

The Great!

I've personally experienced the results of this organization in...

With round trip flight to provided needed health care for my 16 y/o son out of state.

Ways to make it better...

If I had to make changes to this organization, I would...

no changes needed.

June 13, 2011

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Review from Guidestar
June 13, 2011

Thanks to Miracle Flights For Kids, we were able to save our first son's life. By providing our family (mom, dad and son), airplane tickets from Las Vegas Nv, to Boston Ma. So that our son can start a medication called, Omegaven. Which is not approved by the FDA, therefore was really hard to get the medication in our home town. but thanks to Miracle Flights For Kids, we were able to flight to Boston MA, and start this life saving treatment. Miracle Flights not only did this for us, they also help us fly back to boston every two months. So that he can recive his treatment and follow up with doctors.

We are forever greatful to Miracle Flights For Kids, if it was'ent for the kindness of this organization and the people who support it, we as a family wouldent be here.

I can only hope that this organization can find more strength in those who support it and sponsor it, order to help those with similar needs.

Thank you Miracle Flight For Kids, thank you.

The Great!

I've personally experienced the results of this organization in...

Providing round trip airplane tickets, to boston ma, and back to las vegas Nv.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldent, I would just find more ways in order to keep this organization stronger, so that it may save more lives and help those in need.

June 10, 2011

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Review from Guidestar
June 10, 2011

My adult daughter, Jennifer, is disabled and only has her social security disability as income. She has an extremely rare disease and has to go to MD Anderson Cancer Center in Houston every three to four months. Miracle Flights for Kids has been generous enough to help us by providing flights to Houston, TX two separate times. The first time they helped was a roundtrip flights from Phoenix, AZ. The second time they provided roundtrip flights was from Las Vegas, NV, where we now live. We are so thankful that a program such as this is available to her.
We are very grateful.

The Great!

I've personally experienced the results of this organization in...

Flights for medical treatment

Ways to make it better...

If I had to make changes to this organization, I would...

not change anything. They are very helpful and responsive.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Very helpful, very responsive

When was your last experience with this nonprofit?

2011

June 10, 2011

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Review from Guidestar
June 10, 2011

We are really fortunate to have found Miracle Flights for Kids. Our son was born with a rare craniofacial syndrome that requires many surgeries in the first 2 years of life. Because his condition was not very common many of the doctors in our area had not seen or worked with a patient like our son. We found a renowned surgeon in Dallas that specializes in these craniofacial syndromes and naturally we wanted to entrust our son's care to someone with experience. We have been struggling to keep up with the medical bills and the travel expenses seemed overwhelming. Miracle Flights for Kids made it possible for us to fly to Dallas for the surgeries that our son needed. We are incredibly grateful to be given the opportunity to provide our son with excellent medical care and a better quality of life.

The Great!

I've personally experienced the results of this organization in...

This organization is able to change lives be helping those who can't otherwise afford it seek specialized medical help out of state.

Ways to make it better...

If I had to make changes to this organization, I would...

If there were more donations to this organization I imagine they would be able to offer more direct flights. It is uncomfortable make several stops when traveling with a child who is recovering from a major surgery.

June 9, 2011

I have a 11 year old son who was diagnosed with a rare genetic disease called X-Adrenoleukodystrophy in 2009. We are a family of 4 living in Honolulu, Hawaii. I am a firefighter with the City & County of Honolulu and my wife is a self employed chef. There are only 2 facilities in the United States that treat this disease that affects 1 in 18000 boys. They are the Kennedy Krieger Clinic in Baltimore, Maryland and the Mayo Clinic in Rochester, Minnesota. As this is a very serious disease that can be fatal we traveled to both facilities in the Spring of 2009 to get my son checked out. After seeing 6 doctor's and having a battery of tests performed along with a sedated 3T MRI we were told we had to return to the Mayo Clinic every 6 months for additional testing and MRI's to monitor any progression. We traveled 2 more times in 2009 and 2010 and spent over $30,000 in medical and travel expenses in 18 months. For our 4th visit in 2 years we had no way of paying for another trip to Minnesota from Hawaii. After contacting over 10 charities for any type of financial assistance we found Miracle Flights for Kids in Henderson, Nevada. These wonderful people and their charity were the only charity out of 10 to offer help to families in the state of Hawaii. Rebecca Boyce, Director of Operations, helped us every step of the way and arranged for my wife and son to get to the Mayo clinic last July. The checkup went so well we were told we could extend our time between visits to 11 months. My family and I just returned from The Mayo Clinic again last month where Miracle Flights for Kids again provided airline tickets for us. This time for my son, wife and myself and this really helped us immensely. Even with good medical coverage for my son my plan has doubled our copay starting in 2011 and with airfare running over a $1000 per person for our flights we would not be able to monitor my son's disease without Rebecca Boyce and Miracle Flights. We are so grateful and humbled to have found this charity and it has helped us focus on our son's health without having the additional burden of mounting debt. Please include Miracle Flights for Kids as being one of the most caring and helpful non profit organizations in the country.

Sincerely and Thankfully, Joel Nakaya

The Great!

I've personally experienced the results of this organization in...

By helping my son travel to the Mayo Clinic we have been able to monitor his disease for any negative progression.

Ways to make it better...

If I had to make changes to this organization, I would...

I can't think of anything I would change.

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