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June 9, 2011

I have a 11 year old son who was diagnosed with a rare genetic disease called X-Adrenoleukodystrophy in 2009. We are a family of 4 living in Honolulu, Hawaii. I am a firefighter with the City & County of Honolulu and my wife is a self employed chef. There are only 2 facilities in the United States that treat this disease that affects 1 in 18000 boys. They are the Kennedy Krieger Clinic in Baltimore, Maryland and the Mayo Clinic in Rochester, Minnesota. As this is a very serious disease that can be fatal we traveled to both facilities in the Spring of 2009 to get my son checked out. After seeing 6 doctor's and having a battery of tests performed along with a sedated 3T MRI we were told we had to return to the Mayo Clinic every 6 months for additional testing and MRI's to monitor any progression. We traveled 2 more times in 2009 and 2010 and spent over $30,000 in medical and travel expenses in 18 months. For our 4th visit in 2 years we had no way of paying for another trip to Minnesota from Hawaii. After contacting over 10 charities for any type of financial assistance we found Miracle Flights for Kids in Henderson, Nevada. These wonderful people and their charity were the only charity out of 10 to offer help to families in the state of Hawaii. Rebecca Boyce, Director of Operations, helped us every step of the way and arranged for my wife and son to get to the Mayo clinic last July. The checkup went so well we were told we could extend our time between visits to 11 months. My family and I just returned from The Mayo Clinic again last month where Miracle Flights for Kids again provided airline tickets for us. This time for my son, wife and myself and this really helped us immensely. Even with good medical coverage for my son my plan has doubled our copay starting in 2011 and with airfare running over a $1000 per person for our flights we would not be able to monitor my son's disease without Rebecca Boyce and Miracle Flights. We are so grateful and humbled to have found this charity and it has helped us focus on our son's health without having the additional burden of mounting debt. Please include Miracle Flights for Kids as being one of the most caring and helpful non profit organizations in the country.

Sincerely and Thankfully, Joel Nakaya

The Great!

I've personally experienced the results of this organization in...

By helping my son travel to the Mayo Clinic we have been able to monitor his disease for any negative progression.

Ways to make it better...

If I had to make changes to this organization, I would...

I can't think of anything I would change.

June 8, 2011

Miracle Flights is an absolutely amazing organization that is a lifesaver for families who have to travel for medical reasons. As a family who has been dealing with medical expenses for years and weren't sure how to get my son to a top doctor in the field, it was terrifying to think we may not be able to get him the help he needs...until we contacted Miracle Flights. Their staff is warm, understanding and get what it's like to go through what we do on a daily basis. We were able to fly from Wisconsin to Georgia without a hitch. Thank you, Miracle flights!

The Great!

I've personally experienced the results of this organization in...

so many ways. Compassion, affordable travel and amazing customer service!

Ways to make it better...

If I had to make changes to this organization, I would...

not be able to come up with a thing! They were amazing from start to end!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Online search

What, if any, change in your life has this group encouraged?

Abled to get my son life changing treatment for his permanent, progressive condition

When was your last experience with this nonprofit?

2011

June 8, 2011

Our daughter, Damaris Izabella Guerra, is 7 years old and we nicknamed her “Butterfly.” Butterfly has been diagnosed with chronic eosinophilic esophagitis and persistent rhinitis. She has suffered with this condition since 2008. Since November 2008 we have been traveling to Houston, TX, 400 miles away, to see specialists at UTHealth. Butterfly has an upper GI endoscopy performed every 4-5 months (a total of 6) because that is the only way to measure the eosinophil cells in her esophagus. This has cause a huge financial burden on our family. Because her conditions have been very difficult to control, the specialists in Houston referred us to a group of doctors at Cincinnati Children’s Hospital who are the world experts in Eosinophilic Gastrointestinal Disorders. Due to the financial burden we were currently facing, we were unable to purchase airfare to make this trip to Cincinnati. This trip opened new doors towards our daughters treatment for her condition. We thank Miracle Flights for Kids for the airfare assistance that made this trip possible and appreciate all they do helping families across the nation.

The Great!

I've personally experienced the results of this organization in...

airfare assistance for a trip to receive healthcare for our daughter.

Ways to make it better...

If I had to make changes to this organization, I would...

not make any changes

June 7, 2011

Miracle Flights covered 3 plane tickets for myself and my twin boys to fly for much needed medical care at Cincinnati Children's Hospital. My boys have Duchenne Muscular Dystrophy, an incurable debilitating disease. My boys benefit from the specialized clinic that Cincinnati Children's has. We do not have this type of clinic where we live. We could not make a trip like this without the airfare assistance. We are so grateful to the donors and to the caring staff of Miracle Flights. The process was clear and easy. We were given all the information we needed and encouraged to contact Miracle flights with any questions or concerns. I highly recommend to families: check out Miracle Flights before discarding specialized clinics that might be out of state. For potential donors: please know what a gift it is for a child to receive needed medical care because of your thoughtfullness. Thank you all!

The Great!

I've personally experienced the results of this organization in...

My family received complimentary needed airfare.

Ways to make it better...

If I had to make changes to this organization, I would...

no changes. It was wonderful.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Cincinnati Children's Hospital told me about this group.

What, if any, change in your life has this group encouraged?

We were not visiting this hospital because we are out of state. This organization made it possible for us to visit this hospital.

When was your last experience with this nonprofit?

2011

June 7, 2011

Miracle Flights is an amazing organization!!!! Without their help, we would not have been able to fly from Kansas City to New York to have our son's necessary treatments and surgeries. Not only that, everyone we spoke to was so kind and helpful. It was very easy to tell that everyone there really wanted to help.

(Our son was born with a rare mixed venous & lymphatic malformation. He has a trache and feeding tube. We travel with a feeding pump, suction machine, oxygen concentrator, and pulse oximeter machine.)

The Great!

I've personally experienced the results of this organization in...

by being one of the families that is helped by their amazing kindness!!!

Ways to make it better...

If I had to make changes to this organization, I would...

change absolutely nothing other than get them more funding!!!!!

June 7, 2011

Over the course of the past five years Miracle Flights has helped my disabled son travel to a special children's hospital for treatment. Without their help we would not have made the progress we have in treating his condition.

The Great!

I've personally experienced the results of this organization in...

helping sick kids get to their doctors.

Ways to make it better...

If I had to make changes to this organization, I would...

not make changes

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

May 24, 2011

My son Easton has arthrogrposis and we were being referred to say a specialist in Philadelphia. Of course we were concerned with how we were going to pay for our flights last minute. We were told about miracle flights so I looked into it. I got in touch with Renecca Boyce who was extremely helpful with giving us the information that we needed to get started, and so mice! I got all the stuff we needed faxed it over and within 20 min I had a flight for my son,husnand, and myself. A huge sigh of relief I was almost in tears! Now we are able to get the best care for our precious angel without losing everything in the process. Miracle Flights thank you for your wonderful staff and help :-)

The Great!

I've personally experienced the results of this organization in...

In a very positive way.

Ways to make it better...

If I had to make changes to this organization, I would...

I think its good the way you do things, it just gets hard trying to get hold of all the doctors in a short time. Most of the doctors at his hospital are only there at limited times.

May 23, 2011

more

May 23, 2011

Miracle Flights has been great assistance to our family. We have used the Miracle Flights service twice within the past 8 years. Our now ten year old son has Cerebral Palsy. In October, 2003, we flew from AL to St. Louis, MO, for a surgical procedure that changed our son's life forever. Due to the surgery, he was able to start walking independently!! Our son had surgery again in Houston, TX, in April 2011. The service of being able to fly to the surgery destination is priceless. When you have a child who has just undergone surgery, it is very difficult to travel by car for a long distance. By being able to fly for these past two surgery procedures, it allowed our family to safely travel, and it gave our son the ability to travel home much sooner by flying than if we had to travel by car. I can never thank Miracle Flights enough for the support they have shown our family these past years. I strongly encourage you to contact Miracle Flights if you need their service, and I certainly encourage anyone who is able to donate to this wonderful service. This is a service that directly helps children in need!

The Great!

I've personally experienced the results of this organization in...

from Alabama to St. Louis, MO, and from Alabama to Houston, TX.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing needs to be changed about this organization. The entire staff is beyond helpful, respectful to the families, and offers assistance in a timely manner. Great job Miracle Flights staff! You have no idea what a difference you make in the lives of children and families!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Internet searches

What, if any, change in your life has this group encouraged?

Thanks to this service, we were able to have much needed surgical procedures for our son. Thankfully, our son can now walk independently!!

When was your last experience with this nonprofit?

2011

May 1, 2011

When my daughter, Lainey, was diagnosed with a rare condition, Opsoclonus Myoclonus Syndrome, we were shocked. Although she had good doctors here in SC, we wanted to speak with a doctor in Illinois that has been researching and treating OMS for children all over the world. Within a week of her diagnosis and days before her surgery to have a tumor removed, we had a appointment at Southern Illinois University. We contacted Miracle Flights a few days later and were able to get a flight right away. We were on a plane five days later. Miracle Flights made the hassle and expense of travel the last thing on our minds. Lainey is now receiving the treatment she needs.

The Great!

I've personally experienced the results of this organization in...

2011

Ways to make it better...

If I had to make changes to this organization, I would...

get donors for administration fee.

April 25, 2011

more

Review from Guidestar
April 25, 2011

Miracle Flights has provided my family and several other families dealing with disabilities airfare to the Natural History Study in California. We would not be able to afford to see the experts on our own and they have been a real blessing! Everyone there is responsive and professional, providing us with clear communication in a variety of modes - phone, email, and snail mail so every detail was covered.

The ONLY criticism I had was that several people worked on my request so it led to multiple contacts for the same information - they are thorough!

Photos

The Great!

I've personally experienced the results of this organization in...

I am the Oregon Regional Representative for the International Rett Syndrome Foundation and have used Miracle Flights twice as well as sent several families to this organization.

Ways to make it better...

If I had to make changes to this organization, I would...

I would assign one person to each case for all contact - and keep a file from one request to the next so you have some continuity from one request to the next. I would also use get more user stories on your facebook page so people know about you and the great services you offer.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Katie's Clinic at Oakland children's Hospital recommended them

When was your last experience with this nonprofit?

2011

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