Miracle Flights for Kids
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June 8, 2011
Our daughter, Damaris Izabella Guerra, is 7 years old and we nicknamed her “Butterfly.” Butterfly has been diagnosed with chronic eosinophilic esophagitis and persistent rhinitis. She has suffered with this condition since 2008. Since November 2008 we have been traveling to Houston, TX, 400 miles away, to see specialists at UTHealth. Butterfly has an upper GI endoscopy performed every 4-5 months (a total of 6) because that is the only way to measure the eosinophil cells in her esophagus. This has cause a huge financial burden on our family. Because her conditions have been very difficult to control, the specialists in Houston referred us to a group of doctors at Cincinnati Children’s Hospital who are the world experts in Eosinophilic Gastrointestinal Disorders. Due to the financial burden we were currently facing, we were unable to purchase airfare to make this trip to Cincinnati. This trip opened new doors towards our daughters treatment for her condition. We thank Miracle Flights for Kids for the airfare assistance that made this trip possible and appreciate all they do helping families across the nation.
The Great!
I've personally experienced the results of this organization in...
airfare assistance for a trip to receive healthcare for our daughter.
Ways to make it better...
If I had to make changes to this organization, I would...
not make any changes
June 7, 2011
Miracle Flights covered 3 plane tickets for myself and my twin boys to fly for much needed medical care at Cincinnati Children's Hospital. My boys have Duchenne Muscular Dystrophy, an incurable debilitating disease. My boys benefit from the specialized clinic that Cincinnati Children's has. We do not have this type of clinic where we live. We could not make a trip like this without the airfare assistance. We are so grateful to the donors and to the caring staff of Miracle Flights. The process was clear and easy. We were given all the information we needed and encouraged to contact Miracle flights with any questions or concerns. I highly recommend to families: check out Miracle Flights before discarding specialized clinics that might be out of state. For potential donors: please know what a gift it is for a child to receive needed medical care because of your thoughtfullness. Thank you all!
The Great!
I've personally experienced the results of this organization in...
My family received complimentary needed airfare.
Ways to make it better...
If I had to make changes to this organization, I would...
no changes. It was wonderful.
More feedback...
How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
Cincinnati Children's Hospital told me about this group.
What, if any, change in your life has this group encouraged?
We were not visiting this hospital because we are out of state. This organization made it possible for us to visit this hospital.
When was your last experience with this nonprofit?
2011
June 7, 2011
Miracle Flights is an amazing organization!!!! Without their help, we would not have been able to fly from Kansas City to New York to have our son's necessary treatments and surgeries. Not only that, everyone we spoke to was so kind and helpful. It was very easy to tell that everyone there really wanted to help.
(Our son was born with a rare mixed venous & lymphatic malformation. He has a trache and feeding tube. We travel with a feeding pump, suction machine, oxygen concentrator, and pulse oximeter machine.)
The Great!
I've personally experienced the results of this organization in...
by being one of the families that is helped by their amazing kindness!!!
Ways to make it better...
If I had to make changes to this organization, I would...
change absolutely nothing other than get them more funding!!!!!
June 7, 2011
Over the course of the past five years Miracle Flights has helped my disabled son travel to a special children's hospital for treatment. Without their help we would not have made the progress we have in treating his condition.
The Great!
I've personally experienced the results of this organization in...
helping sick kids get to their doctors.
Ways to make it better...
If I had to make changes to this organization, I would...
not make changes
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2011
June 7, 2011
My daughter age 2 was born with a rare birth defect and she has to travel out of state to a place where they treat her condition. We live in Louisiana and travel to Boston Childrens each year and this year was a burden on us for we just couldn't get the funds together and we found Miracle Flights for Kids, they helped get us to her treatment place. We are so thankful for this organization they do help so many people for a great cause. Without them we wouldn't made her appointments that was needed for her follow up. The staff is great and work with you on the planning, paper work that needs to be done or any questions you may have. Miracle Flights is a blessing to our family.
The Great!
I've personally experienced the results of this organization in...
my daughter needing medical treatment for follow up care after surgery and needed to travel from La, to Ma. The organization helped us get there and it was a great blessing.
Ways to make it better...
If I had to make changes to this organization, I would...
I think they are doing a great job and can't think of any changes at this time. The organization was organized and knew what needed to be done. Keep up the great work.
May 24, 2011
My son Easton has arthrogrposis and we were being referred to say a specialist in Philadelphia. Of course we were concerned with how we were going to pay for our flights last minute. We were told about miracle flights so I looked into it. I got in touch with Renecca Boyce who was extremely helpful with giving us the information that we needed to get started, and so mice! I got all the stuff we needed faxed it over and within 20 min I had a flight for my son,husnand, and myself. A huge sigh of relief I was almost in tears! Now we are able to get the best care for our precious angel without losing everything in the process. Miracle Flights thank you for your wonderful staff and help :-)
The Great!
I've personally experienced the results of this organization in...
In a very positive way.
Ways to make it better...
If I had to make changes to this organization, I would...
I think its good the way you do things, it just gets hard trying to get hold of all the doctors in a short time. Most of the doctors at his hospital are only there at limited times.
May 23, 2011
Miracle Flights has been great assistance to our family. We have used the Miracle Flights service twice within the past 8 years. Our now ten year old son has Cerebral Palsy. In October, 2003, we flew from AL to St. Louis, MO, for a surgical procedure that changed our son's life forever. Due to the surgery, he was able to start walking independently!! Our son had surgery again in Houston, TX, in April 2011. The service of being able to fly to the surgery destination is priceless. When you have a child who has just undergone surgery, it is very difficult to travel by car for a long distance. By being able to fly for these past two surgery procedures, it allowed our family to safely travel, and it gave our son the ability to travel home much sooner by flying than if we had to travel by car. I can never thank Miracle Flights enough for the support they have shown our family these past years. I strongly encourage you to contact Miracle Flights if you need their service, and I certainly encourage anyone who is able to donate to this wonderful service. This is a service that directly helps children in need!
The Great!
I've personally experienced the results of this organization in...
from Alabama to St. Louis, MO, and from Alabama to Houston, TX.
Ways to make it better...
If I had to make changes to this organization, I would...
Nothing needs to be changed about this organization. The entire staff is beyond helpful, respectful to the families, and offers assistance in a timely manner. Great job Miracle Flights staff! You have no idea what a difference you make in the lives of children and families!
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
Internet searches
What, if any, change in your life has this group encouraged?
Thanks to this service, we were able to have much needed surgical procedures for our son. Thankfully, our son can now walk independently!!
When was your last experience with this nonprofit?
2011
May 1, 2011
When my daughter, Lainey, was diagnosed with a rare condition, Opsoclonus Myoclonus Syndrome, we were shocked. Although she had good doctors here in SC, we wanted to speak with a doctor in Illinois that has been researching and treating OMS for children all over the world. Within a week of her diagnosis and days before her surgery to have a tumor removed, we had a appointment at Southern Illinois University. We contacted Miracle Flights a few days later and were able to get a flight right away. We were on a plane five days later. Miracle Flights made the hassle and expense of travel the last thing on our minds. Lainey is now receiving the treatment she needs.
The Great!
I've personally experienced the results of this organization in...
2011
Ways to make it better...
If I had to make changes to this organization, I would...
get donors for administration fee.
April 25, 2011
Miracle Flights has provided my family and several other families dealing with disabilities airfare to the Natural History Study in California. We would not be able to afford to see the experts on our own and they have been a real blessing! Everyone there is responsive and professional, providing us with clear communication in a variety of modes - phone, email, and snail mail so every detail was covered.
The ONLY criticism I had was that several people worked on my request so it led to multiple contacts for the same information - they are thorough!
Photos
The Great!
I've personally experienced the results of this organization in...
I am the Oregon Regional Representative for the International Rett Syndrome Foundation and have used Miracle Flights twice as well as sent several families to this organization.
Ways to make it better...
If I had to make changes to this organization, I would...
I would assign one person to each case for all contact - and keep a file from one request to the next so you have some continuity from one request to the next. I would also use get more user stories on your facebook page so people know about you and the great services you offer.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
Katie's Clinic at Oakland children's Hospital recommended them
When was your last experience with this nonprofit?
2011
April 23, 2011
We have a medically challenged 6 yr old son who needed some medical/genetic testing done in Atlanta, Georgia. We live just south of St Paul, MN. We wouldn't have been able to go ahead with all the medical testing if it was not for Miracle Flights. We are struggling financially just like everyone else plus we have added challenges/cost because of our son's circumstances. It was nice to know that everyday people like us could get some help to do what is best for their child. I was so surprised how easy it was to get a flight arranged. The staff was very friendly and explained everything. I will definitely use this service again and tell others about it. I comes highly recommended by us!
The Great!
I've personally experienced the results of this organization in...
it allow us to be able to go somewhere for world renowed testing that wouldn't have been possible because of the Miracle Flights
Ways to make it better...
If I had to make changes to this organization, I would...
When planning the flights make sure all 3 people get to sit next to one another... that's it.