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311 Reviews
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January 22, 2011

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Review from Guidestar
January 22, 2011

My daughter, Avery was born with a rare condition called Arthrogryposis Multiplex Congenita (AMC), which affects the muscles and joints in her body.

We live in Michigan and initially sought treatment here locally, but after 15 months of seeing very little progress we ventured out to find
other options.

We found an amazing doctor and he is currently practicing at the Philadelphia Shriner's Hospital. We have been seeing him since Avery was 15 months old and without his expertise and passion for what he does, Avery would not have started walking when she was 2 1/2 years old....something our local doctors said she would NEVER do!!!!!

Miracle Flights has assisted us in traveling to see him. Avery will require ongoing treatment with him, which of course will also require frequent trips from Michigan to Philadelphia.

Thanks so much to Miracle Flights and to all who support it!!

Photos

The Great!

I've personally experienced the results of this organization in...

receiving Miracle flight tickets

Ways to make it better...

If I had to make changes to this organization, I would...

Make the paperwork less....Maybe a onetime(or once a year) letter from doctor and then appointment letters to confirm appointments, rather than for every single flight.

January 15, 2011

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January 15, 2011

Miracle flights has been such a blessing to our family. We have now been privileged to have received help from Miracle flights twice. We have 3 sons, and our youngest son who is 3 has had health problems since he was 6 months old. The medical bills and travel requirements have become overwhelming for our family. Feeling that we had drained our resources asking for help from family members, it was such a relief and miracle to have Miracle Flights step in and help. There are several medical specialists that our son needs that are not available in our area or even in our State. Because we live on an island, flight is a necessary part of our sons medical care. Miracle Flights has helped to ease some of that burden. Because time to care for our sons health needs is also a part of our burden, it was nice that the paper work required to receive help was not too time consuming and the approval process was very quick. We were pleasantly surprised how quick it was to receive help. The staff is very friendly and helpful. We are so grateful to this organization, and those who have generously donated.

The Great!

I've personally experienced the results of this organization in...

see my review above

Ways to make it better...

If I had to make changes to this organization, I would...

more publicity on how to receive help and/or how the average person can donate time, money or miles.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

from a mother that I met on line who had a daughter with similar health issues. She had received help from miracle flights.

What, if any, change in your life has this group encouraged?

It has put no limitations to our son receiving the health care that he needs

When was your last experience with this nonprofit?

2011

January 12, 2011

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Review from Guidestar
January 12, 2011

MFFK is a wonderful organization! They have assisted my family numerous times with out of town medical travel. Without their continued support and dedication, it would not be possible for Tyler to continue his treatment. We will remain forever grateful to MFFK, it's volunteers, and donors for the wonderful gift they have provided to our family. As a parent of a chronically ill child, it is always comforting knowing that I can rely on MFFK. Not only is the service they provide fantastic, but the support you receive from their staff goes above and beyond any expectations. I've never met anyone from MFFK, however I feel that I have, just from speaking with them. Their caring, and kind words always help to brighten my day. In closing, MFFK is simply just that an absolute miracle. We are truly blessed to have found them, and are honored are to be a part of such a wonderful organization.

The Great!

I've personally experienced the results of this organization in...

Please see above for my review, which includes detailed information on what a wonderful experience we had with MFFK.

Ways to make it better...

If I had to make changes to this organization, I would...

None. MFFK is by far the best organization that I've worked with. Just knowing that I can always count on them makes them perfect in my opinion.

January 8, 2011

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Review from Guidestar
January 8, 2011

In 2004 my son needed open heart surgery. I was researching taking him to a world renown surgeon in Columbus, Ohio for bloodless surgery. My insurance covered the surgery however it was difficult to come up with the money needed for the flight to get to Ohio. My Cardiologist informed me that there were organizations that could help with this , so I got in touch with Miracle Flights for Kids who immediately planned my flight and we were able to get there the day before our appointment and leave the day after discharge. In September 2010, I found out that my son needed another, bigger open heart surgery and I again contacted Miracle Flights for Kids who were so helpful in getting a flight scheduled. Since we had the best surgeon in the country (my personal belief) my son recovered faster than expected and we were able to adjust our return flight without any problem. I never could have made it to Columbus without this help. I am deeply grateful for this organization.

The Great!

I've personally experienced the results of this organization in...

Arranging flights to suit our personal needs was so easy. At a time when you are stressed out about your child this organization is like a breath of fresh air in the help that they provide. It alleviated so much of the stress.

Ways to make it better...

If I had to make changes to this organization, I would...

I don't think it could be better!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

My Cardiologist was familiar with like organizations and told me about them.

What, if any, change in your life has this group encouraged?

Helping those in need.

When was your last experience with this nonprofit?

2010

January 7, 2011

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Review from Guidestar
January 7, 2011

I am a single mother of a 14 yr old who was born with a rare vascular disorder. Because it is so rare, we have had to travel to various states for treatments. I found Kids Miracle Flights last year, and it has saved our life!!! I don't know how I would have ever been able to get my daughter for help without this organization. Rebecca has always made it such a smooth transaction for tickets. Recently we had to get to Seattle on a short notice, and Revecca was awesome in getting everything we needed. There are not enought words of gratitude.
Laura Severs

The Great!

I've personally experienced the results of this organization in...

Organizing our flight for my child

Ways to make it better...

If I had to make changes to this organization, I would...

None

January 5, 2011

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Review from Guidestar
January 5, 2011

My husband was diagnosed with ALS/Lou Gehrig's disease. There are few treatments or clinical trials available. John Hopkins, out of Baltimore Maryland is offering a trial based on one diet, the Ketogenic plan. However, by participating in this clinical trial, it requires my husband to fly to and from Baltimore as often as twice a month. If it were not for the assistance that Miracle Flights has provided, we would be in a horrific financial mess. Flights are not cheap, no matter what airline you use. This study gives my husband hope to help find a cure for others.

The Great!

I've personally experienced the results of this organization in...

My husband has had ongoing successful flights throughout his year of treatment. Miracle Flights always come through, even in December 2010 when their financial resources were tightened. Rebecca has been a saint in so many ways. I cannot thank her enough.

Ways to make it better...

If I had to make changes to this organization, I would...

The only recommendation I have is that the fee should be based on a sliding scale for one's total income. Not that I mind paying 50.00 for the fee, its well worth it, but I can see how that can add up for others in need

January 1, 2011

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Review from Guidestar
January 1, 2011

This was amazing, I had called in hopes that someone would help my family to get my son to Pittsburgh. We were traveling from California. This would have been expensive. They asked some criteria and forms to be filled out and have the Doctors from the location to and from. We took care of it with their help. As soona sthey received the forms and letters we received the tickets and itenery. This is amazing in everyway possible. This has made our family's year and years to come. I will be using them in the future if need be. I want to thank everyone at Miracle Flights for Kids and want them to know that if it was not for them my son would have had to wait for this transplant. This was a rare condition and had been told no cure but as of now he is doing amazing. He had more than any islets in an autoislet transplant and you have made this possible for Derek to have a chance of not being diabetic....

The Great!

I've personally experienced the results of this organization in...

California when my son has been diagnosed with Hereditary Chronic Pancreatitis. We flew from California to Pittsburgh, PA.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not it was great!!!

December 31, 2010

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Review from Guidestar
December 31, 2010

Miracle Flights for Kids was an enormous help to us.My son has a syndrome which at almost 3 yrs old has yet to be diagnosed.We were told by one his Dr's in our home town that he might have a certain condition called M-CM.The leading specialist in this condition is in Michigan.We realy wanted to go meet with him so he could examin Nicholas nad hopefully answer our questions and let us know if it was or wasn't M-CM.I am a single mom with 2 children on a very tight budget.My son has 10 Dr's and we need to see most of them every 6 months.We have many, many bills!There was no way I could offered the airfare to Michigan for me and my son but I felt it was very important to get to meet this Dr and get his opinion on what is going on with my baby.Thanks to Miracle Flights for Kids we were able to make the trip this past Nov!!We are so grateful.They worked so very quickly on getting everyhting in order for us.They were more than helpful they were a blessing an answer to our prayers!!Within a few days of turning in the paperwork I received a call and email from Rebecca with all the details of our trip.We got to meet he Dr., he doesn't believe my son has M-CM but another syndrom so our journey still continues and I hope that if we ever have to make another trip out of state that we will be able to use the wonderful service that Miracle Flights provides again.

The Great!

I've personally experienced the results of this organization in...

our trip to Michigan.

Ways to make it better...

If I had to make changes to this organization, I would...

Maybe they can call before they actually start the process of looking for the tickets so that if they can't take you exaclty where you need to go you will be aware before the tickets are already purchased.Or have some info of all the airports to help w/ ground transportation if you're left in a city differnet than your final destination.

December 27, 2010

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Review from Guidestar
December 27, 2010

my sweet 16 year old grandaughter has, among many more diagnosisis, chiari malformation and shunted hydrocephalus. we were so blessed that our local neurologist found the chiari institute in new york, who specialize in these and related conditions, and were able to give brittany the help she needed and deserved. without the help of miracle flights for kids and other non-profit organizations, like the ronald mcdonald house of long island, we were able to travel back and forth and not worry so much about the financial aspects of the much-needed transportation from louisiana. the flights were smooth and stress-free and even when we had to re-schedule our return flights because of brittany's condition, there were absolutely no problems. i just praise God that we were so blessed to find out about these awesome organizations to help us during such a stressful time in our lives. we will be needing to return for check-ups in the future, possibly even more surgery, and are so thankful that these wonderful people are here to help us.

The Great!

I've personally experienced the results of this organization in...

traveling to and from new york to see physicians and have surgery at the chiari institute

Ways to make it better...

If I had to make changes to this organization, I would...

absolutely nothing

December 23, 2010

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Review from Guidestar
December 23, 2010

My daughter was born with a condition called Congenital Pseudarthrosis of the Tibia. She has a non-healing fractured tibia that requires extensive treatment and surgery in the next several years. We live in SC, but our surgeon that specializes in this rare condition is located in Baltimore, MD. The distance makes it difficult for us, especially with our already high medical costs. Miracle Flights for Kids is such a godsend to us. They provided us with transportation to and from Baltimore for Aria's surgery two months ago. What a blessing that was! We will forever be grateful to this nonprofit organization for their generosity and support.

The Great!

I've personally experienced the results of this organization in...

Transportation to and from treatment facilities

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't make changes!

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