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June 17, 2011

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Review from Guidestar
June 17, 2011

My name is Katia. I am a 32 years old mother of 2 with Medulloblastoma, a cancerous brain tumor. I have been fighting this since February of 2008. I had 2 brain surgeries, radiation, and chemo. I was cancer free for 1year and a month. Then it was back in April of 2010. My doctor decided to do a bone marrow transplant, so I did that too. I first had another brain surgery, 1 treatment of radiation, and then the transplant. I came out of the hospital after transplant on September 9th, 2010. I had an MRI on January 6th, 2011 and everything was clear. I went back on April 21st for my second MRI thinking everything would be fine. I brought my daughter with me because it was spring break, and it was her 10th birthday. I though we would spend the rest of the day in Boston. The news weren't good. The tumor was all over my brain now. I was hoping for another brain surgery, but it was now inoperable. My neuro-oncologist told me that in his opinion I had fewer than 6months to live. I felt terrible. My daughter was terribly sad, but I promised her that I would fight until the end, and that I wouldn't give up. The only option for my survival was to participate in a Medical Trial out of Pittsburgh, PA. The problem was that not having worked for the past almost 3 1/2 years; I clearly couldn't afford flying weekly to get treatment as it was required by the study. I decided to search on the internet, I also contacted my councilor at Dana Farber, and I came across this organization called Miracle Flights. This was exactly what I needed. They would provide me with every flight I needed to get care. If it wasn't for Miracle Flights For Kids I couldn't continue to fight. I am grateful that I was given another chance to life. Thank you.
Sincerely, Katia

The Great!

I've personally experienced the results of this organization in...

I was desperate for help, and received help from Miracle Flights

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing.

June 14, 2011

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Review from Guidestar
1 previous review
December 22, 2010

My daughter has a very rare bone condition, and the doctor who knows how to treat her condition is on the other side of the country. In the past 3 and a half years, she has had 5 surgeries and severa... more

June 14, 2011

We have used Miracle Flights many times now to get our daughter the medical care she needs. We absolutely couldn't do it without them and are so grateful for their help.

The Great!

I've personally experienced the results of this organization in...

means to travel for medical care for my child

Ways to make it better...

If I had to make changes to this organization, I would...

have some sort of streamlined application feature for previous clients

December 22, 2010

My daughter has a very rare bone condition, and the doctor who knows how to treat her condition is on the other side of the country. In the past 3 and a half years, she has had 5 surgeries and several other follow up visits, including rehabilitation. Without Miracle Flights, this would not have been possible. They provide an invaluable service- and we have always been treated with kindness, respect, and professionalism. We can't say enough great things about this organization- or thank them enough!!

The Great!

I've personally experienced the results of this organization in...

receiving plane tickets to get my daughter the medical care she needs.

Ways to make it better...

If I had to make changes to this organization, I would...

nothing!

June 14, 2011

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Review from Guidestar
June 14, 2011

My 16 y/o son, who has a severe medical condition that could effect his future independency need specalized testing in Indanapolis, services not avaliable in NM, our family could not afford the round trip flight to get hime to the best medical care avaliable in the US. Miracle flights for kids
was a life saver for my son, and the outcome of the extensive testing was
successful in Indanapolis Univ Hospital. Miracle flight staff arranged the
round trip flight efficently without problems at the airline check in. We were stressed at first about the long flight, but once we arrived at the airport and checked status of correctiness of round trip flight info and our stress level was relieved when we saw we had the correct info on the flight info. We had no problem with the round trip flight.
Thank you so very much Miracle Flights, from our hearts.

The Great!

I've personally experienced the results of this organization in...

With round trip flight to provided needed health care for my 16 y/o son out of state.

Ways to make it better...

If I had to make changes to this organization, I would...

no changes needed.

June 13, 2011

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Review from Guidestar
June 13, 2011

Thanks to Miracle Flights For Kids, we were able to save our first son's life. By providing our family (mom, dad and son), airplane tickets from Las Vegas Nv, to Boston Ma. So that our son can start a medication called, Omegaven. Which is not approved by the FDA, therefore was really hard to get the medication in our home town. but thanks to Miracle Flights For Kids, we were able to flight to Boston MA, and start this life saving treatment. Miracle Flights not only did this for us, they also help us fly back to boston every two months. So that he can recive his treatment and follow up with doctors.

We are forever greatful to Miracle Flights For Kids, if it was'ent for the kindness of this organization and the people who support it, we as a family wouldent be here.

I can only hope that this organization can find more strength in those who support it and sponsor it, order to help those with similar needs.

Thank you Miracle Flight For Kids, thank you.

The Great!

I've personally experienced the results of this organization in...

Providing round trip airplane tickets, to boston ma, and back to las vegas Nv.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldent, I would just find more ways in order to keep this organization stronger, so that it may save more lives and help those in need.

June 10, 2011

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Review from Guidestar
June 10, 2011

My adult daughter, Jennifer, is disabled and only has her social security disability as income. She has an extremely rare disease and has to go to MD Anderson Cancer Center in Houston every three to four months. Miracle Flights for Kids has been generous enough to help us by providing flights to Houston, TX two separate times. The first time they helped was a roundtrip flights from Phoenix, AZ. The second time they provided roundtrip flights was from Las Vegas, NV, where we now live. We are so thankful that a program such as this is available to her.
We are very grateful.

The Great!

I've personally experienced the results of this organization in...

Flights for medical treatment

Ways to make it better...

If I had to make changes to this organization, I would...

not change anything. They are very helpful and responsive.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Very helpful, very responsive

When was your last experience with this nonprofit?

2011

June 10, 2011

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Review from Guidestar
June 10, 2011

We are really fortunate to have found Miracle Flights for Kids. Our son was born with a rare craniofacial syndrome that requires many surgeries in the first 2 years of life. Because his condition was not very common many of the doctors in our area had not seen or worked with a patient like our son. We found a renowned surgeon in Dallas that specializes in these craniofacial syndromes and naturally we wanted to entrust our son's care to someone with experience. We have been struggling to keep up with the medical bills and the travel expenses seemed overwhelming. Miracle Flights for Kids made it possible for us to fly to Dallas for the surgeries that our son needed. We are incredibly grateful to be given the opportunity to provide our son with excellent medical care and a better quality of life.

The Great!

I've personally experienced the results of this organization in...

This organization is able to change lives be helping those who can't otherwise afford it seek specialized medical help out of state.

Ways to make it better...

If I had to make changes to this organization, I would...

If there were more donations to this organization I imagine they would be able to offer more direct flights. It is uncomfortable make several stops when traveling with a child who is recovering from a major surgery.

June 9, 2011

I have a 11 year old son who was diagnosed with a rare genetic disease called X-Adrenoleukodystrophy in 2009. We are a family of 4 living in Honolulu, Hawaii. I am a firefighter with the City & County of Honolulu and my wife is a self employed chef. There are only 2 facilities in the United States that treat this disease that affects 1 in 18000 boys. They are the Kennedy Krieger Clinic in Baltimore, Maryland and the Mayo Clinic in Rochester, Minnesota. As this is a very serious disease that can be fatal we traveled to both facilities in the Spring of 2009 to get my son checked out. After seeing 6 doctor's and having a battery of tests performed along with a sedated 3T MRI we were told we had to return to the Mayo Clinic every 6 months for additional testing and MRI's to monitor any progression. We traveled 2 more times in 2009 and 2010 and spent over $30,000 in medical and travel expenses in 18 months. For our 4th visit in 2 years we had no way of paying for another trip to Minnesota from Hawaii. After contacting over 10 charities for any type of financial assistance we found Miracle Flights for Kids in Henderson, Nevada. These wonderful people and their charity were the only charity out of 10 to offer help to families in the state of Hawaii. Rebecca Boyce, Director of Operations, helped us every step of the way and arranged for my wife and son to get to the Mayo clinic last July. The checkup went so well we were told we could extend our time between visits to 11 months. My family and I just returned from The Mayo Clinic again last month where Miracle Flights for Kids again provided airline tickets for us. This time for my son, wife and myself and this really helped us immensely. Even with good medical coverage for my son my plan has doubled our copay starting in 2011 and with airfare running over a $1000 per person for our flights we would not be able to monitor my son's disease without Rebecca Boyce and Miracle Flights. We are so grateful and humbled to have found this charity and it has helped us focus on our son's health without having the additional burden of mounting debt. Please include Miracle Flights for Kids as being one of the most caring and helpful non profit organizations in the country.

Sincerely and Thankfully, Joel Nakaya

The Great!

I've personally experienced the results of this organization in...

By helping my son travel to the Mayo Clinic we have been able to monitor his disease for any negative progression.

Ways to make it better...

If I had to make changes to this organization, I would...

I can't think of anything I would change.

June 8, 2011

Miracle Flights is an absolutely amazing organization that is a lifesaver for families who have to travel for medical reasons. As a family who has been dealing with medical expenses for years and weren't sure how to get my son to a top doctor in the field, it was terrifying to think we may not be able to get him the help he needs...until we contacted Miracle Flights. Their staff is warm, understanding and get what it's like to go through what we do on a daily basis. We were able to fly from Wisconsin to Georgia without a hitch. Thank you, Miracle flights!

The Great!

I've personally experienced the results of this organization in...

so many ways. Compassion, affordable travel and amazing customer service!

Ways to make it better...

If I had to make changes to this organization, I would...

not be able to come up with a thing! They were amazing from start to end!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Online search

What, if any, change in your life has this group encouraged?

Abled to get my son life changing treatment for his permanent, progressive condition

When was your last experience with this nonprofit?

2011

June 8, 2011

Our daughter, Damaris Izabella Guerra, is 7 years old and we nicknamed her “Butterfly.” Butterfly has been diagnosed with chronic eosinophilic esophagitis and persistent rhinitis. She has suffered with this condition since 2008. Since November 2008 we have been traveling to Houston, TX, 400 miles away, to see specialists at UTHealth. Butterfly has an upper GI endoscopy performed every 4-5 months (a total of 6) because that is the only way to measure the eosinophil cells in her esophagus. This has cause a huge financial burden on our family. Because her conditions have been very difficult to control, the specialists in Houston referred us to a group of doctors at Cincinnati Children’s Hospital who are the world experts in Eosinophilic Gastrointestinal Disorders. Due to the financial burden we were currently facing, we were unable to purchase airfare to make this trip to Cincinnati. This trip opened new doors towards our daughters treatment for her condition. We thank Miracle Flights for Kids for the airfare assistance that made this trip possible and appreciate all they do helping families across the nation.

The Great!

I've personally experienced the results of this organization in...

airfare assistance for a trip to receive healthcare for our daughter.

Ways to make it better...

If I had to make changes to this organization, I would...

not make any changes

June 7, 2011

Miracle Flights covered 3 plane tickets for myself and my twin boys to fly for much needed medical care at Cincinnati Children's Hospital. My boys have Duchenne Muscular Dystrophy, an incurable debilitating disease. My boys benefit from the specialized clinic that Cincinnati Children's has. We do not have this type of clinic where we live. We could not make a trip like this without the airfare assistance. We are so grateful to the donors and to the caring staff of Miracle Flights. The process was clear and easy. We were given all the information we needed and encouraged to contact Miracle flights with any questions or concerns. I highly recommend to families: check out Miracle Flights before discarding specialized clinics that might be out of state. For potential donors: please know what a gift it is for a child to receive needed medical care because of your thoughtfullness. Thank you all!

The Great!

I've personally experienced the results of this organization in...

My family received complimentary needed airfare.

Ways to make it better...

If I had to make changes to this organization, I would...

no changes. It was wonderful.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Cincinnati Children's Hospital told me about this group.

What, if any, change in your life has this group encouraged?

We were not visiting this hospital because we are out of state. This organization made it possible for us to visit this hospital.

When was your last experience with this nonprofit?

2011

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