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286 Reviews
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January 8, 2011

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Review from Guidestar
January 8, 2011

In 2004 my son needed open heart surgery. I was researching taking him to a world renown surgeon in Columbus, Ohio for bloodless surgery. My insurance covered the surgery however it was difficult to come up with the money needed for the flight to get to Ohio. My Cardiologist informed me that there were organizations that could help with this , so I got in touch with Miracle Flights for Kids who immediately planned my flight and we were able to get there the day before our appointment and leave the day after discharge. In September 2010, I found out that my son needed another, bigger open heart surgery and I again contacted Miracle Flights for Kids who were so helpful in getting a flight scheduled. Since we had the best surgeon in the country (my personal belief) my son recovered faster than expected and we were able to adjust our return flight without any problem. I never could have made it to Columbus without this help. I am deeply grateful for this organization.

The Great!

I've personally experienced the results of this organization in...

Arranging flights to suit our personal needs was so easy. At a time when you are stressed out about your child this organization is like a breath of fresh air in the help that they provide. It alleviated so much of the stress.

Ways to make it better...

If I had to make changes to this organization, I would...

I don't think it could be better!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

My Cardiologist was familiar with like organizations and told me about them.

What, if any, change in your life has this group encouraged?

Helping those in need.

When was your last experience with this nonprofit?

2010

January 7, 2011

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Review from Guidestar
January 7, 2011

I am a single mother of a 14 yr old who was born with a rare vascular disorder. Because it is so rare, we have had to travel to various states for treatments. I found Kids Miracle Flights last year, and it has saved our life!!! I don't know how I would have ever been able to get my daughter for help without this organization. Rebecca has always made it such a smooth transaction for tickets. Recently we had to get to Seattle on a short notice, and Revecca was awesome in getting everything we needed. There are not enought words of gratitude.
Laura Severs

The Great!

I've personally experienced the results of this organization in...

Organizing our flight for my child

Ways to make it better...

If I had to make changes to this organization, I would...

None

January 5, 2011

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Review from Guidestar
January 5, 2011

My husband was diagnosed with ALS/Lou Gehrig's disease. There are few treatments or clinical trials available. John Hopkins, out of Baltimore Maryland is offering a trial based on one diet, the Ketogenic plan. However, by participating in this clinical trial, it requires my husband to fly to and from Baltimore as often as twice a month. If it were not for the assistance that Miracle Flights has provided, we would be in a horrific financial mess. Flights are not cheap, no matter what airline you use. This study gives my husband hope to help find a cure for others.

The Great!

I've personally experienced the results of this organization in...

My husband has had ongoing successful flights throughout his year of treatment. Miracle Flights always come through, even in December 2010 when their financial resources were tightened. Rebecca has been a saint in so many ways. I cannot thank her enough.

Ways to make it better...

If I had to make changes to this organization, I would...

The only recommendation I have is that the fee should be based on a sliding scale for one's total income. Not that I mind paying 50.00 for the fee, its well worth it, but I can see how that can add up for others in need

January 1, 2011

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Review from Guidestar
January 1, 2011

This was amazing, I had called in hopes that someone would help my family to get my son to Pittsburgh. We were traveling from California. This would have been expensive. They asked some criteria and forms to be filled out and have the Doctors from the location to and from. We took care of it with their help. As soona sthey received the forms and letters we received the tickets and itenery. This is amazing in everyway possible. This has made our family's year and years to come. I will be using them in the future if need be. I want to thank everyone at Miracle Flights for Kids and want them to know that if it was not for them my son would have had to wait for this transplant. This was a rare condition and had been told no cure but as of now he is doing amazing. He had more than any islets in an autoislet transplant and you have made this possible for Derek to have a chance of not being diabetic....

The Great!

I've personally experienced the results of this organization in...

California when my son has been diagnosed with Hereditary Chronic Pancreatitis. We flew from California to Pittsburgh, PA.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not it was great!!!

December 31, 2010

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Review from Guidestar
December 31, 2010

Miracle Flights for Kids was an enormous help to us.My son has a syndrome which at almost 3 yrs old has yet to be diagnosed.We were told by one his Dr's in our home town that he might have a certain condition called M-CM.The leading specialist in this condition is in Michigan.We realy wanted to go meet with him so he could examin Nicholas nad hopefully answer our questions and let us know if it was or wasn't M-CM.I am a single mom with 2 children on a very tight budget.My son has 10 Dr's and we need to see most of them every 6 months.We have many, many bills!There was no way I could offered the airfare to Michigan for me and my son but I felt it was very important to get to meet this Dr and get his opinion on what is going on with my baby.Thanks to Miracle Flights for Kids we were able to make the trip this past Nov!!We are so grateful.They worked so very quickly on getting everyhting in order for us.They were more than helpful they were a blessing an answer to our prayers!!Within a few days of turning in the paperwork I received a call and email from Rebecca with all the details of our trip.We got to meet he Dr., he doesn't believe my son has M-CM but another syndrom so our journey still continues and I hope that if we ever have to make another trip out of state that we will be able to use the wonderful service that Miracle Flights provides again.

The Great!

I've personally experienced the results of this organization in...

our trip to Michigan.

Ways to make it better...

If I had to make changes to this organization, I would...

Maybe they can call before they actually start the process of looking for the tickets so that if they can't take you exaclty where you need to go you will be aware before the tickets are already purchased.Or have some info of all the airports to help w/ ground transportation if you're left in a city differnet than your final destination.

December 27, 2010

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Review from Guidestar
December 27, 2010

my sweet 16 year old grandaughter has, among many more diagnosisis, chiari malformation and shunted hydrocephalus. we were so blessed that our local neurologist found the chiari institute in new york, who specialize in these and related conditions, and were able to give brittany the help she needed and deserved. without the help of miracle flights for kids and other non-profit organizations, like the ronald mcdonald house of long island, we were able to travel back and forth and not worry so much about the financial aspects of the much-needed transportation from louisiana. the flights were smooth and stress-free and even when we had to re-schedule our return flights because of brittany's condition, there were absolutely no problems. i just praise God that we were so blessed to find out about these awesome organizations to help us during such a stressful time in our lives. we will be needing to return for check-ups in the future, possibly even more surgery, and are so thankful that these wonderful people are here to help us.

The Great!

I've personally experienced the results of this organization in...

traveling to and from new york to see physicians and have surgery at the chiari institute

Ways to make it better...

If I had to make changes to this organization, I would...

absolutely nothing

December 23, 2010

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Review from Guidestar
December 23, 2010

My daughter was born with a condition called Congenital Pseudarthrosis of the Tibia. She has a non-healing fractured tibia that requires extensive treatment and surgery in the next several years. We live in SC, but our surgeon that specializes in this rare condition is located in Baltimore, MD. The distance makes it difficult for us, especially with our already high medical costs. Miracle Flights for Kids is such a godsend to us. They provided us with transportation to and from Baltimore for Aria's surgery two months ago. What a blessing that was! We will forever be grateful to this nonprofit organization for their generosity and support.

The Great!

I've personally experienced the results of this organization in...

Transportation to and from treatment facilities

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't make changes!

December 22, 2010

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Review from Guidestar
December 22, 2010

My son Riley, 15, has dermatomyositis, a rare, uncurable form of muscular dystrophy. He flies out to Chicago to see the world's expert for his disease, Dr. Lauren Pachman, at Children's Memorial Hospital, 3-4x year. Miracle Flights has been fantastic support for us to get him there, as we are of small financial means. Because we are able to get to this specialist, Riley is improving all the time, and with luck, will go into full remission - we're on the right path for that to happen. Becky has always been extremely helpful to us, and we appreciate her being able to get us good flights out to Chicago and back. Thank you, thank you, thank you Miracle Flights!

The Great!

I've personally experienced the results of this organization in...

When needing flights to and from a specialist in Chicago.

Ways to make it better...

If I had to make changes to this organization, I would...

None - they are fantastic.

December 21, 2010

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Review from Guidestar
December 21, 2010

Scarlett was diagnosed with Neuroblastoma in February of this year. She was 20 months old. What lead us to finding the tumor was a condition called Opsoclonus Myoclonus Syndrome (OMS) which causes her to tremor, shake, fall, not sleep, and have speech problems. Without proper treatment it can lead to brain damage. The tumor was removed but the OMS remianed. Miracle Flights helped Scarlett to see a specialist who focuses on OMS and to get Scarlett on the right treatment protocall. We thank you so much for helping our little Scarlett!

The Great!

I've personally experienced the results of this organization in...

my life.

Ways to make it better...

If I had to make changes to this organization, I would...

None. The experience was a wonderful one. In times of great need they went above and beyond.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Through Dr. Pranzatelli's office in Springfield IL

When was your last experience with this nonprofit?

2010

December 18, 2010

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Review from Guidestar
December 18, 2010

I am the mother of 4 children. Two of my 4 childen were born disabled. Miracle Flights came through for me 14 years ago when my oldest disabled daughter needed brain surgery in Michigan and I live in Las Vegas. They were willing to fly us as much as we needed to go at no charge. This was truly a gift to our family and our daughter.

Well 10 years ago our second daughter was born. She was born with an orthopedic condtion that requires a lot of casting and surgeries. Unfortunately, the specialists for her condition are not local. Jessica has had 10 surgeries in her 10 years. All of her surgeries require casts and numerous follow-up visits. Miracle Flights for Kids has flown us from Las Vegas to Seattle, Washington over 35 times. They have always been there for us. Without their help, we would not have been able to see the surgeons that have helped my daughter get where she is today. She is a very happy little girl that attends normal classes. She can walk and run thanks to the doctors and miracle flights generosity. I will forever be grateful for what they have done for Jessica and my family.

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization because they have flown me and my daughter over 35 times in the past 10 years. They have always made sure that we get to our appointments no matter how many we have. They never question the distance or the frequency.

Ways to make it better...

If I had to make changes to this organization, I would...

The only thing I would change would be the amount of paperwork that is required from the doctors. Some of the doctor's are more efficient and cooperative than others in signing and writing letters. That is the only difficult thing I can see in going through the flight process. Sometimes it is stressful. I know it is necessary but some doctors just don't have the time.

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