Michigan Lyme Disease Association

Rating: 4.95 stars   95 reviews

Issues: Health

Location: 35431 Brush St. Wayne MI 48184 USA

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 
Target demographics: with support, education and research on Tick-Borne Diseases.
Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education
Geographic areas served: State of Michigan
Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.
2014 Top-Rated Nonprofit
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EIN 38-2987081
1-888-784-5963
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Community Reviews

Rating: 5 stars  

Next month (9-13-2014) will be 21 years with Lyme disease. ( Also had Babesia and Ehrlichia) I would not be here today. if someone from the MLDA did not help me. I was very ill and needed help. The ER Dr. said I would be fine and not to worry. I started volunteering early on. I am the secretary and the person who sends out all the information to those who ask. Over the last 21 years I have sent out tens of
thousands of pieces of literature. We do not charge for any of it. We pay for all the printing and postage ourselves. I am mostly homebound now but still send out information and do what I can.. Through the MLDA I have seen the education of medical personal rise, slowly but surely and it is all through the
hard work of the MLDA.

If I had to make changes to this organization, I would...

I would find an easier way to get grants than always asking our members who are mostly very ill and cannot work.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

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1 previous review
Rating: 5 stars  

When I got bit in 1993, there was almost no help from the medical community. I was so sick, most days I didn't know who I was or where I lived. The MLDA helped me in so many ways. When attending support group meetings, then board meetings I found out that they were the only ones interested in getting information to people. iI is hard to function and find information when your brain is swollen. If it wasn't for them, who gave me information to take to my doctor, I am sure I would probably be in a nursing home intead of now being a volunteer and "passing it forward" This is a great organization.

I've personally experienced the results of this organization in...

Yes, because there wasn't information hardly anywhere, and they compiled it for us to take to our doctors. This was life saving for me. As a board member I see the thousands of pieces of information sent out every year and hope that we are educating the public, and people can get treatment early and maybe avoid a long term illness.

If I had to make changes to this organization, I would...

Help them with fundraising and getting more volunteers. Almost everyone on the board is ill. We do so many booths and lectures, it takes a toll on us. So we need more people who aren't ill to help us. We will always continue to educate, no matter what the cost. We are a very good and caring group.

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Rating: 5 stars  

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

If I had to make changes to this organization, I would...

I wouldn't change a thing.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

MLDA has been the only hope and only place to turn to for anyone with or anyone who knows someone suffering with Lyme. As a mother with all 3 of my children having Lyme Disease times can be hard. It is because of the MLDA and Linda that we given any direction at all on how to help them to get better! My oldest son was very ill and still after 3 years of treatment is still fighting this disease daily. It is all because of Linda and the MLDA that we were able to even know where to start to even treat him. Our family owes the MLDA everything! The health of your family is the most important thing and the information and support that is given and offered by the MLDA is second to none!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

8 people found this review helpful

Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and had test after test ran on my son to come up with nothing over and over again and to watch him get sicker and sicker, to then be put into contact with Linda and MLDA who gave us hope and direction and support! Linda was able to lead us towards the right direction in getting our son's health back on track and finding out what he was struggling with. We owe our son's health to Linda and the MLDA! The knowledge and the support that has been giving to us by the people behind the MLDA has been so important and needed in our time dealing with this disease. Our journey is far from over but I'm not as scared of the out come knowing that we have Linda and the MLDA helping us with every step forward! Our family thanks them for the bottom of our hearts!

I've personally experienced the results of this organization in...

Watching my son's health improve

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-7-01

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Rating: 5 stars  

The MLDA and Linda Lobes saved my son's life! He was very sick and getting sicker by the day and after seeing many doctor's and many tests no one could find what was wrong. Linda took the time to talk to me and help us get some answers, directed us to a Dr that was finally able to test my son and help him. That was almost 2 years ago, and still struggling daily with Lyme and Co Infections, my son is at least doing better.
And because of the help and the knowledge I have learned from the MLDA, I was able to see the signs and get my 5 year old son tested before he got very sick and found out he also has Lyme and now is being treated.
If it wasn't for this group my 9 year old son would be at the point now where he could not function, before we got him treated he was getting to the point where he was unable to walk or think. It was the scariest time of my life. My husband and I owe everything to the MLDA, Linda and this group saved my son's life!

The knowlegde that I have learned from the MLDA has helped me, help other people in need also. I have been able to guide people that were sick with some of the same things and get them help along with being able to teach people who don't know anything about Lyme so they can protect themselves and their families.

I've personally experienced the results of this organization in...

Saving my son's life!

If I had to make changes to this organization, I would...

I wouldn't make any changes other than trying to let everyone know about the MLDA and that when you have hit a road block with the doctor's you feel alone and don't know what is wrong that there are people who have experienced that same things and are there to help and guide you.

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Rating: 5 stars  

4 people found this review helpful

A great organization with friendly hard working people. They really make a different by giving support and helping educate people about lyme disease.

I've personally experienced the results of this organization in...

Yes poeple are given support, education and more options on were to get treatment.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-1-01

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Rating: 5 stars  

6 people found this review helpful

I have been a board member for some time. I initially attended meetings to have access to lyme information to distribute to my support group. Now it is relatively easy to get information on the computer and through Michagan Lyme Support. I've learned of these sites through the MLDA. The MLDA does a valuable service by getting information out to the public about the disease and its treatment. Linda is always available to answer question and to help people find a doctor to treat them. The MLDA is a valuable resource in our state for getting information out to the public, health departments, and so many more. Without the MLDA,lyme disease would still be in the dark ages.

I've personally experienced the results of this organization in...

finding information for myself and for redistribution of information to others.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

9 people found this review helpful

I have been a Board Member for about 3 years now as I was so frustrated to find out a diagnosis for my "multi symptom illness". I had the help of the MLDA to access a doctor after 16 years, there was a possibilty that I had Lyme. I had the bulleye rash in 1983 following a camping trip to Nashville, Indiana. At the time, I worked for 2 Surreons and they sent me to every Dermatologist in Genesee County. From there, i was sent with my dogs to the Vet for the possibility of "ring worm". Our Vet told me that was out of the question and whatever I had, please don't give it to the dogs as he would have no idea how to treat it. The rash finally went away, but for the next 16 years I had severe arthritis pain, plantar faschitis, right hamstring pain, off and on again acute right sciatica and finally migraine headaches. During this time, my family doctor did blood work testing for Lyme 3-4 times with only "iffy" results. Finaally in 1999, 4 bands came back positive, the second time, for Lyme and I was started on antibiotics. I then was put on a waiting list for a Doctor in Saginaw that treated Lyme. After a couple months, I called MLDA, frustrated and crying as I felt I was at the end of my rope. Through the last 10 + years, I have asked the President of MLDA, Linda, many questions that she has always had an answer for. I have never called without receiving a return call. MLDA helped me get in to see the Doctor in Saginaw and has helped me through many crisises in this period and that is why I went to an annual meeting out of curiosity apprx. 4 years ago. One thing lead to another and I became a Board Member. I do the best I can to help educate the public about Lyme and help out on as many educaational projects as I can. At the present time, my Lyme is in the fibromylgia stage and I tire easily along with the constant pain. Going to the monthly Board meetings gives me the support I need to keep sane. Thank you MLDA Sally Lurvey

I've personally experienced the results of this organization in...

As stated above, in moral support, education, and just being there when needed.

What I've enjoyed the most about my experience with this nonprofit is...

education and moral support.

The kinds of staff and volunteers that I met were...

very committed

If this organization had 10 million bucks, it could...

be sure every resident was made aware of the increasing risk of Lyme

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-5-01

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