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95 Reviews
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July 31, 2014

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July 31, 2014

The Michigan Lyme Disease Association has maintained excellence in public education, support, and
advocacy in a very caring and professional way for many years. Education for the public as well as Lyme disease patients, support groups and individual support for patients, interesting and
entertaining annual events to raise funds for the organization, sponsoring conferences, appeals to the state government for decent recognition of Lyme disease as well as education and care - these are only a part of what MLDA does. And the MLDA newsletter and the website are both very carefully organized and information is always thoroughly documented.

As a neighbor, in Ohio, who has spent years trying to do just a few of the same things MLDA does, I really know what it takes to organize and maintain such an organization that makes such a huge difference for people who are suffering. I am in awe of the MLDA.

Ways to make it better...

If I had to make changes to this organization, I would...

Give Linda a Nobel Prize nomination! They should have more cooperation and respect from the state of Michigan. And always, somehow get more people to volunteer on all levels.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

July 30, 2014

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1 previous review
July 25, 2013

I think all these 5 stars speak for themselves! I have never met an organization so kind and so well informed. If you have never suffered with Lyme's or do not know anyone it is a very scary disease... more

July 30, 2014

The Michigan Lyme Disease Assoc. (MLDA) is one of THE most helpful, knowledgeable, and compassionate organizations around. Our stories seem all to familiar. Countless Dr. Visits, years of being told there's not a thing wrong with you as you continue to deteriorate. This organization knows your story all to well. They are able to educate you on different treatments. The best thing... they are working overtime to educate those Doctors who have turned us away one to many times! I am so Blessed to have the MLDA a part of my life in fighting this disease!

Ways to make it better...

If I had to make changes to this organization, I would...

The MLDA needs more publicity and they need to be able to educate our physicians more.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

July 25, 2013

I think all these 5 stars speak for themselves! I have never met an organization so kind and so well informed. If you have never suffered with Lyme's or do not know anyone it is a very scary disease to have. It attacks each person differently and therefore your symptoms may differ from the next person.

MLDA has been a blessing! From the simplest to the most difficult questions they always help in any way they can. It doesn't matter if your a member or not. They want to help everyone have a decent quality of life.

The MLDA far exceeds the 5 stars! Thank you for all your help this past year!

God Bless,

Beth



More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

August 4, 2014

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2 previous reviews - show all
June 12, 2013

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for... more

August 4, 2014

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

June 12, 2013

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't change a thing.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

August 20, 2012

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 10, 2013

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June 10, 2013

This is a fantastic organization. It is very informational and helpful to people with Lyme disease. It is free and it does not ask anything from anybody only to spread the word. It gives you the opportunity to help other people if you want to. I can't say enough good words about it.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

July 30, 2014

more


2 previous reviews - show all
August 20, 2012

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing w... more

July 30, 2014

Michigan Lyme Disease Association has been extremely supportive in our struggle with Lyme. MLDA has also been very helpful with Lyme awareness in our area.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

August 20, 2012

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

June 17, 2010

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the public about this illness, MLDA helped give me the honest information I needed to know about the illness and the support to help my children in their continued journey to wellness. The MLDA is also involved in physician education, which is a necessity regarding Lyme Disease.

The Great!

I've personally experienced the results of this organization in...

gaining the understanding that I am not alone in dealing with my childrens' chronic illness and there are others going through the same challenges I am going through.

More feedback...

If this organization had 10 million bucks, it could...

support public and physician education about the realities of Lyme as well as support research to find successful treatment.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

August 20, 2012

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August 20, 2012

As a person who has suffered with chronic Lyme for over 4 years, I have found the Michigan Lyme Disease Association a wonderful resource...of information, kindness, empathy, and advocacy. In the initial stages of treatment, I was incredibly fearful and the MLDA, and in particular its President, was kind enough to allay my fears and answer my questions. As part of the Yahoo! group, another active member (Khaya) continually monitors the mail and offers tremendous support to the members.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

August 20, 2012

more

August 20, 2012

I have found many good tips from this group of people (The Michigan Lyme association) Since I was diagnosed with Lyme back in March 2009. The sponsors that have pulled this group together have so much information that they offer to help you not only heal but also have a support group for not so good days and you need to find answer's to problems you maybe experiencing. I have met many amazing people with this same illness and I thank the Michigan lyme Asscociation for all the support they have given me. Michele

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

June 19, 2010

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June 19, 2010

I got to know Linda and the Michigan Lyme Disease Association through my friend, who had contracted lyme disease. I have appreciated the awareness and knowledge that has been shared about lyme. Linda gave a lyme disease presentation to my outdoor club several months ago. She shared a wealth of valuable information with us....and really opened our eyes to the terrible effects of the disease! Kudos to all of her neverending efforts!

The Great!

I've personally experienced the results of this organization in...

seeing my friend "beat" lyme.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

August 3, 2014

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1 previous review
June 16, 2010

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are frien... more

August 3, 2014

When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.

Ways to make it better...

If I had to make changes to this organization, I would...

Find a way to get more people involved.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

June 16, 2010

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

The Great!

I've personally experienced the results of this organization in...

My own knowledge and understanding of Lyme Disease has been greatly expanded and I hope this process will continue as I am dealing with Chronic Lyme Disease.

Ways to make it better...

If I had to make changes to this organization, I would...

I believe there are many LD patients like myself who would benefit from joining support groups if they knew about them and could find one that is easily accessible from their home. As MLDA attracts new members, more support groups can be established.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

meeting other people whose lives have been affected by Lyme Disease and learning how they have been dealing with it.

The kinds of staff and volunteers that I met were...

Friendly, helpful, and generous with their time and energy.

If this organization had 10 million bucks, it could...

Provide more education to patients and doctors.

Ways to make it better...

If I had joined sooner.

In my opinion, the biggest challenges facing this organization are...

the general public and many doctors and health boards are unaware of the severity of the Lyme Disease epidemic.

One thing I'd also say is that...

There is still so much to learn.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 15, 2010

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June 15, 2010

I struggled for years with an unknown auto-immune type disease. I kept getting worse. I stumbled upon information about Lyme disease and knew I might be on to something. I contacted the MLDA and was given a list of doctors in my area who could help. I also found out about a local MLDA support group that meets in my area once a month. I have been diagnosed with Lyme and am currently in treatment. I don't know what I would have done without the kind efforts of Linda and Sue. They talked me over a couple of humps and helped me to realize I am not alone in this battle. They give so much to other sufferers of this disease. I can't begin to thank this group enough. I also gain much info from the MLDA group emails. It's still a struggle for me. Someday I hope to be well enough myself to help others through this wonderful organization and to help inform the public about Lyme disease.

The Great!

I've personally experienced the results of this organization in...

gaining back my health with the help of a referred doctor and gaining insight of other's personal stories of their struggle with Lyme disease.

Ways to make it better...

If I had to make changes to this organization, I would...

make none.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I'm still relatively new. I enjoyed the one support group I was able to make.

The kinds of staff and volunteers that I met were...

willing to go over and above to help others.

If this organization had 10 million bucks, it could...

Get the word out about Lyme disease and help prevent and treat it more. Possibly help sponsor conferences.

Ways to make it better...

I could make more meetings.

In my opinion, the biggest challenges facing this organization are...

The lack of public awareness about ticks and Lyme disease and proper treatment.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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