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79 Reviews
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July 25, 2013

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July 25, 2013

I think all these 5 stars speak for themselves! I have never met an organization so kind and so well informed. If you have never suffered with Lyme's or do not know anyone it is a very scary disease to have. It attacks each person differently and therefore your symptoms may differ from the next person.

MLDA has been a blessing! From the simplest to the most difficult questions they always help in any way they can. It doesn't matter if your a member or not. They want to help everyone have a decent quality of life.

The MLDA far exceeds the 5 stars! Thank you for all your help this past year!

God Bless,

Beth



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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

June 12, 2013

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1 previous review
August 20, 2012

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found t... more

June 12, 2013

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't change a thing.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

August 20, 2012

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 10, 2013

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June 10, 2013

This is a fantastic organization. It is very informational and helpful to people with Lyme disease. It is free and it does not ask anything from anybody only to spread the word. It gives you the opportunity to help other people if you want to. I can't say enough good words about it.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

August 20, 2012

more


1 previous review
June 17, 2010

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the p... more

August 20, 2012

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

June 17, 2010

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the public about this illness, MLDA helped give me the honest information I needed to know about the illness and the support to help my children in their continued journey to wellness. The MLDA is also involved in physician education, which is a necessity regarding Lyme Disease.

The Great!

I've personally experienced the results of this organization in...

gaining the understanding that I am not alone in dealing with my childrens' chronic illness and there are others going through the same challenges I am going through.

More feedback...

If this organization had 10 million bucks, it could...

support public and physician education about the realities of Lyme as well as support research to find successful treatment.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

August 20, 2012

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August 20, 2012

As a person who has suffered with chronic Lyme for over 4 years, I have found the Michigan Lyme Disease Association a wonderful resource...of information, kindness, empathy, and advocacy. In the initial stages of treatment, I was incredibly fearful and the MLDA, and in particular its President, was kind enough to allay my fears and answer my questions. As part of the Yahoo! group, another active member (Khaya) continually monitors the mail and offers tremendous support to the members.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

August 20, 2012

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August 20, 2012

I have found many good tips from this group of people (The Michigan Lyme association) Since I was diagnosed with Lyme back in March 2009. The sponsors that have pulled this group together have so much information that they offer to help you not only heal but also have a support group for not so good days and you need to find answer's to problems you maybe experiencing. I have met many amazing people with this same illness and I thank the Michigan lyme Asscociation for all the support they have given me. Michele

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

June 19, 2010

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June 19, 2010

I got to know Linda and the Michigan Lyme Disease Association through my friend, who had contracted lyme disease. I have appreciated the awareness and knowledge that has been shared about lyme. Linda gave a lyme disease presentation to my outdoor club several months ago. She shared a wealth of valuable information with us....and really opened our eyes to the terrible effects of the disease! Kudos to all of her neverending efforts!

The Great!

I've personally experienced the results of this organization in...

seeing my friend "beat" lyme.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

June 16, 2010

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June 16, 2010

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

The Great!

I've personally experienced the results of this organization in...

My own knowledge and understanding of Lyme Disease has been greatly expanded and I hope this process will continue as I am dealing with Chronic Lyme Disease.

Ways to make it better...

If I had to make changes to this organization, I would...

I believe there are many LD patients like myself who would benefit from joining support groups if they knew about them and could find one that is easily accessible from their home. As MLDA attracts new members, more support groups can be established.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

meeting other people whose lives have been affected by Lyme Disease and learning how they have been dealing with it.

The kinds of staff and volunteers that I met were...

Friendly, helpful, and generous with their time and energy.

If this organization had 10 million bucks, it could...

Provide more education to patients and doctors.

Ways to make it better...

If I had joined sooner.

In my opinion, the biggest challenges facing this organization are...

the general public and many doctors and health boards are unaware of the severity of the Lyme Disease epidemic.

One thing I'd also say is that...

There is still so much to learn.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 15, 2010

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June 15, 2010

I struggled for years with an unknown auto-immune type disease. I kept getting worse. I stumbled upon information about Lyme disease and knew I might be on to something. I contacted the MLDA and was given a list of doctors in my area who could help. I also found out about a local MLDA support group that meets in my area once a month. I have been diagnosed with Lyme and am currently in treatment. I don't know what I would have done without the kind efforts of Linda and Sue. They talked me over a couple of humps and helped me to realize I am not alone in this battle. They give so much to other sufferers of this disease. I can't begin to thank this group enough. I also gain much info from the MLDA group emails. It's still a struggle for me. Someday I hope to be well enough myself to help others through this wonderful organization and to help inform the public about Lyme disease.

The Great!

I've personally experienced the results of this organization in...

gaining back my health with the help of a referred doctor and gaining insight of other's personal stories of their struggle with Lyme disease.

Ways to make it better...

If I had to make changes to this organization, I would...

make none.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I'm still relatively new. I enjoyed the one support group I was able to make.

The kinds of staff and volunteers that I met were...

willing to go over and above to help others.

If this organization had 10 million bucks, it could...

Get the word out about Lyme disease and help prevent and treat it more. Possibly help sponsor conferences.

Ways to make it better...

I could make more meetings.

In my opinion, the biggest challenges facing this organization are...

The lack of public awareness about ticks and Lyme disease and proper treatment.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 15, 2010

more

June 15, 2010

In June 2008 I found a small bull's eye rash on my leg. Took a picture of it as I did with the bug bite reactions my kids have had from our own backyard in Canton, MI. I don't remember feeling like I had the flu but a short time later I started have bad pain in my left knee that spread to my right knee, my elbows, and shoulders that would move around and burned. Initially I was told I had a thyroid problem. So I went along with that until I over several months I went through these symptoms: heart palps, not being able to breathe at night and pacing the floor, my brain would scream to shut out the noise, jaw and ear pain, not being able to focus on what people were saying or being able to stay focused on reading, ulcerated uvula, tightening in throat, completely exhausted, twitching/spasms on left side of face, etc. So I began to do some research of my own online about my symptoms and thought maybe it might be lyme disease. That's when I remembered the picture I took of the rash. I remember feeling stupid thinking that it might be lyme disease because I didn't think it could happen in lower Michigan. I was afraid people would think I was a hypochondriac. In my online research I came across the Michigan Lyme Disease Association website where I found contact information. I emailed my digital photo I had of the rash and I think it was only a day or two before Connie Siese replied. I had asked her if she thought this might be from a tick bite and if I should bother getting tested. She was so kind and nonjudgemental in her response back to me and encouraged me to find a LLMD to get tested. Her encouragement helped me overcome my fear of being labeled a hypochondriac and I did get tested. I've been diagnosed and treated for Babesia. Thank you to the MLDA for their encouragement and support through the yahoo chat and facebook too!

The Great!

I've personally experienced the results of this organization in...

encouragement and getting a diagnosis

More feedback...

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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