Michigan Lyme Disease Association

Rating: 4.94 stars   107 reviews

Nonprofit Issues:

Health

Address:

35431 Brush St. Wayne MI 48184 USA

Mission:

Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics:

with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year:

Research in Michigan, Doctor Education, Public Education

Geographic areas served:

State of Michigan

Programs:

Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

2015 Top-Rated Nonprofit
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More Info

1-888-784-5963
www.mlda.org

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Reviews for Michigan Lyme Disease Association

Role: General Member of the Public
Rating: 5 stars  

This organization has been a wealth of information for myself and loved ones whom I am trying to help. I have called members of the MLDA multiple times and they have always been receptive to answering my questions, providing direction to websites to visit or books to read, I cannot say enough good things about the caring demeanor of Linda and others in the MLDA. They have never solicited donations when I have called, rather at every turn they have been completely dedicated to helping and providing information. A true definition of a non-profit

 
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Role: General Member of the Public
Rating: 5 stars  

I do not have Lyme disease but this association has really informed me of the disease and what to look for and even how to educate others on what Lyme disease is. The MLDA has many brouchers and other informative materials. It truly is a great organization.

 
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Role: General Member of the Public
Rating: 5 stars  

MDLA does a great job providing research and information on a disease that is severly misunderstood.

 
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Role: General Member of the Public
Rating: 5 stars  

MDLA does a great job providing research and information on a disease that is severly misunderstood.

 
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Role: General Member of the Public
Rating: 4 stars  

MLDA provides a wealth of information on all things Lyme related. I especially like their interest in homeopathic resources. As I've learned Lyme cannot be treated by conventional medications alone. Linda has been an invaluable resource and all the MLDA members owe her a great deal of gratitude.

 
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Rating: 5 stars  

1 person found this review helpful

The Michigan Lyme Disease Association has maintained excellence in public education, support, and
advocacy in a very caring and professional way for many years. Education for the public as well as Lyme disease patients, support groups and individual support for patients, interesting and entertaining annual events to raise funds for the organization, sponsoring conferences, appeals to the state government for decent recognition of Lyme disease as well as education and care - these are only a part of what MLDA does. And the MLDA newsletter and the website are both very carefully organized and information is always thoroughly documented.

As a neighbor, in Ohio, who has spent years trying to do just a few of the same things MLDA does, I really know what it takes to organize and maintain such an organization that makes such a huge difference for people who are suffering. I am in awe of the MLDA.

If I had to make changes to this organization, I would...

Give Linda a Nobel Prize nomination! They should have more cooperation and respect from the state of Michigan. And always, somehow get more people to volunteer on all levels.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

The Michigan Lyme Disease Assoc. (MLDA) is one of THE most helpful, knowledgeable, and compassionate organizations around. Our stories seem all to familiar. Countless Dr. Visits, years of being told there's not a thing wrong with you as you continue to deteriorate. This organization knows your story all to well. They are able to educate you on different treatments. The best thing... they are working overtime to educate those Doctors who have turned us away one to many times! I am so Blessed to have the MLDA a part of my life in fighting this disease!

If I had to make changes to this organization, I would...

The MLDA needs more publicity and they need to be able to educate our physicians more.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I think all these 5 stars speak for themselves! I have never met an organization so kind and so well informed. If you have never suffered with Lyme's or do not know anyone it is a very scary disease to have. It attacks each person differently and therefore your symptoms may differ from the next person.

MLDA has been a blessing! From the simplest to the most difficult questions they always help in any way they can. It doesn't matter if your a member or not. They want to help everyone have a decent quality of life.

The MLDA far exceeds the 5 stars! Thank you for all your help this past year!

God Bless,

Beth



Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

The MLDA is a wonderful organization with caring and dedicated individuals, who are a great resource for those who need help with anything to do with Lyme Disease and associated confections. We strive to raise awareness through many research campaigns, brochures and much more. All to often we provide support to those in need to many newly diagnosed patients and health professionals seeking additional information. Without the MLDA, many would struggle in knowing where to go for help or information on what Lyme Disease is all about. I'm happy to serve as a board member, in continuing to help educate the public and assist in much of the planning the goes on for the association.

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

If I had to make changes to this organization, I would...

I wouldn't change a thing.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

This is a fantastic organization. It is very informational and helpful to people with Lyme disease. It is free and it does not ask anything from anybody only to spread the word. It gives you the opportunity to help other people if you want to. I can't say enough good words about it.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

1 person found this review helpful

Michigan Lyme Disease Association has been extremely supportive in our struggle with Lyme. MLDA has also been very helpful with Lyme awareness in our area.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the public about this illness, MLDA helped give me the honest information I needed to know about the illness and the support to help my children in their continued journey to wellness. The MLDA is also involved in physician education, which is a necessity regarding Lyme Disease.

I've personally experienced the results of this organization in...

gaining the understanding that I am not alone in dealing with my childrens' chronic illness and there are others going through the same challenges I am going through.

If this organization had 10 million bucks, it could...

support public and physician education about the realities of Lyme as well as support research to find successful treatment.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

 
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