MICHIGAN LYME DISEASE ASSOCIATION

Rating: 4.95 stars   95 reviews

Issues: Health

Location: 35431 Brush St. Wayne MI 48184 USA

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 
Target demographics: with support, education and research on Tick-Borne Diseases.
Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education
Geographic areas served: State of Michigan
Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.
2014 Top-Rated Nonprofit
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EIN 38-2987081
1-888-784-5963
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Community Reviews

Rating: 5 stars  

MLDA has provided my family and I with much needed information about Lyme Disease in Michigan and assisted with finding a Lyme literate physician. When someone else has questions about Lyme, I send them to MLDA.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

When my son was diagnosed with lyme disease 7 years ago I had no idea where to turn. Thankfully I found the MDLA. The president was so helpful in finding a doctor and just general support has been great. We attended a MDLA support group that was active in our area for a while, and again, very helpful people. Always good information, always time to talk. Have referred many people to the group and always everyone is happy with the support they recieve. The leadership goes above and beyond the call of duty! Great origanization!!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

When I have a question, or need to find a specialist who has seen other lyme patients, I can call the Michigan Lyme disease association and they are able to answer my questions or let me know where I may be able to find a dr.
I know of no other group that helps lyme patients like the MLDA.
Many people would suffer needlessly if it was not for the Mlda.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

I belong to a lot of different lyme groups on the net and via mail. The MLDA is one of the best. They work very hard to help others with this disease. They have a great phone support system, web posting site and even have some local support groups. Thanks so much to Linda and all of you who have supported me in the past.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 4 stars  

1 person found this review helpful

There are no doctors from my area who understand how to treat Lyme disease. The infectious disease physicians do not believe chronic Lyme exists. Well for more than 2 years I have had it and now have proof positive with accurate testing. With help from Michigan Lyme Association I found a doctor who knows how to treat Lyme right in Michigan. Without their info I would still be searching...and sicker. I can't thank them enough and finally feel like I am on the road to recovery.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

The Michigan Lyme Disease Association has given me lots of valuable information. It is great to get support from others who are going through similar things as I am.

If I had to make changes to this organization, I would...

Make it so they could contact and inform even more doctors.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

This is a great source for people who have Lyme Disease to get questions answered and have great support. Lyme can be a lonely illness because often you don't feel well enough to get out with others. The group provides the support that I need! I am glad that I don't have to feel alone!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

Michigan Lyme Disease Association has been extremely supportive in our struggle with Lyme. MLDA has also been very helpful with Lyme awareness in our area.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

8 people found this review helpful

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the public about this illness, MLDA helped give me the honest information I needed to know about the illness and the support to help my children in their continued journey to wellness. The MLDA is also involved in physician education, which is a necessity regarding Lyme Disease.

I've personally experienced the results of this organization in...

gaining the understanding that I am not alone in dealing with my childrens' chronic illness and there are others going through the same challenges I am going through.

If this organization had 10 million bucks, it could...

support public and physician education about the realities of Lyme as well as support research to find successful treatment.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

Was this review helpful? 
Rating: 5 stars  

This organization helped me tremendously when I needed information about my illness. I received support I needed such as doctor information, treatment options, support groups and online forums. I have referred several people here as well.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

I am thankful for Michigan Lyme Disease Association for assisting me after being diagnosed with this disease. My doctors didn't understand my illness and MLDA was instrumental in getting me a correct diagnosis and a doctor who could treat me. Don't know where I would be right now without their help!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

10 people found this review helpful

The Michigan Lyme Disease Association is very important to people in Michigan because few people understand this illness. MLDA is a source of valuable information about doctors and also about the illness. I have referred MLDA to many people I know in order for them to get educated and diagnosed and ultimately treated for this disease. MLDA put on a conference last fall that had information for doctors as well as patients. It was a day long seminar with speakers from across the nation that provided excellent information related to testing, research and treatment. I also attend support group meetings and there is an online forum for ongoing information.

I've personally experienced the results of this organization in...

I've found an excellent doctor to treat my illness. I've shared what I've learned with others in my support group and online forum and have learned much from other members of the association. I find out what treatment options are out there.

What I've enjoyed the most about my experience with this nonprofit is...

the wonderful people I have met and the information I have recieved.

The kinds of staff and volunteers that I met were...

very kind, open and willing to help me with whatever I needed.

If this organization had 10 million bucks, it could...

provide funds to help those without insurance get treatment and help those with insurance pay for the many expenses not covered by insurance.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2007-1-01

Was this review helpful? 
Rating: 5 stars  

The MLDA does a great job for the otherwise underserved Lyme Community. They provide support and information for a very difficult disease - one that is often misunderstood, both by the lay person and the medical community. They also participate in much needed research.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

MLDA--where would I have been without you twenty years ago when diagnosed with Lyme? A five star rating is just the start for those who have struggled with this debilitating disease! This organization not only is a wealth of support for Lyme disease victims, but the educational literature, prevention awareness, forums, and conferences have been valuable to the medical profession along with everyone who enjoys the great outdoors in our beautiful state. For some, the journey with this disease is ongoing, and the encouragement and support from the MLDA through support groups, e-mails, on-line support, etc. cannot be surpassed. Thank you, MLDA members, for your labor of love and all that you do. My life will never be the same because of all your encouragement and support over the years. Lyme awareness has come a long way in our state because of your efforts. Sue G

If I had to make changes to this organization, I would...

Encourage more individuals and organizations to become involved. We all know finances are the "key" to more research and education to assist in curing any disease.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

7 people found this review helpful

My teaching profession took a major turn in 1994 when a minute tick, embedded in my chin, was removed. Life changed from that moment on. . .I saw 13 different doctors for various symptoms that changed almost daily, spent days lying on the couch that seemed like an eternity as no professional could diagnose what this "illness" was. The fourteenth doctor tested me for Lyme Disease which had positive results, and the treatments began. Symptoms became much worse than prior with the toxin die offs, etc. Who was out there that I could talk to, not knowing day to day if my life was going to soon be over? After ordering a book from a local bookstore, (nothing abailable in local libraries on Lyme) I discovered a support group about 30 miles from my home. Thanks to the MLDA and this group which was just being started in Michigan, I once again had hope and was encouraged, educated, and uplifted. Going through this valley without support would have been unbearable. Thanks to my good health at this tine, it is time to "give back" and assist the MLDA in educating and supporting those who are newly diagnosed, etc. What a life-line the MLDA has been in our state. The positive comments from hundreds/possibly thousands regarding the well-planned professional conferences, literature available to anyone, test kits, newsletters, etc. have saved many from ever going down the path that I did. MLDA - a ten in my eyes!!!!

I've personally experienced the results of this organization in...

dealing with my own personal illness, along with now my assistance in helping others and doing fundraising for this group.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010-6-01

Was this review helpful? 
Rating: 5 stars  

The Michigan Lyme Disease Association has been a life-saver to me. Having moved back to Michigan two years ago from Virginia (I had to move back home with my parents because I am so ill with the disease), this group has offered support and vital information. Linda Lobes is there every single time you need her, and I have met some wonderful new friends who have become a big part of my life. Thank you Michigan Lyme Disease Association...and keep up the good work for those who are suffering!!!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful?