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86 Reviews
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August 1, 2014

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1 previous review
June 15, 2013

There is no better non profit agency. I have dealt with many over the years and never received the support from it's members or board members. They are full of info that has helped me in more ways tha... more

August 1, 2014

I am a member of the MLDA. I was so appreciative of how much I was able to learn from it's members and especially the board members that I joined the board. I have learned more about Lyme and received so much support from everyone involved in this charity. It is non profit and while so many of the individual board members have Lyme Disease and are therefore often sick, they put a lot of effort into helping others and are a wonderful source of support. They are very involved in all research and extremely knowledgeable in the various treatment options. They advocate on behalf of anyone that needs help. They are very involved in trying to keep the publice aware of what parts of the state of Michigan are at highest risk for places where the disease is showing up the highest. This is not to deter people from going to these parts but so they know to make sure they protect themselves if they are going to be outside in those locations. I can't say thank you enough to the board and all volunteers who are there to listen and help in any way possible.

Ways to make it better...

If I had to make changes to this organization, I would...

There are no changes I can think of as far as this organization goes. The people are knowledgeable and helpful.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

June 15, 2013

There is no better non profit agency. I have dealt with many over the years and never received the support from it's members or board members. They are full of info that has helped me in more ways than I can count. Very informative and always trying to help doctors learn as well. The money is strictly used for Lyme. Everyone and everything done is through volunteers and the President. Without her and the volunteers I would be lost. They have also helped my family learn about Lyme so they better understand what I am going through.

Ways to make it better...

If I had to make changes to this organization, I would...

There is nothing I would change. I just wish there were more ways I could offer support.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

June 11, 2013

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1 previous review
August 25, 2012

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back... more

June 11, 2013

This is a great non profit group that raises awareneness about Lyme Disease in Michigan. I like that 100% raised goes into the program & not into pockets. Mid Mi Lyme has been a god send for myself & my family, we have received valuble information & help. Im looking forward in paying back with helping out more & continuing to raise money for such a worthly cause. The people are friendly, kind & generous in making this a top notch non profit.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

August 25, 2012

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

October 12, 2012

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October 12, 2012

I am very thankfull for the MLDA. It is my only support and resources for lyme disease. Don't know what I would do with out it. It has led me to medical treatment, awareness, and medications. It has helped me with the businesses that support the cause as I have contacted them for things I have needed. Sandy Spencer

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

September 11, 2012

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September 11, 2012

My wife has Lyme disease and is very active in the organization. Thus I am able to see what MLDA does. It is the best source of information and help for people with Lyme disease. It has great guidelines and members. It is a model for other similar organizations to emanate. I am very moved listening to my wife listen and support a phone caller. And the same with fund raising events, they are worthy and self rewarding. If I had Lyme disease I would contact them as soon as I could. I know I would get the help I need.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 21, 2012
1 person found this review helpful

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1 previous review
February 20, 2011

Michigan Lyme Disease Association has organized support groups throughout the state as well as on line that provide Lyme Disease patients, family, and friends with education and support. This has been... more

August 21, 2012
1 person found this review helpful

MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

February 20, 2011

Michigan Lyme Disease Association has organized support groups throughout the state as well as on line that provide Lyme Disease patients, family, and friends with education and support. This has been extremely helpful to me on my journey thru this difficult and devastating disease. I don't know what I'd do without it. Sometimes Lyme is disabling and the online support helps us to not feel so isolated and to be able to share information with each other. I know any monies that are won would go to great use as there is much education needed about Lyme, the fastest growing bacterial infection in America.

The Great!

I've personally experienced the results of this organization in...

Support Groups Onlline Support Groups Educational Conventions Billboard on Highway (Informational) Toll Free Hot Line Educational Literature

Ways to make it better...

If I had to make changes to this organization, I would...

Can't think of a thing.

February 12, 2011

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Review from Guidestar
February 12, 2011

The MLDA is a very important and worthwhile organization for individuals in Michigan. This is the only organization that provides a source of valuable information and education to the public to make them aware of the issues with Lyme disease and other tick borne illnesses. The organization works hard to get the word out to individuals, doctors, nurses, etc by sponsoring seminars, raising funds for research and holding support group meetings. The MLDA also publishes a newsletter that contains valuable information on Lyme treatments and stories of many patients that have Lyme.

The Great!

I've personally experienced the results of this organization in...

My stepdaughter has Lyme and is the president of the MLDA.

Ways to make it better...

If I had to make changes to this organization, I would...

I would like to find a way to get more individuals to help with the organization. It would also be a big help if the medical society recognized Lyme disease.

February 11, 2011

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Review from Guidestar
February 11, 2011

I have found this organization to be above board and always giving of the respect that Lyme Disease patients should receive. They have tirelessly helped these patients in all realms of their needs, with guidance, doctor referrals, pamphlets and even a phone number where more help can be received. Thank you Michigan LDA, you have been a Godsend for those afflicted in your area of the Country.

The Great!

I've personally experienced the results of this organization in...

I have never regretted referring patients to this organization and always knew the patient would be well cared for.

Ways to make it better...

If I had to make changes to this organization, I would...

None

August 20, 2012

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1 previous review
June 19, 2010

Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and ha... more

August 20, 2012

MLDA has been the only hope and only place to turn to for anyone with or anyone who knows someone suffering with Lyme. As a mother with all 3 of my children having Lyme Disease times can be hard. It is because of the MLDA and Linda that we given any direction at all on how to help them to get better! My oldest son was very ill and still after 3 years of treatment is still fighting this disease daily. It is all because of Linda and the MLDA that we were able to even know where to start to even treat him. Our family owes the MLDA everything! The health of your family is the most important thing and the information and support that is given and offered by the MLDA is second to none!

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

June 19, 2010

Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and had test after test ran on my son to come up with nothing over and over again and to watch him get sicker and sicker, to then be put into contact with Linda and MLDA who gave us hope and direction and support! Linda was able to lead us towards the right direction in getting our son's health back on track and finding out what he was struggling with. We owe our son's health to Linda and the MLDA! The knowledge and the support that has been giving to us by the people behind the MLDA has been so important and needed in our time dealing with this disease. Our journey is far from over but I'm not as scared of the out come knowing that we have Linda and the MLDA helping us with every step forward! Our family thanks them for the bottom of our hearts!

The Great!

I've personally experienced the results of this organization in...

Watching my son's health improve

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 17, 2010

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June 17, 2010

I have had Lyme Disease for 14 years, diagnosed for 13. With no help from the medical profession in the Grand Rapids area my parents and I looked to the MLDA for answers and help. The president, Linda, has been a God send to us helping with all of our questions answering phone calls and directing us to appropriate doctors where I finally received help. I wouldn't be where I am now if it wasn't for her and the staff. The MLDA offers so much information for those who are simply concerned or have been diagnosed and struggling. Anytime I have questions I never hesitate to call because the MLDA is the best support you could ask for and has more knowledge than any other group I have worked with. I don't know where I would be with out the MLDA.

The Great!

I've personally experienced the results of this organization in...

conferences, phones calls and support groups.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 30, 2014

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1 previous review
June 16, 2010

My teaching profession took a major turn in 1994 when a minute tick, embedded in my chin, was removed. Life changed from that moment on. . .I saw 13 different doctors for various symptoms that change... more

July 30, 2014

MLDA--where would I have been without you twenty years ago when diagnosed with Lyme? A five star rating is just the start for those who have struggled with this debilitating disease! This organization not only is a wealth of support for Lyme disease victims, but the educational literature, prevention awareness, forums, and conferences have been valuable to the medical profession along with everyone who enjoys the great outdoors in our beautiful state. For some, the journey with this disease is ongoing, and the encouragement and support from the MLDA through support groups, e-mails, on-line support, etc. cannot be surpassed. Thank you, MLDA members, for your labor of love and all that you do. My life will never be the same because of all your encouragement and support over the years. Lyme awareness has come a long way in our state because of your efforts. Sue G

Ways to make it better...

If I had to make changes to this organization, I would...

Encourage more individuals and organizations to become involved. We all know finances are the "key" to more research and education to assist in curing any disease.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2014

June 16, 2010

My teaching profession took a major turn in 1994 when a minute tick, embedded in my chin, was removed. Life changed from that moment on. . .I saw 13 different doctors for various symptoms that changed almost daily, spent days lying on the couch that seemed like an eternity as no professional could diagnose what this "illness" was. The fourteenth doctor tested me for Lyme Disease which had positive results, and the treatments began. Symptoms became much worse than prior with the toxin die offs, etc. Who was out there that I could talk to, not knowing day to day if my life was going to soon be over? After ordering a book from a local bookstore, (nothing abailable in local libraries on Lyme) I discovered a support group about 30 miles from my home. Thanks to the MLDA and this group which was just being started in Michigan, I once again had hope and was encouraged, educated, and uplifted. Going through this valley without support would have been unbearable. Thanks to my good health at this tine, it is time to "give back" and assist the MLDA in educating and supporting those who are newly diagnosed, etc. What a life-line the MLDA has been in our state. The positive comments from hundreds/possibly thousands regarding the well-planned professional conferences, literature available to anyone, test kits, newsletters, etc. have saved many from ever going down the path that I did. MLDA - a ten in my eyes!!!!

The Great!

I've personally experienced the results of this organization in...

dealing with my own personal illness, along with now my assistance in helping others and doing fundraising for this group.

More feedback...

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

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