I had Lyme Disease about 25 years ago and it went into remission. However it came back about 4-5 years ago. In googling it I found the MLDA and allied. The president directed me to a LLMD (which I had no clue what that meant then). They also sent me a lot of information on LD and answered a lot of questions. I was also given a list of names I could contact for support sand eventually started a support group in my area. I wouldn't be here today if it weren't for the MLDA. They supported me at my lowest points and ow I'm able to give back. They also have an e mail support for those that prefer that way as well as many FB groups on Lyme Disease. It's great getting new info and communicate with someone who understands what I'm going through. I will forever be grateful for this non profit organization
I am a member of the MLDA. I was so appreciative of how much I was able to learn from it's members and especially the board members that I joined the board. I have learned more about Lyme and received so much support from everyone involved in this charity. It is non profit and while so many of the individual board members have Lyme Disease and are therefore often sick, they put a lot of effort into helping others and are a wonderful source of support. They are very involved in all research and extremely knowledgeable in the various treatment options. They advocate on behalf of anyone that needs help. They are very involved in trying to keep the publice aware of what parts of the state of Michigan are at highest risk for places where the disease is showing up the highest. This is not to deter people from going to these parts but so they know to make sure they protect themselves if they are going to be outside in those locations. I can't say thank you enough to the board and all volunteers who are there to listen and help in any way possible.
I've had and been disabled with Lyme Disease for 25 yrs. It is a most serious and complicated disease. MLDA is vital to education, fundraising, outreach, in MI. The president, Linda Lobes, is an extremely devoted worker who has been a much need resource and support for myself as well as many other patients, physicians and others in MI. I can't say enough positive things about this organization.
MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!
The MLDA is a wonderful organization with caring and dedicated individuals, who are a great resource for those who need help with anything to do with Lyme Disease and associated confections. We strive to raise awareness through many research campaigns, brochures and much more. All to often we provide support to those in need to many newly diagnosed patients and health professionals seeking additional information. Without the MLDA, many would struggle in knowing where to go for help or information on what Lyme Disease is all about. I'm happy to serve as a board member, in continuing to help educate the public and assist in much of the planning the goes on for the association.
I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.
When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.
I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.
This is a great non profit group that raises awareneness about Lyme Disease in Michigan. I like that 100% raised goes into the program & not into pockets. Mid Mi Lyme has been a god send for myself & my family, we have received valuble information & help. Im looking forward in paying back with helping out more & continuing to raise money for such a worthly cause. The people are friendly, kind & generous in making this a top notch non profit.
Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle
I am very thankfull for the MLDA. It is my only support and resources for lyme disease. Don't know what I would do with out it. It has led me to medical treatment, awareness, and medications. It has helped me with the businesses that support the cause as I have contacted them for things I have needed. Sandy Spencer
My wife has Lyme disease and is very active in the organization. Thus I am able to see what MLDA does. It is the best source of information and help for people with Lyme disease. It has great guidelines and members. It is a model for other similar organizations to emanate. I am very moved listening to my wife listen and support a phone caller. And the same with fund raising events, they are worthy and self rewarding. If I had Lyme disease I would contact them as soon as I could. I know I would get the help I need.
MLDA has been the only hope and only place to turn to for anyone with or anyone who knows someone suffering with Lyme. As a mother with all 3 of my children having Lyme Disease times can be hard. It is because of the MLDA and Linda that we given any direction at all on how to help them to get better! My oldest son was very ill and still after 3 years of treatment is still fighting this disease daily. It is all because of Linda and the MLDA that we were able to even know where to start to even treat him. Our family owes the MLDA everything! The health of your family is the most important thing and the information and support that is given and offered by the MLDA is second to none!
Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and had test after test ran on my son to come up with nothing over and over again and to watch him get sicker and sicker, to then be put into contact with Linda and MLDA who gave us hope and direction and support! Linda was able to lead us towards the right direction in getting our son's health back on track and finding out what he was struggling with. We owe our son's health to Linda and the MLDA! The knowledge and the support that has been giving to us by the people behind the MLDA has been so important and needed in our time dealing with this disease. Our journey is far from over but I'm not as scared of the out come knowing that we have Linda and the MLDA helping us with every step forward! Our family thanks them for the bottom of our hearts!
The MLDA is a very important and worthwhile organization for individuals in Michigan. This is the only organization that provides a source of valuable information and education to the public to make them aware of the issues with Lyme disease and other tick borne illnesses. The organization works hard to get the word out to individuals, doctors, nurses, etc by sponsoring seminars, raising funds for research and holding support group meetings. The MLDA also publishes a newsletter that contains valuable information on Lyme treatments and stories of many patients that have Lyme.
Review from Guidestar
I have found this organization to be above board and always giving of the respect that Lyme Disease patients should receive. They have tirelessly helped these patients in all realms of their needs, with guidance, doctor referrals, pamphlets and even a phone number where more help can be received. Thank you Michigan LDA, you have been a Godsend for those afflicted in your area of the Country.
Review from Guidestar