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June 19, 2010

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June 19, 2010

I got to know Linda and the Michigan Lyme Disease Association through my friend, who had contracted lyme disease. I have appreciated the awareness and knowledge that has been shared about lyme. Linda gave a lyme disease presentation to my outdoor club several months ago. She shared a wealth of valuable information with us....and really opened our eyes to the terrible effects of the disease! Kudos to all of her neverending efforts!

The Great!

I've personally experienced the results of this organization in...

seeing my friend "beat" lyme.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

June 18, 2010

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June 18, 2010

I have been a board member for some time. I initially attended meetings to have access to lyme information to distribute to my support group. Now it is relatively easy to get information on the computer and through Michagan Lyme Support. I've learned of these sites through the MLDA. The MLDA does a valuable service by getting information out to the public about the disease and its treatment. Linda is always available to answer question and to help people find a doctor to treat them. The MLDA is a valuable resource in our state for getting information out to the public, health departments, and so many more. Without the MLDA,lyme disease would still be in the dark ages.

The Great!

I've personally experienced the results of this organization in...

finding information for myself and for redistribution of information to others.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 18, 2010

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June 18, 2010

6-17-10 I am a native of Rockford Michigan. I became very ill in 2003, I had seen nine differnt Doctors ranging from Cardioligist,Neuroligist,Uroligist and on and on for a period of a year and a half. I was in excellent health before then. No doctor could figure out what was wrong with me. I became very depressed and ready to take my own life. In 2005 I was told of Lymes Disease. That is when I heard about Michigan Lyme Disease Association. I called and talked with Linda Lobes, she saved my life. Linda and her staff are a GOD SEND. I would not be here today without there support. Thank You, Jim and Kelly

The Great!

I've personally experienced the results of this organization in...

Directed me to a Lyme Literate Doctor. Gave me knowledge about the disease,and how to care for myself with proper nuitrtion. Got me involed with a support group.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2009

June 17, 2010

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June 17, 2010

I have had Lyme Disease for 14 years, diagnosed for 13. With no help from the medical profession in the Grand Rapids area my parents and I looked to the MLDA for answers and help. The president, Linda, has been a God send to us helping with all of our questions answering phone calls and directing us to appropriate doctors where I finally received help. I wouldn't be where I am now if it wasn't for her and the staff. The MLDA offers so much information for those who are simply concerned or have been diagnosed and struggling. Anytime I have questions I never hesitate to call because the MLDA is the best support you could ask for and has more knowledge than any other group I have worked with. I don't know where I would be with out the MLDA.

The Great!

I've personally experienced the results of this organization in...

conferences, phones calls and support groups.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 17, 2010

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June 17, 2010

I was diagnosed in 2004 with Lyme disease. I had been misdiagnosed for over a year with Chronic Fatigue Syndrome. Completely debilitated, I called MLDA. I was given excellent support and referrals to area doctors. MLDA gave me hope and direction when I had neither. Lynda Lobes and the board continue to serve the Lyme Disease patients in MI by offering conferences, support groups and phone support.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

June 17, 2010

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June 17, 2010

I have found the MLDA to be an excellent resource to myself as a Lyme Disease victim. I have found the conferences ecspecially educational, and appreciate the fact that lay persons as well as physicians, researchers, and other professionals are highlighted, and invited. Occasionally, I am able to attend support groups which are invaluable to my mental health, as it is a chance for us to be among our peers, and encourage each other. The MLDA is deserving of any recognition it receives.

The Great!

I've personally experienced the results of this organization in...

meeting new friends who know what I'm going thru.

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If this organization had 10 million bucks, it could...

cure lyme disease, one the fastest growing bacterial infections in the world!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

June 16, 2010

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June 16, 2010

I have been a Board Member for about 3 years now as I was so frustrated to find out a diagnosis for my "multi symptom illness". I had the help of the MLDA to access a doctor after 16 years, there was a possibilty that I had Lyme. I had the bulleye rash in 1983 following a camping trip to Nashville, Indiana. At the time, I worked for 2 Surreons and they sent me to every Dermatologist in Genesee County. From there, i was sent with my dogs to the Vet for the possibility of "ring worm". Our Vet told me that was out of the question and whatever I had, please don't give it to the dogs as he would have no idea how to treat it. The rash finally went away, but for the next 16 years I had severe arthritis pain, plantar faschitis, right hamstring pain, off and on again acute right sciatica and finally migraine headaches. During this time, my family doctor did blood work testing for Lyme 3-4 times with only "iffy" results. Finaally in 1999, 4 bands came back positive, the second time, for Lyme and I was started on antibiotics. I then was put on a waiting list for a Doctor in Saginaw that treated Lyme. After a couple months, I called MLDA, frustrated and crying as I felt I was at the end of my rope. Through the last 10 + years, I have asked the President of MLDA, Linda, many questions that she has always had an answer for. I have never called without receiving a return call. MLDA helped me get in to see the Doctor in Saginaw and has helped me through many crisises in this period and that is why I went to an annual meeting out of curiosity apprx. 4 years ago. One thing lead to another and I became a Board Member. I do the best I can to help educate the public about Lyme and help out on as many educaational projects as I can. At the present time, my Lyme is in the fibromylgia stage and I tire easily along with the constant pain. Going to the monthly Board meetings gives me the support I need to keep sane. Thank you MLDA Sally Lurvey

The Great!

I've personally experienced the results of this organization in...

As stated above, in moral support, education, and just being there when needed.

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What I've enjoyed the most about my experience with this nonprofit is...

education and moral support.

The kinds of staff and volunteers that I met were...

very committed

If this organization had 10 million bucks, it could...

be sure every resident was made aware of the increasing risk of Lyme

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 16, 2010

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June 16, 2010

I am From michigan and prior to moving to Florida 9 years ago, I was very involved in the works of the MLDA. This group single handed has done what ever they could to get the word out about Lyme disease in Michigan; They help the individual who has the disease, they work tirelessly in educating the public about the dangers of Tick born illness. The members of this group do what every they can do raise funds to be able to educate others about the dangers of Tick Born Illness. Without the MLDA Michigan would be cluless about the dangers of Lyme Disease and Tick Born Illness. Carol Fisch, Adjunct Professor Emeritus, Microbiology, Immunology, Parasitology, Stealth Pathogen Research, Advocate, Activist and Victim.

Photos

The Great!

I've personally experienced the results of this organization in...

I have received help from This organization and in return gave others help; This is what one does when their whole life has been turned upside down and they have been helped. The MLDA continues year after year to provide support & education to Michigan.

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What I've enjoyed the most about my experience with this nonprofit is...

Help, compassion and comradery

The kinds of staff and volunteers that I met were...

compashionate and helpfull

If this organization had 10 million bucks, it could...

Be A BIGGER part of Lyme disease Prevention in The State Of Michigan

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 16, 2010

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June 16, 2010

I was bit by a tick while mowing my lawn in the summer of 2006. I became very ill, very quickly. Even though I had all the symptoms of Lyme disease, my family doctor was reluctant to treat me for it because the rash was not a typical bullseye. I was able to contact the Michigan Lyme Disease at it's toll free number and I spoke with the president, Linda, who gave me the name of a doctor who specialized in the treatment of Lyme. The doctor and support groups formed by others with Lyme disease in my area helped me to get through 3 very long years of recovery. Without them, I would still be very ill and very depressed. I am feeling better now and am grateful for all that was done for me. I now volunteer for The Michigan Lyme Disease Association when I can. Thank you MLDA and everyone involved!

The Great!

I've personally experienced the results of this organization in...

my personal life and through volunteering.

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What I've enjoyed the most about my experience with this nonprofit is...

they are knowledgable, friendly, helpful, they do not judge and they truly care.

The kinds of staff and volunteers that I met were...

all excellent, friendly and knowledgable.

If this organization had 10 million bucks, it could...

Hopefully find treatment or a cure for Lyme disease. At the least it would be able to spread the word properly about how easy it is to be affected by this disease. It can happen to anyone.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 15, 2010

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June 15, 2010

I struggled for years with an unknown auto-immune type disease. I kept getting worse. I stumbled upon information about Lyme disease and knew I might be on to something. I contacted the MLDA and was given a list of doctors in my area who could help. I also found out about a local MLDA support group that meets in my area once a month. I have been diagnosed with Lyme and am currently in treatment. I don't know what I would have done without the kind efforts of Linda and Sue. They talked me over a couple of humps and helped me to realize I am not alone in this battle. They give so much to other sufferers of this disease. I can't begin to thank this group enough. I also gain much info from the MLDA group emails. It's still a struggle for me. Someday I hope to be well enough myself to help others through this wonderful organization and to help inform the public about Lyme disease.

The Great!

I've personally experienced the results of this organization in...

gaining back my health with the help of a referred doctor and gaining insight of other's personal stories of their struggle with Lyme disease.

Ways to make it better...

If I had to make changes to this organization, I would...

make none.

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What I've enjoyed the most about my experience with this nonprofit is...

I'm still relatively new. I enjoyed the one support group I was able to make.

The kinds of staff and volunteers that I met were...

willing to go over and above to help others.

If this organization had 10 million bucks, it could...

Get the word out about Lyme disease and help prevent and treat it more. Possibly help sponsor conferences.

Ways to make it better...

I could make more meetings.

In my opinion, the biggest challenges facing this organization are...

The lack of public awareness about ticks and Lyme disease and proper treatment.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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