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79 Reviews
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August 22, 2012

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August 22, 2012

The MLDA for as long as they have been a 501c3 has been active in helping others through education and awareness. They spend countless hours reaching out to others with education and awareness of the devistation that can come with Tick and other Vector born illness. They work very hard to raise the funds to be able to carry out this much needed work. I hope they will be able to continue their work for as long as their work is needed. That need will continue until the unforseeable future. Carol Fisch, Adjunct Professor Emeritus, Microbiology background...Advocate, Activist and Victim

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How does this organization compare with others in the same sector?

Quite well

How much of an impact do you think this organization has?

A lot

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

August 21, 2012
1 person found this review helpful

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1 previous review
February 20, 2011

Michigan Lyme Disease Association has organized support groups throughout the state as well as on line that provide Lyme Disease patients, family, and friends with education and support. This has been... more

August 21, 2012
1 person found this review helpful

MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

February 20, 2011

Michigan Lyme Disease Association has organized support groups throughout the state as well as on line that provide Lyme Disease patients, family, and friends with education and support. This has been extremely helpful to me on my journey thru this difficult and devastating disease. I don't know what I'd do without it. Sometimes Lyme is disabling and the online support helps us to not feel so isolated and to be able to share information with each other. I know any monies that are won would go to great use as there is much education needed about Lyme, the fastest growing bacterial infection in America.

The Great!

I've personally experienced the results of this organization in...

Support Groups Onlline Support Groups Educational Conventions Billboard on Highway (Informational) Toll Free Hot Line Educational Literature

Ways to make it better...

If I had to make changes to this organization, I would...

Can't think of a thing.

August 21, 2012

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August 21, 2012

If it hadn't been for the MLDA, I would never have gotten the information I needed or a list of good doctors to go to for treatment of my mine or my son's Lyme Disease. I was also able to give out helpful information to family members as well thanks to the help of the wonderful people there. I am so appreciative of all their support, information and helpfulness. Thank you, MLDA!!!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

August 21, 2012

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August 21, 2012

The Michigan Lyme Disease Association has proved to be a beacon of hope for me and my family. I was diagnosed with Lyme disease and associated co-infections in May 2010. Along with the diagnosis came confusion, controversy with my doctor and complex treatment regimens. I found Michigan Lyme Disease Association (MLDA) through a website search and immediately joined my community's chapter. My family members brought me and attended the meetings as well. It was immediately apparent that I was among caring, compassionate and extremely knowledgeable people, specifically MLDA's president and our chapter's facilitator. Becoming a member of the organization has had a profound impact on my life, both physically and emotionally. The president's accessibility is beyond impressive as I feel comfortable calling her any time I need guidance in how to traverse through this world with Lyme disease. MLDA's positive impact reaches beyond those of us with Lyme disease; its mission encompasses awareness of this debilitating disease, de-mystifying misconceptions and involving Michigan's doctors in training to become Lyme literate. Endorsing the MIchigan Lyme Disease Association will help ensure that the residents of Michigan have access of cutting-edge research and daily living support. My family and I LOVE MLDA!

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

August 20, 2012

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1 previous review
June 19, 2010

Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and ha... more

August 20, 2012

MLDA has been the only hope and only place to turn to for anyone with or anyone who knows someone suffering with Lyme. As a mother with all 3 of my children having Lyme Disease times can be hard. It is because of the MLDA and Linda that we given any direction at all on how to help them to get better! My oldest son was very ill and still after 3 years of treatment is still fighting this disease daily. It is all because of Linda and the MLDA that we were able to even know where to start to even treat him. Our family owes the MLDA everything! The health of your family is the most important thing and the information and support that is given and offered by the MLDA is second to none!

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

June 19, 2010

Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and had test after test ran on my son to come up with nothing over and over again and to watch him get sicker and sicker, to then be put into contact with Linda and MLDA who gave us hope and direction and support! Linda was able to lead us towards the right direction in getting our son's health back on track and finding out what he was struggling with. We owe our son's health to Linda and the MLDA! The knowledge and the support that has been giving to us by the people behind the MLDA has been so important and needed in our time dealing with this disease. Our journey is far from over but I'm not as scared of the out come knowing that we have Linda and the MLDA helping us with every step forward! Our family thanks them for the bottom of our hearts!

The Great!

I've personally experienced the results of this organization in...

Watching my son's health improve

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

August 20, 2012

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1 previous review
June 17, 2010

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the p... more

August 20, 2012

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

June 17, 2010

As a parent of three children with Lyme Disease, I was at a complete loss of how to deal with this all encompassing non-understood illness. With the mis-information that is generally put out to the public about this illness, MLDA helped give me the honest information I needed to know about the illness and the support to help my children in their continued journey to wellness. The MLDA is also involved in physician education, which is a necessity regarding Lyme Disease.

The Great!

I've personally experienced the results of this organization in...

gaining the understanding that I am not alone in dealing with my childrens' chronic illness and there are others going through the same challenges I am going through.

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If this organization had 10 million bucks, it could...

support public and physician education about the realities of Lyme as well as support research to find successful treatment.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

August 20, 2012

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August 20, 2012

As a person who has suffered with chronic Lyme for over 4 years, I have found the Michigan Lyme Disease Association a wonderful resource...of information, kindness, empathy, and advocacy. In the initial stages of treatment, I was incredibly fearful and the MLDA, and in particular its President, was kind enough to allay my fears and answer my questions. As part of the Yahoo! group, another active member (Khaya) continually monitors the mail and offers tremendous support to the members.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

August 20, 2012

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August 20, 2012

I have found many good tips from this group of people (The Michigan Lyme association) Since I was diagnosed with Lyme back in March 2009. The sponsors that have pulled this group together have so much information that they offer to help you not only heal but also have a support group for not so good days and you need to find answer's to problems you maybe experiencing. I have met many amazing people with this same illness and I thank the Michigan lyme Asscociation for all the support they have given me. Michele

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

August 20, 2012

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August 20, 2012

I found out I had Lyme in May this year. I was directed to call the MLAD. I believe I spoke with Linda, the president of MLDA. She was beyond an amazing help. I was very sick and scared at the time and she was very comforting and supportive. On my own I was unable to find a doctor with anyreal first hand knowledge of lyme. Linda found me a doctor and even made the appointment for me. She also called back later to check on me. I can truly say I don't know where I would be today without the help if this organization. I am incredibly grateful for all their help.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

February 28, 2011
1 person found this review helpful

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February 28, 2011
1 person found this review helpful

To: GUIDESTAR
From: Judith Weeg, President and Tracie Schissel VP LDUC

The Lyme Disease United Coalition would like to nominate our sister group, Michigan Lyme Disease Association for your $5000 grant/prize in your 2011 GUIDESTAR-KIMBIA nonprofit giveaway. The leader of the MLDA is
Linda Lobes, one of the hardest working and most organized leaders in organizations in the U.S. She has numerous Lyme disease chapters in Michigan, and all are running in concise, but caring order. She has had several events, throughout the years, and works well in educating the public regarding Lyme disease (Ld) and involving governmental agencies in coming on-board to define the epidemic in Michigan.

We are honored to know Linda Lobes and Michigan LDA. We nominate, highly, MLDA for this prize.

The Great!

I've personally experienced the results of this organization in...

This organization is a very caring support group

Ways to make it better...

If I had to make changes to this organization, I would...

None

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