MICHIGAN LYME DISEASE ASSOCIATION
Invite reviews
Invite friends and colleagues to share their experiences with this nonprofit
August 20, 2012
I have found many good tips from this group of people (The Michigan Lyme association) Since I was diagnosed with Lyme back in March 2009. The sponsors that have pulled this group together have so much information that they offer to help you not only heal but also have a support group for not so good days and you need to find answer's to problems you maybe experiencing. I have met many amazing people with this same illness and I thank the Michigan lyme Asscociation for all the support they have given me. Michele
More feedback...
Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
August 20, 2012
I found out I had Lyme in May this year. I was directed to call the MLAD. I believe I spoke with Linda, the president of MLDA. She was beyond an amazing help. I was very sick and scared at the time and she was very comforting and supportive. On my own I was unable to find a doctor with anyreal first hand knowledge of lyme. Linda found me a doctor and even made the appointment for me. She also called back later to check on me. I can truly say I don't know where I would be today without the help if this organization. I am incredibly grateful for all their help.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
February 28, 2011
1 person found this review helpful
To: GUIDESTAR
From: Judith Weeg, President and Tracie Schissel VP LDUC
The Lyme Disease United Coalition would like to nominate our sister group, Michigan Lyme Disease Association for your $5000 grant/prize in your 2011 GUIDESTAR-KIMBIA nonprofit giveaway. The leader of the MLDA is Linda Lobes, one of the hardest working and most organized leaders in organizations in the U.S. She has numerous Lyme disease chapters in Michigan, and all are running in concise, but caring order. She has had several events, throughout the years, and works well in educating the public regarding Lyme disease (Ld) and involving governmental agencies in coming on-board to define the epidemic in Michigan.
We are honored to know Linda Lobes and Michigan LDA. We nominate, highly, MLDA for this prize.
The Great!
I've personally experienced the results of this organization in...
This organization is a very caring support group
Ways to make it better...
If I had to make changes to this organization, I would...
None
February 25, 2011
Michigan Lyme disease Association has helped me in many ways, from helping me find a good doctor to educating me about Lyme through support groups. The groups also provide social connection and support, both in and outside the regular meetings.
They also raise awareness of Lyme disease in the community and state.
I would feel so alone if I didn't have this group.
Thank you.
Linda Lloyd
The Great!
I've personally experienced the results of this organization in...
going to support groups
Ways to make it better...
If I had to make changes to this organization, I would...
find ways to thank the people who give their time to make it work.
February 25, 2011
When I got bit in 1993, there was almost no help from the medical community. I was so sick, most days I didn't know who I was or where I lived. The MLDA helped me in so many ways. When attending support group meetings, then board meetings I found out that they were the only ones interested in getting information to people. iI is hard to function and find information when your brain is swollen. If it wasn't for them, who gave me information to take to my doctor, I am sure I would probably be in a nursing home intead of now being a volunteer and "passing it forward" This is a great organization.
The Great!
I've personally experienced the results of this organization in...
Yes, because there wasn't information hardly anywhere, and they compiled it for us to take to our doctors. This was life saving for me. As a board member I see the thousands of pieces of information sent out every year and hope that we are educating the public, and people can get treatment early and maybe avoid a long term illness.
Ways to make it better...
If I had to make changes to this organization, I would...
Help them with fundraising and getting more volunteers. Almost everyone on the board is ill. We do so many booths and lectures, it takes a toll on us. So we need more people who aren't ill to help us. We will always continue to educate, no matter what the cost. We are a very good and caring group.
February 25, 2011
The MLDA and Linda Lobes saved my son's life! He was very sick and getting sicker by the day and after seeing many doctor's and many tests no one could find what was wrong. Linda took the time to talk to me and help us get some answers, directed us to a Dr that was finally able to test my son and help him. That was almost 2 years ago, and still struggling daily with Lyme and Co Infections, my son is at least doing better.
And because of the help and the knowledge I have learned from the MLDA, I was able to see the signs and get my 5 year old son tested before he got very sick and found out he also has Lyme and now is being treated.
If it wasn't for this group my 9 year old son would be at the point now where he could not function, before we got him treated he was getting to the point where he was unable to walk or think. It was the scariest time of my life. My husband and I owe everything to the MLDA, Linda and this group saved my son's life!
The knowlegde that I have learned from the MLDA has helped me, help other people in need also. I have been able to guide people that were sick with some of the same things and get them help along with being able to teach people who don't know anything about Lyme so they can protect themselves and their families.
The Great!
I've personally experienced the results of this organization in...
Saving my son's life!
Ways to make it better...
If I had to make changes to this organization, I would...
I wouldn't make any changes other than trying to let everyone know about the MLDA and that when you have hit a road block with the doctor's you feel alone and don't know what is wrong that there are people who have experienced that same things and are there to help and guide you.
February 25, 2011
I was recently diagnosed after many years and many doctors. Linda Purdy was instrumental in guiding me through the web of choices to make, offering her wisdom and experience. She was positive and supportive and really helped in my decisions regarding the treatment I ultimately chose.
The Great!
I've personally experienced the results of this organization in...
Speaking with Linda Purdy and subscribing to online support group.
Ways to make it better...
If I had to make changes to this organization, I would...
Find a location for East side spupport group.
February 16, 2011
When I was first diagnosed with Lyme Disease, I wasn't sure where to go for treatment or anything about the disease. MLDA has been so wonderful -- they helped me find a doctor who fit my needs, they helped me find treatment for my son when I found out he also has Lyme Disease, they offered support, and much education. I don't know what I would do without them!
The Great!
I've personally experienced the results of this organization in...
many ways, through treatment, and just the support I needed.
Ways to make it better...
If I had to make changes to this organization, I would...
encourage them to offer more conferences -- I loved it!
February 16, 2011
When my wife first had Lyme Disease she had many questions and needed help. At that time, especially, there were not many people or physicians knowledgeable about her chronic illness.
This organization has provided her with a monthy support group, newsletters and an 800# she can call anytime with questions. It has also allowed her to be involved in fundraising and attend educational workshops.
The Great!
I've personally experienced the results of this organization in...
seeing my wife thrive in the Lyme Support Groups and attending their educational workshops. I've benefited personally from their educational materials. Whenever my wife needs help they are always available, whether it's a reference for a physician or a general question or emotional help.
Ways to make it better...
If I had to make changes to this organization, I would...
none that I can see
February 16, 2011
I greatly appreciate all the information and support this organization has given me and my family. The information provided by MLDA has helped us in making the important decisions for our care, which has resulted in us returning to our normal routine.
The Great!
I've personally experienced the results of this organization in...
I was able to get what I needed over a period of a few days.
Ways to make it better...
If I had to make changes to this organization, I would...
I would make no changes.
Filter by reviewer role:
- Volunteer12
- Client Served36
- Expert4
- Public9
- Board Member6
- Donor1
- Advisor0
Support This Nonprofit
Help this nonprofit get more reviews
5 tips for getting reviews