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cathy-schroeder - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

cathy-schroeder

April 5, 2013

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1 previous review
June 9, 2010

The Michigan Lyme Disease Aasociation has helped me in a number of ways. I was diagnosed with chronic Lyme disease after suffering for over a year with incorrect diagnoses. Feeling overwhelmed by th... more

April 5, 2013

The Michigan Lyme Disease Association is committed to educating the community at large, and to supporting, and assisting those who are afflicted by the tick-borne illness, Lyme disease. Its president, Linda Purdy Lopoes, is knowledgeable, kind, and always available to help. Through the MLDA, I have become an informed patient. I have also found a group of very kind members who are ready to lend a helping hand, an eager ear, or a shoulder on which to cry. Annual fundraisers help defer some of the costs of meeting its goals. Monthly support group meetings are open to anyone who wants to attend. Newsletters are sent out once or twice a year. There is also a Yahoo! support group. Informational booths are set up by the MLDA at various events throughout the year (such as dog shows). The MLDA also sends out literature to medical professionals and participates in educational conferences so as to better inform doctors, nurses, etc on how to diagnose and treat Lyme disease.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 9, 2010

The Michigan Lyme Disease Aasociation has helped me in a number of ways. I was diagnosed with chronic Lyme disease after suffering for over a year with incorrect diagnoses. Feeling overwhelmed by the diagnosis and prognosis, I turned to the Michigan Lyme Disease Association. Not only is it a valuable resource when it comes to understanding Lyme disease and its co-infections, but it provides up-to-date news blasts about research and treatment. The on-line Yahoo! group provides an easy way to connect with others who suffer in the same way that I do. Members of the Yahoo! group share their experiences, their treatment protocols, their prayers, and emotional support. Lyme disease is insidious and scary. The Michigan Lyme Disease Association helps to de-mystify this horrendous affliction. The MLDA also organizes informational forums and area support group meetings. At these meetings, those who suffer from Lyme are able to listen to experts on treatment, nutrition, lifestyle, etc. and are also given time to share. Life is tough when one has Lyme disease. MLDA makes it easier to live with the challenges a Lyme sufferer faces.

The Great!

I've personally experienced the results of this organization in...

procuring a referral to a Lyme-literate physician, in gaining an understanding of Lyme disease and its co-infections, and in receiving caring emotional support as I face the challenge of Lyme and its treatment.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

free.spirit0508 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

free.spirit0508

October 12, 2012

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October 12, 2012

I am very thankfull for the MLDA. It is my only support and resources for lyme disease. Don't know what I would do with out it. It has led me to medical treatment, awareness, and medications. It has helped me with the businesses that support the cause as I have contacted them for things I have needed. Sandy Spencer

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Edward L - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Edward L

September 11, 2012

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September 11, 2012

My wife has Lyme disease and is very active in the organization. Thus I am able to see what MLDA does. It is the best source of information and help for people with Lyme disease. It has great guidelines and members. It is a model for other similar organizations to emanate. I am very moved listening to my wife listen and support a phone caller. And the same with fund raising events, they are worthy and self rewarding. If I had Lyme disease I would contact them as soon as I could. I know I would get the help I need.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

thepearl - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

thepearl

September 9, 2012

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1 previous review
June 21, 2010

I don't know where I'd be today if it wasn't for the MLDA. I was going through the loop of doctors to find out what was happening to me, because I felt, literally, like every system in my body was go... more

September 9, 2012

This group is absolutely fabulous! I don't know how I would have made it without their help. Linda helped me find a doctor, one of the support group leaders was up late with me on the phone one night until the wee hours of the morning, and they are terrific whenever you have a question or need a hand!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 21, 2010

I don't know where I'd be today if it wasn't for the MLDA. I was going through the loop of doctors to find out what was happening to me, because I felt, literally, like every system in my body was going crazy all at the same time. I was getting test after test, but nobody could find anything wrong. I'd even been told it "couldn't be lyme because we don't have that in Michigan...". (Not only not true, but hey, it is possible that people do camp/hike OUTSIDE of Michigan, which was utterly dismissed.) They were so very helpful in helping me find a doctor to see if lyme disease was the cause of my problems, and so very kind in just listening to me. I was having a very bad evening one day, feeling really very, very bad, and one of the ladies talked to me at 10 p.m. for about an hour and a half until I started to feel better. In addition, they always call you back, which isn't something I can say for some other non-profits I've tried to volunteer for. Things are MUCH better now, and I know if it wasn't for this amazing group of people I'd still be getting bounced from doctor to doctor and getting the royal run-around.

The Great!

I've personally experienced the results of this organization in...

See review

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Charlotte15 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Charlotte15

September 8, 2012

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September 8, 2012

This organization has been everything to me. They have helped me move trough life with this horrible lyme disease. They helped me find a doctor when i was too sick to do it myself. They've helped educate me on prevention, and what to expect with my health for the remainder of my life. Their educational booths are better every year and i have helped with them now that i feel well enough. I have contact with their online support group every day. This organization is the best!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

ilovenonprofits2012 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

ilovenonprofits2012

August 27, 2012

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August 27, 2012

MLDA has been instrumental in helping so many people in Michigan. MLDA is effectively educating the medical practioners and public about Lyme Disease. Many Doctors are now recognizing the symptoms and providing the proper treatment. With more funding the MLDA can continue the great work it started. My wife had Lyme disease for years before being properly diagnosed and treated. The earlier it is diagnosed the less lasting effects on various parts of the body. Thank you for helping MLDA maintain its status.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Michelle80 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Michelle80

August 25, 2012

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August 25, 2012

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

2007robbie - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

2007robbie

August 25, 2012

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August 25, 2012

I belong to a lot of different lyme groups on the net and via mail. The MLDA is one of the best. They work very hard to help others with this disease. They have a great phone support system, web posting site and even have some local support groups. Thanks so much to Linda and all of you who have supported me in the past.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Kasablanca - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Kasablanca

August 25, 2012

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August 25, 2012

We came here in MI no less than a year from Asia and my daughter had an unusual rash from an unknown insect bite. I've heard about this association and since then, it greatly help us determine the cause and the treatment that we will be undertaking. We got pamphlets ad things related to lyme so it could be prevented if we have it and the organization extends help to find the good doctor who knows how to treat the condition. It is truly a life- saving, tender- loving organIzation that i hope would exists for a long time. Thank u for helping my family!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

pamela9 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

pamela9

August 24, 2012

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1 previous review
June 18, 2010

Michigan Lyme has been a god send for me. I was at a point where I was runnung out of options. Then I contacted Michigan Lyme and was put on the right track for proper testing that confirmed the diagn... more

August 24, 2012

i feel very blessed to have this in michigan linda is wonderfull education is whats needed they provide that pam maize

The Great!

I've personally experienced the results of this organization in...

yes

Ways to make it better...

If I had to make changes to this organization, I would...

none

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

afriend

What, if any, change in your life has this group encouraged?

help

June 18, 2010

Michigan Lyme has been a god send for me. I was at a point where I was runnung out of options. Then I contacted Michigan Lyme and was put on the right track for proper testing that confirmed the diagnosis. I have called for support and help many times and had nothing but good positive responces.

The Great!

I've personally experienced the results of this organization in...

In the support and involement of it's members.

More feedback...

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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