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79 Reviews
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August 1, 2013

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August 1, 2013

The Michigan Lyme Disease Association has been a life-saver to me. Having moved back to Michigan two years ago from Virginia (I had to move back home with my parents because I am so ill with the disease), this group has offered support and vital information. Linda Lobes is there every single time you need her, and I have met some wonderful new friends who have become a big part of my life. Thank you Michigan Lyme Disease Association...and keep up the good work for those who are suffering!!!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 28, 2013

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July 28, 2013

This organization has been a wonderful source of information and support for my struggle with Lyme Disease. They have helped me learn about the disease, and I have referred others to the site. The website is full of information, all up to date and very helpful. I am grateful and blessed to have met these folks, and to have them helping folks here in Michigan.

Ways to make it better...

If I had to make changes to this organization, I would...

I would like to bring more members to the group, to bring more donations in and help this group out the best I can.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

July 25, 2013

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July 25, 2013

I think all these 5 stars speak for themselves! I have never met an organization so kind and so well informed. If you have never suffered with Lyme's or do not know anyone it is a very scary disease to have. It attacks each person differently and therefore your symptoms may differ from the next person.

MLDA has been a blessing! From the simplest to the most difficult questions they always help in any way they can. It doesn't matter if your a member or not. They want to help everyone have a decent quality of life.

The MLDA far exceeds the 5 stars! Thank you for all your help this past year!

God Bless,

Beth



More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

July 25, 2013

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2 previous reviews - show all
April 5, 2013

The Michigan Lyme Disease Association is committed to educating the community at large, and to supporting, and assisting those who are afflicted by the tick-borne illness, Lyme disease. Its president... more

July 25, 2013

The Michigan Lyme Disease Association has been a beacon in the fog of living with Lyme disease. I have learned so very much about the various issues involved in trying to get a proper diagnosis and in trying to procure appropriate medical care. When a member has a problem, he/she can rely on other members to provide helpful suggestions. And, when it comes to knowledgeable leadership, Linda (the MLDA president) is the best. I am thankful for the support of the MLDA in my life living with Lyme.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2013

April 5, 2013

The Michigan Lyme Disease Association is committed to educating the community at large, and to supporting, and assisting those who are afflicted by the tick-borne illness, Lyme disease. Its president, Linda Purdy Lopoes, is knowledgeable, kind, and always available to help. Through the MLDA, I have become an informed patient. I have also found a group of very kind members who are ready to lend a helping hand, an eager ear, or a shoulder on which to cry. Annual fundraisers help defer some of the costs of meeting its goals. Monthly support group meetings are open to anyone who wants to attend. Newsletters are sent out once or twice a year. There is also a Yahoo! support group. Informational booths are set up by the MLDA at various events throughout the year (such as dog shows). The MLDA also sends out literature to medical professionals and participates in educational conferences so as to better inform doctors, nurses, etc on how to diagnose and treat Lyme disease.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 9, 2010

The Michigan Lyme Disease Aasociation has helped me in a number of ways. I was diagnosed with chronic Lyme disease after suffering for over a year with incorrect diagnoses. Feeling overwhelmed by the diagnosis and prognosis, I turned to the Michigan Lyme Disease Association. Not only is it a valuable resource when it comes to understanding Lyme disease and its co-infections, but it provides up-to-date news blasts about research and treatment. The on-line Yahoo! group provides an easy way to connect with others who suffer in the same way that I do. Members of the Yahoo! group share their experiences, their treatment protocols, their prayers, and emotional support. Lyme disease is insidious and scary. The Michigan Lyme Disease Association helps to de-mystify this horrendous affliction. The MLDA also organizes informational forums and area support group meetings. At these meetings, those who suffer from Lyme are able to listen to experts on treatment, nutrition, lifestyle, etc. and are also given time to share. Life is tough when one has Lyme disease. MLDA makes it easier to live with the challenges a Lyme sufferer faces.

The Great!

I've personally experienced the results of this organization in...

procuring a referral to a Lyme-literate physician, in gaining an understanding of Lyme disease and its co-infections, and in receiving caring emotional support as I face the challenge of Lyme and its treatment.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 15, 2013

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June 15, 2013

There is no better non profit agency. I have dealt with many over the years and never received the support from it's members or board members. They are full of info that has helped me in more ways than I can count. Very informative and always trying to help doctors learn as well. The money is strictly used for Lyme. Everyone and everything done is through volunteers and the President. Without her and the volunteers I would be lost. They have also helped my family learn about Lyme so they better understand what I am going through.

Ways to make it better...

If I had to make changes to this organization, I would...

There is nothing I would change. I just wish there were more ways I could offer support.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

June 12, 2013

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1 previous review
August 20, 2012

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found t... more

June 12, 2013

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't change a thing.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

August 20, 2012

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 11, 2013

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1 previous review
August 25, 2012

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back... more

June 11, 2013

This is a great non profit group that raises awareneness about Lyme Disease in Michigan. I like that 100% raised goes into the program & not into pockets. Mid Mi Lyme has been a god send for myself & my family, we have received valuble information & help. Im looking forward in paying back with helping out more & continuing to raise money for such a worthly cause. The people are friendly, kind & generous in making this a top notch non profit.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

August 25, 2012

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

June 10, 2013

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June 10, 2013

This is a fantastic organization. It is very informational and helpful to people with Lyme disease. It is free and it does not ask anything from anybody only to spread the word. It gives you the opportunity to help other people if you want to. I can't say enough good words about it.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

June 5, 2013

more

June 5, 2013

Having been involved with many non profits in many different capacities, I feel I can give a fair assessment of the MLDA. The president/director is knowledgeable, organized, energetic and caring. She goes well above what would be expected and is involved on a national level. Dollar for dollar the money raised is well spent on education and prevention of Lyme Disease. It is an excellent organization! I would highly recommend support and involvement.

Ways to make it better...

If I had to make changes to this organization, I would...

n/a

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

June 5, 2013

more


1 previous review
June 15, 2010

The Michigan Lyme Disease Association is very important to people in Michigan because few people understand this illness. MLDA is a source of valuable information about doctors and also about the illn... more

June 5, 2013

I am thankful for Michigan Lyme Disease Association for assisting me after being diagnosed with this disease. My doctors didn't understand my illness and MLDA was instrumental in getting me a correct diagnosis and a doctor who could treat me. Don't know where I would be right now without their help!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 15, 2010

The Michigan Lyme Disease Association is very important to people in Michigan because few people understand this illness. MLDA is a source of valuable information about doctors and also about the illness. I have referred MLDA to many people I know in order for them to get educated and diagnosed and ultimately treated for this disease. MLDA put on a conference last fall that had information for doctors as well as patients. It was a day long seminar with speakers from across the nation that provided excellent information related to testing, research and treatment. I also attend support group meetings and there is an online forum for ongoing information.

The Great!

I've personally experienced the results of this organization in...

I've found an excellent doctor to treat my illness. I've shared what I've learned with others in my support group and online forum and have learned much from other members of the association. I find out what treatment options are out there.

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What I've enjoyed the most about my experience with this nonprofit is...

the wonderful people I have met and the information I have recieved.

The kinds of staff and volunteers that I met were...

very kind, open and willing to help me with whatever I needed.

If this organization had 10 million bucks, it could...

provide funds to help those without insurance get treatment and help those with insurance pay for the many expenses not covered by insurance.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2007

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