MICHIGAN LYME DISEASE ASSOCIATION

Rating: 4.95 stars   95 reviews

Issues:

Location: 35431 Brush St. Wayne MI 48184 USA

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 
Target demographics: with support, education and research on Tick-Borne Diseases.
Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education
Geographic areas served: State of Michigan
Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.
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EIN 38-2987081
1-888-784-5963
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Community Reviews

Role: Professional with expertise in this field
Rating: 5 stars  

This organization is a great source of support for patients and health professionals. They are unique in their ability to understand the importance of supporting research in their own state, as well as other states, and they have a proactive...professional relationship with all tick-borne health stakeholders. They do a fabulous job of educating the public and health professionals, too.

If I had to make changes to this organization, I would...

None

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

Next month (9-13-2014) will be 21 years with Lyme disease. ( Also had Babesia and Ehrlichia) I would not be here today. if someone from the MLDA did not help me. I was very ill and needed help. The ER Dr. said I would be fine and not to worry. I started volunteering early on. I am the secretary and the person who sends out all the information to those who ask. Over the last 21 years I have sent out tens of
thousands of pieces of literature. We do not charge for any of it. We pay for all the printing and postage ourselves. I am mostly homebound now but still send out information and do what I can.. Through the MLDA I have seen the education of medical personal rise, slowly but surely and it is all through the
hard work of the MLDA.

If I had to make changes to this organization, I would...

I would find an easier way to get grants than always asking our members who are mostly very ill and cannot work.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

When I got bit in 1993, there was almost no help from the medical community. I was so sick, most days I didn't know who I was or where I lived. The MLDA helped me in so many ways. When attending support group meetings, then board meetings I found out that they were the only ones interested in getting information to people. iI is hard to function and find information when your brain is swollen. If it wasn't for them, who gave me information to take to my doctor, I am sure I would probably be in a nursing home intead of now being a volunteer and "passing it forward" This is a great organization.

I've personally experienced the results of this organization in...

Yes, because there wasn't information hardly anywhere, and they compiled it for us to take to our doctors. This was life saving for me. As a board member I see the thousands of pieces of information sent out every year and hope that we are educating the public, and people can get treatment early and maybe avoid a long term illness.

If I had to make changes to this organization, I would...

Help them with fundraising and getting more volunteers. Almost everyone on the board is ill. We do so many booths and lectures, it takes a toll on us. So we need more people who aren't ill to help us. We will always continue to educate, no matter what the cost. We are a very good and caring group.

Was this review helpful? 
Rating: 5 stars  

MLDA has provided my family and I with much needed information about Lyme Disease in Michigan and assisted with finding a Lyme literate physician. When someone else has questions about Lyme, I send them to MLDA.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

If I had to make changes to this organization, I would...

I wouldn't change a thing.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

When my son was diagnosed with lyme disease 7 years ago I had no idea where to turn. Thankfully I found the MDLA. The president was so helpful in finding a doctor and just general support has been great. We attended a MDLA support group that was active in our area for a while, and again, very helpful people. Always good information, always time to talk. Have referred many people to the group and always everyone is happy with the support they recieve. The leadership goes above and beyond the call of duty! Great origanization!!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

When I have a question, or need to find a specialist who has seen other lyme patients, I can call the Michigan Lyme disease association and they are able to answer my questions or let me know where I may be able to find a dr.
I know of no other group that helps lyme patients like the MLDA.
Many people would suffer needlessly if it was not for the Mlda.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

I belong to a lot of different lyme groups on the net and via mail. The MLDA is one of the best. They work very hard to help others with this disease. They have a great phone support system, web posting site and even have some local support groups. Thanks so much to Linda and all of you who have supported me in the past.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.

If I had to make changes to this organization, I would...

Find a way to get more people involved.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

10 people found this review helpful

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

I've personally experienced the results of this organization in...

My own knowledge and understanding of Lyme Disease has been greatly expanded and I hope this process will continue as I am dealing with Chronic Lyme Disease.

If I had to make changes to this organization, I would...

I believe there are many LD patients like myself who would benefit from joining support groups if they knew about them and could find one that is easily accessible from their home. As MLDA attracts new members, more support groups can be established.

What I've enjoyed the most about my experience with this nonprofit is...

meeting other people whose lives have been affected by Lyme Disease and learning how they have been dealing with it.

The kinds of staff and volunteers that I met were...

Friendly, helpful, and generous with their time and energy.

If this organization had 10 million bucks, it could...

Provide more education to patients and doctors.

Ways to make it better...

If I had joined sooner.

In my opinion, the biggest challenges facing this organization are...

the general public and many doctors and health boards are unaware of the severity of the Lyme Disease epidemic.

One thing I'd also say is that...

There is still so much to learn.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

Was this review helpful? 
Rating: 4 stars  

1 person found this review helpful

There are no doctors from my area who understand how to treat Lyme disease. The infectious disease physicians do not believe chronic Lyme exists. Well for more than 2 years I have had it and now have proof positive with accurate testing. With help from Michigan Lyme Association I found a doctor who knows how to treat Lyme right in Michigan. Without their info I would still be searching...and sicker. I can't thank them enough and finally feel like I am on the road to recovery.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

The Michigan Lyme Disease Association has given me lots of valuable information. It is great to get support from others who are going through similar things as I am.

If I had to make changes to this organization, I would...

Make it so they could contact and inform even more doctors.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

This is a great source for people who have Lyme Disease to get questions answered and have great support. Lyme can be a lonely illness because often you don't feel well enough to get out with others. The group provides the support that I need! I am glad that I don't have to feel alone!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I am a member of the MLDA. I was so appreciative of how much I was able to learn from it's members and especially the board members that I joined the board. I have learned more about Lyme and received so much support from everyone involved in this charity. It is non profit and while so many of the individual board members have Lyme Disease and are therefore often sick, they put a lot of effort into helping others and are a wonderful source of support. They are very involved in all research and extremely knowledgeable in the various treatment options. They advocate on behalf of anyone that needs help. They are very involved in trying to keep the publice aware of what parts of the state of Michigan are at highest risk for places where the disease is showing up the highest. This is not to deter people from going to these parts but so they know to make sure they protect themselves if they are going to be outside in those locations. I can't say thank you enough to the board and all volunteers who are there to listen and help in any way possible.

If I had to make changes to this organization, I would...

There are no changes I can think of as far as this organization goes. The people are knowledgeable and helpful.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

There is no better non profit agency. I have dealt with many over the years and never received the support from it's members or board members. They are full of info that has helped me in more ways than I can count. Very informative and always trying to help doctors learn as well. The money is strictly used for Lyme. Everyone and everything done is through volunteers and the President. Without her and the volunteers I would be lost. They have also helped my family learn about Lyme so they better understand what I am going through.

If I had to make changes to this organization, I would...

There is nothing I would change. I just wish there were more ways I could offer support.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful?