MICHIGAN LYME DISEASE ASSOCIATION
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June 15, 2013
There is no better non profit agency. I have dealt with many over the years and never received the support from it's members or board members. They are full of info that has helped me in more ways than I can count. Very informative and always trying to help doctors learn as well. The money is strictly used for Lyme. Everyone and everything done is through volunteers and the President. Without her and the volunteers I would be lost. They have also helped my family learn about Lyme so they better understand what I am going through.
Ways to make it better...
If I had to make changes to this organization, I would...
There is nothing I would change. I just wish there were more ways I could offer support.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
June 12, 2013
The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.
Ways to make it better...
If I had to make changes to this organization, I would...
I wouldn't change a thing.
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Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2013
August 20, 2012
I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
June 11, 2013
This is a great non profit group that raises awareneness about Lyme Disease in Michigan. I like that 100% raised goes into the program & not into pockets. Mid Mi Lyme has been a god send for myself & my family, we have received valuble information & help. Im looking forward in paying back with helping out more & continuing to raise money for such a worthly cause. The people are friendly, kind & generous in making this a top notch non profit.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
August 25, 2012
Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2011
June 10, 2013
This is a fantastic organization. It is very informational and helpful to people with Lyme disease. It is free and it does not ask anything from anybody only to spread the word. It gives you the opportunity to help other people if you want to. I can't say enough good words about it.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2013
June 5, 2013
Having been involved with many non profits in many different capacities, I feel I can give a fair assessment of the MLDA. The president/director is knowledgeable, organized, energetic and caring. She goes well above what would be expected and is involved on a national level. Dollar for dollar the money raised is well spent on education and prevention of Lyme Disease. It is an excellent organization! I would highly recommend support and involvement.
Ways to make it better...
If I had to make changes to this organization, I would...
n/a
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2013
June 5, 2013
I am thankful for Michigan Lyme Disease Association for assisting me after being diagnosed with this disease. My doctors didn't understand my illness and MLDA was instrumental in getting me a correct diagnosis and a doctor who could treat me. Don't know where I would be right now without their help!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
June 15, 2010
The Michigan Lyme Disease Association is very important to people in Michigan because few people understand this illness. MLDA is a source of valuable information about doctors and also about the illness. I have referred MLDA to many people I know in order for them to get educated and diagnosed and ultimately treated for this disease. MLDA put on a conference last fall that had information for doctors as well as patients. It was a day long seminar with speakers from across the nation that provided excellent information related to testing, research and treatment. I also attend support group meetings and there is an online forum for ongoing information.
The Great!
I've personally experienced the results of this organization in...
I've found an excellent doctor to treat my illness. I've shared what I've learned with others in my support group and online forum and have learned much from other members of the association. I find out what treatment options are out there.
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What I've enjoyed the most about my experience with this nonprofit is...
the wonderful people I have met and the information I have recieved.
The kinds of staff and volunteers that I met were...
very kind, open and willing to help me with whatever I needed.
If this organization had 10 million bucks, it could...
provide funds to help those without insurance get treatment and help those with insurance pay for the many expenses not covered by insurance.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2007
April 5, 2013
The Michigan Lyme Disease Association is committed to educating the community at large, and to supporting, and assisting those who are afflicted by the tick-borne illness, Lyme disease. Its president, Linda Purdy Lopoes, is knowledgeable, kind, and always available to help. Through the MLDA, I have become an informed patient. I have also found a group of very kind members who are ready to lend a helping hand, an eager ear, or a shoulder on which to cry. Annual fundraisers help defer some of the costs of meeting its goals. Monthly support group meetings are open to anyone who wants to attend. Newsletters are sent out once or twice a year. There is also a Yahoo! support group. Informational booths are set up by the MLDA at various events throughout the year (such as dog shows). The MLDA also sends out literature to medical professionals and participates in educational conferences so as to better inform doctors, nurses, etc on how to diagnose and treat Lyme disease.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
June 9, 2010
The Michigan Lyme Disease Aasociation has helped me in a number of ways. I was diagnosed with chronic Lyme disease after suffering for over a year with incorrect diagnoses. Feeling overwhelmed by the diagnosis and prognosis, I turned to the Michigan Lyme Disease Association. Not only is it a valuable resource when it comes to understanding Lyme disease and its co-infections, but it provides up-to-date news blasts about research and treatment. The on-line Yahoo! group provides an easy way to connect with others who suffer in the same way that I do. Members of the Yahoo! group share their experiences, their treatment protocols, their prayers, and emotional support. Lyme disease is insidious and scary. The Michigan Lyme Disease Association helps to de-mystify this horrendous affliction. The MLDA also organizes informational forums and area support group meetings. At these meetings, those who suffer from Lyme are able to listen to experts on treatment, nutrition, lifestyle, etc. and are also given time to share. Life is tough when one has Lyme disease. MLDA makes it easier to live with the challenges a Lyme sufferer faces.
The Great!
I've personally experienced the results of this organization in...
procuring a referral to a Lyme-literate physician, in gaining an understanding of Lyme disease and its co-infections, and in receiving caring emotional support as I face the challenge of Lyme and its treatment.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
October 12, 2012
I am very thankfull for the MLDA. It is my only support and resources for lyme disease. Don't know what I would do with out it. It has led me to medical treatment, awareness, and medications. It has helped me with the businesses that support the cause as I have contacted them for things I have needed. Sandy Spencer
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
September 11, 2012
My wife has Lyme disease and is very active in the organization. Thus I am able to see what MLDA does. It is the best source of information and help for people with Lyme disease. It has great guidelines and members. It is a model for other similar organizations to emanate. I am very moved listening to my wife listen and support a phone caller. And the same with fund raising events, they are worthy and self rewarding. If I had Lyme disease I would contact them as soon as I could. I know I would get the help I need.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
September 9, 2012
This group is absolutely fabulous! I don't know how I would have made it without their help. Linda helped me find a doctor, one of the support group leaders was up late with me on the phone one night until the wee hours of the morning, and they are terrific whenever you have a question or need a hand!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
June 21, 2010
I don't know where I'd be today if it wasn't for the MLDA. I was going through the loop of doctors to find out what was happening to me, because I felt, literally, like every system in my body was going crazy all at the same time. I was getting test after test, but nobody could find anything wrong. I'd even been told it "couldn't be lyme because we don't have that in Michigan...". (Not only not true, but hey, it is possible that people do camp/hike OUTSIDE of Michigan, which was utterly dismissed.) They were so very helpful in helping me find a doctor to see if lyme disease was the cause of my problems, and so very kind in just listening to me. I was having a very bad evening one day, feeling really very, very bad, and one of the ladies talked to me at 10 p.m. for about an hour and a half until I started to feel better. In addition, they always call you back, which isn't something I can say for some other non-profits I've tried to volunteer for. Things are MUCH better now, and I know if it wasn't for this amazing group of people I'd still be getting bounced from doctor to doctor and getting the royal run-around.
The Great!
I've personally experienced the results of this organization in...
See review
More feedback...
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
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