Metastasis is what kills cancer patients, but research in this critical area is woefully underfunded compared to the magnitude of the problem. METAvivor is a grassroots organization that is raising support for laboratory research directly targeting metastasis. They also provide support for patients living with metastatic cancer. Perhaps as importantly, they have begun to shine a light on the growing number of patients living with metastatic cancer -- their real problems, challenges and realities. METAvivor solicits advice from experts to assure that their research grants are going to the best possible science. They do all of this with a minimum administrative overhead. In short, if I want money going directly to metastasis research, this is the place I send my contribution!!
As a breast cancer surgeon, I am asked to support many breast cancer related non-profit organizations. Metavivor is at the top of my list. They are one of the few organizations providing support to individuals as well as researchers who focus on metastatic breast cancer - these women are not well represented in clinical trials and research efforts. In addition, they are extremely transparent regarding where the donations are going. For these reasons, I will continue to support Metavivor and would recommend that others do so as well.
Review from Guidestar
As a genetic counselor, I know that one can make all the right lifestyle choices, do all the recommended screening and/or surgery and sometimes still not avoid metastatic breast cancer. Metavivor is completely dedicated to women with metastatic disease. This organization puts 100% of donations towards funding research that pursues new insights, new protocols and new results. One phone call to them will convince you that they keep up to date so that they can make the best decisions about the allocation of funds, and support the women who come to them for hope.
As a nurse, I know and hear the stories of women with metastatic breast cancer, and I know the place to send them. Metavivor understands what they are going through like no one else. They help fund the research that makes a difference an support the women, who need it most and who are the most neglected. They give the patient the respect, information and support that can truly make a difference in their lives now, while funding the research that will make a difference in the future.
I am a medical anthropologist, health educator and administrator, working with metastatic breast cancer patients for the past 7 years. I know of no better organization for metastatic cancer patients, than Metatvivor. Their commitment to funding research which will benefit the stage IV patient, and their total volunteer status, gives me complete confidence that my personal donations will do the most good. But in addition to funding research they provide direct , hands on support and care with knowledge, grace, and practicality. I am confident when I refer a patient to them, that they will be well taken care of. And I myself turn to them for up to date and practical information about options for treatment and the relevance of programs I might be considering. This is not the kind of organization that spends more time promoting itself than looking for solutions or giving support, but rather the kind you want when you or your loved ones need guidance. I give them my highest recommendation. Kathryn Devanny, MA, MPH
Review from Guidestar
This dedicated non-profit group is focused on helping men and women with metastatic breast cancer. They understand the physiological, psychological, social and spiritual impact of metastatic breast cancer. The volunteer leadership of this group is working to increase options to prevent and treat metastatic disease. Articulate and professional, the leadership has presented to Congress, as well as outreached to the public. This non-profit organization is stellar in their mission and approaches it with integrity and conviction. MOK
Review from Guidestar
Not many people realize that metastatic breast cancer is almost always incurable, and that up to 30% of all breast cancer patients die from metastasis. That's more than 40,000 people every year in the US alone! Furthermore, metastasis is usually not discovered until years - even decades - after the initial diagnosis, surgery, and treatment, leaving hundreds of thousands of patients with years of uncertainty. Metastasis research is critical to improve breast cancer death rates, yet it is difficult and slow. METAvivor brings together patients, advocates, and experts to get accurate information to the public, and to raise money to fund important research specifically on breast cancer metastasis.