METAVIVOR RESEARCH AND SUPPORT INC
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November 5, 2012
To find an organisation that is so transparent about everything it does is quite frankly surprising, even in the non-profit world. I have metastatic breast cancer and we need to be noticed and accepted, especially by the breast cancer community as a whole who usually ignore our existence as we are not pink fluffy "survivors". We don't fit into the Pink Survivor scenario although uur plight is used to raise funds that do nothing to help or benefit those who have MBC. It is as though there is nothing between early stage breast cancer (which is survivable) and End of Life. Well, THERE IS, and METAvivor is the only group I know of which is dedicated to the life of these men and women, and to finding treatments for us. 30% of the "Early Stage Survivors" will develop metastatic disease and METAvivor is actually doing something to help them when they cross over the divide between SURvivor and METAvivor.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
November 2, 2012
Metavivor is dedicated to stage IV Metastatic Breast Cancer Research and is dedicated to placing a spotlight on metastatic breast cancer which kills nearly 40,000 a year; approximately 30% of breast cancer patients with breast cancer develop MBC-cancer that has spread beyond the breast. The Metavivor organization's analysis of cancer organizations from the western world suggests that only 5% of total cancer research funding goes towards metastatic disease. Unfortunately, metastasis can happen to anyone, at any stage of the disease making additional research funding and patient support services critical for stage IV patients in a time when the efforts of fundraising are geared towards early prevention and detection and because of this, stage IV is cast in the shadow-"Out of sight, out of mind" MBC IS the worst nightmare of every patient with breast cancer but so little funding is given to save so many lives-MBC is fatal so lets work together to make a change, our lives are depending on it!!!
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
September 17, 2012
I have worked as an editor in the magazine business for more than 20 years in California and Maryland. In fact, I was the editor of a magazine in Palm Springs that focused on philanthropy and good causes. In all those years, I never personally joined any of organizations I covered until I encountered METAvivor. They have such a clear, unclouded mission. There's nothing superfluous or nonessential in their efforts and campaigns. They are going to change the lives of people with Metastatic Breast Cancer. And I want to be there to help.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
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