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75 Reviews
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July 15, 2009

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July 15, 2009

this is a great organization that has helped by friend Bonnie Anderson to be here for her grandaughter. thank you

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If this organization had 10 million bucks, it could...

Find the cures that will help more people

When was your last experience with this nonprofit?

2009

July 14, 2009

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July 14, 2009

When my father was diagnosed with Mesothelioma in October 2008, not knowing anything on the disease, I quickly began researching on the internet, which led me to MARF. I cannot say enough about MARF. I would give it 1 million stars if I could. Their website is the greatest resource for anyone seeking information on the disease or just moral support. Not only does their website provide an astounding amount of information on the disease, their boards connected my family and I to others who were once in our shoes, providing us with support and guidance. Additionally, Mary Hersdorffer, the medical liason, provided more help than imagineable. She connected us to medical resources we didn't even know existed! I credit her and the site's promptness in contacting my family to part of why my dad is still alive and fighting today. The site has provided inspiration, understanding, and hope to my family, as I'm sure with others as well. I don't know what we would have done had we not found MARF. Thank you from the bottoms of all our hearts!

The Great!

I've personally experienced the results of this organization in...

my father's case. After posting on the community board that my father was recently diagnosed, Mary Hersdorffer called us the next day providing us with guidance on what we needed to do. She (and MARF) has been with us every step of the way.

Ways to make it better...

If I had to make changes to this organization, I would...

do nothing different

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

that the community is like a large family. They are all there to provide support and guidance. They really help each and every one of us through the turmoils of having a loved one suffering from this nasty disease.

The kinds of staff and volunteers that I met were...

incredible! They are so extremely knowledgeable and willing to help all of us. It's truly a blessing.

If this organization had 10 million bucks, it could...

hopefully find a cure, or bring a cure much much closer to reality, for this horrible disease.

Ways to make it better...

(nothing would have made it better- it's already great!)

In my opinion, the biggest challenges facing this organization are...

I can't think of any challenges.

One thing I'd also say is that...

My family and I appreciate this organization so much. We really wish to see this organization continue to do all the great work it's done.

When was your last experience with this nonprofit?

2009

July 14, 2009

more

July 14, 2009

it is okay but there is another california foundation that seems to do more and has higher visibility.....can't remember the name but they have high profile people to make their case

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The kinds of staff and volunteers that I met were...

ok

If this organization had 10 million bucks, it could...

fund more research

When was your last experience with this nonprofit?

2009

July 14, 2009

more

July 14, 2009

My Uncle Mike died of mesothelioma and my mother found MARF and told me about it. They help patients and their familes learn about mesothelioma, connect them to resources, have wonderful support in their online community, have a team of researchers and doctors who work tirelessly to try to improve treatment and find a cure, and are always there when a victim of meso, or their family needs them, or when a loved one of someone who has lost the battle needs them. They are an excellent organization and so deserving of every award available

The Great!

I've personally experienced the results of this organization in...

the many ways they help mesothelioma patients, family members and caregivers

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What I've enjoyed the most about my experience with this nonprofit is...

learning so much through the genuine caring and support of their staff at MARF and the special tributes they have to the fallen warriors of mesothelioma

If this organization had 10 million bucks, it could...

educate about asbestos and its link to mesothelioma, find a cure for meso and treat many more people and provide more support for families of mesothelioma

When was your last experience with this nonprofit?

2009

July 14, 2009

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July 14, 2009

When my husband was diagnosed with mesothelioma in Jan 1997 and told to go home and die."which is what he did 5 months later," we knew absolutely nothing about this disease. Or about the evil of asbestos. The heartbreak it was to cause for so many families. And the shame of it all is because there are still many places where this product still is in existence, the killing will go on and on for a long, long time. Thank you for the Mesothelioma Applied Research Foundation Inc for being there for so many people. I just wish we had had a place to go to in 1997 for the help you give so many people. There was no where here in New Zealand, Deidre vanGerven

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If this organization had 10 million bucks, it could...

Do so much more than it does now for so many people.

When was your last experience with this nonprofit?

2009

July 13, 2009

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July 13, 2009

MARF is responsible for helping to keep my friend Bonnie alive. She was diagnosed with meso 7 years ago and is still alive today. She credits this foundation with many good things and because she is STILL alive today, so do I.

The Great!

I've personally experienced the results of this organization in...

how it has given my friend a reason to fight on.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

Ways to make it better...

I have nothing to add here,

When was your last experience with this nonprofit?

2009

July 13, 2009

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July 13, 2009

It was by accident that I found Mesothelioma Applied Research Foundation, (MARF) actually. My brother was sick many years and had been repeatedly misdiagnosed and sent home every time he went to the doctor or hospital begging for help, pleading for more tests. He told me he thought he was dying. He was right. Michael died in a hospital clinic, and wasn't diagnosed until his autopsy. The coroner described his lungs as "just a mess..." It was after his death that I found MARF while trying to learn everything I could about mesothelioma, and to become an advocate to fight the fight my brother couldn't win. I don't know what I would do without my beloved friends and the wonderful staff at MARF! The sincere love, support, wealth of information and resources, and the advocacy one finds at MARF is almost unbelievable, and has helped me through the devastation of losing my brother. The victims themselves, the loved ones of those fighting, the loved ones of the warriors who have passed away from this horrible disease...we all find love, strength, support and lasting friendships within each other. It is sad indeed that we must come together from the tragedy of mesothelioma, but without MARF, many of us would not have the strength we have to fight for a total ban on asbestos, for mesothelioma funding to support research so that improved treatments and a cure can be found, ongoing treatment, support for the meso warriors and their families, and information resources. They have been a godsend to me!

The Great!

I've personally experienced the results of this organization in...

everything they do! For one organization to assist in so many ways is something I am so thankful for! The gratitude is also demonstrated everyday by members visiting the MARF website forums and boards.

Ways to make it better...

If I had to make changes to this organization, I would...

first graciously thank all the staff members who I feel I owe so much to since becoming a member of MARF.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

everything that I have experienced with the staff and members since finding MARF!

The kinds of staff and volunteers that I met were...

just the very best people anyone could ever meet!

If this organization had 10 million bucks, it could...

assist more patients and their families, and have increased research and treatment funding.

Ways to make it better...

there is no way it could be better except more funding to further the outstanding work MARF already does!

In my opinion, the biggest challenges facing this organization are...

need for increased funding. MARF is fortunate enough to have wonderful doctors and researchers working to improve treatments and find a cure for mesothelioma. But that takes continous funding.

One thing I'd also say is that...

anyone who has ever been touched by mesothelioma in his or her life definitely will benefit from MARF

When was your last experience with this nonprofit?

2009

July 12, 2009
1 person found this review helpful

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July 12, 2009
1 person found this review helpful

Until I found the Mesothelioma Applied Research Foundation, My wife and I had no hope in the treatment of her peritoneal mesothelioma. The information that was available through MARF was a lifesaver in that they were able to give us a direction and purpose in our battle, giving us above all else, HOPE that was not available to us anywhere.

The Great!

I've personally experienced the results of this organization in...

The other members in this organization that are living longer, fuller lives as a direct result of their help.

Ways to make it better...

If I had to make changes to this organization, I would...

Do nothing different than they all ready are.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Being able to interact with others around the country with this very rare disease.

The kinds of staff and volunteers that I met were...

The medical liason, Mary Hessendorf. and one of the officde staff.

If this organization had 10 million bucks, it could...

Fund even more grants for research into the cure of this disease.

Ways to make it better...

Not possible, my experience has been great.

In my opinion, the biggest challenges facing this organization are...

Getting a continuing revenue stream to keep funding the research grants. This is such an orphan disease that not that many people are aware of the problems facing the organization.

One thing I'd also say is that...

In my opinion this is the most professional, caring organization that I have ever seen.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

my parents home was insulated with asbestos. My mother was badly burnt when trying to clean it and her breathing has been difficult for year. No one would agree it was dangerous, no one would agree that it was the cause of all the issues. We knew better, their home was rebuilt from brick to drywall, to rid of this from the home. There needs to be a cure, we need to find that to help those who suffer.

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What I've enjoyed the most about my experience with this nonprofit is...

they want a cure and want to assit those with this terrible condition

If this organization had 10 million bucks, it could...

solve the problem and save many from suffering

When was your last experience with this nonprofit?

2009

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