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75 Reviews
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August 11, 2014

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August 11, 2014

The meso foundation was there for my family from day one. They helped us find the best doctors we could for my father and helped us feel at ease. Many of the members have become close friends of ours. We will continue to support them and go to their fundraising events!

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

October 30, 2013

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October 30, 2013

I subscribed to this foundation after my beautiful Mum was diagnosed with Meso last year. It gives me hope & feels like there's a whole community of people who care out there as I read their regular social media updates. They are always extremely positive & do a great job of updating us all on trials & research from all over the world.

Ways to make it better...

If I had to make changes to this organization, I would...

Have a sub branch in Australia

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When was your last experience with this nonprofit?

2013

October 30, 2013

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October 30, 2013

My husband is a stage 4 Mesothelioma patient and this site has helped us both greatly.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

October 9, 2013

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October 9, 2013

My husband, John, was diagnosed with peritoneal mesothelioma a year ago. We frantically searched for help, but it seemed there was no place to find information or support for this rare type of cancer. So when we found MARF online it was God-sent! Mary was so encouraging! She was kind with a wealth of knowledge. She added us to a survivors and caregivers support group - an ongoing blessing! We were moved from fear to hope as knowledge gained from MARF's research helped us navigate to the best possible treatment options. John had a 14 hr. surgery with the only dr. in our area having the expertise to perform it. Today John is doing very well! Only those that have walked this road know what is needed for survival. We are grateful to the MARF staff for all they do to fight this terrible disease and their mission to find a cure for mesothelioma, including grants for clinical trials.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

July 30, 2009
2 people found this review helpful

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July 30, 2009
2 people found this review helpful

Where do you turn when you've diagnosed with a deadly disease you can't even pronounce? The Mesothelioma Applied Research Foundation Inc., helped by dear childhood friend by providing her and her family with up-to-date research materials, treatment options, an incredible support system and hope.

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If this organization had 10 million bucks, it could...

Educate all lawmakers and the general public about this insidious disease.

When was your last experience with this nonprofit?

2009

July 24, 2009
1 person found this review helpful

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July 24, 2009
1 person found this review helpful

After a 2 week stay in the hospital, my husband was diagnosed w/pleural meso in March of 2008. He was only 51. The pulmonologist told us to go home & get our affairs in order. Of course, we didn't do that but started on a chemo regimen with a local oncologist. It has been 16 months & we've had our ups & downs with this horrific disease. The day of the diagnosis, I got on the internet & found MARF. After looking at other sites, MARF was the most informative & personable site & so started our relationship with staff, victims, volunteers, widows, caregivers and world of information to help in our fight with meso. Everyone is so caring & compassionate because they too, have been touched by this disease on a personal level. Most importantly this foundation has given us hope.

Photos

The Great!

I've personally experienced the results of this organization in...

several states proclaiming Meso Awareness Day on Sept. 26th.

Ways to make it better...

If I had to make changes to this organization, I would...

more MARF locations throughout the country for local network.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the friendships I've made and the knowledge learned from caring & compassionate people.

If this organization had 10 million bucks, it could...

be closer to finding a cure for mesothelioma!

Ways to make it better...

ALL our family had computer knowledge to share in this wonderful organization called MARF!

In my opinion, the biggest challenges facing this organization are...

funding for research & cure; awareness not only to the public but our national leader & all under him!

One thing I'd also say is that...

no matter what time of day, you can find comfort & hope at MARF. BELIEVE IN A CURE!

When was your last experience with this nonprofit?

2009

July 21, 2009

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July 21, 2009

The Mesothelioma Applied Research Foundation is a remarkable non-profit organization that truly helps and cares about patients and care-givers. My mother was diagnosed with pleural meso about a year ago and we have found so many resources and information from MARF. We have utilized the resident nurse, Mary Herdorffer, with her plethora of information on doctors, medicinal information, and overall treatment options. She is available via phone or email basically every day of the week for patients to access for questions or data. My father and I attended the International Mesothelioma Symposium, which MARF has organized for the past few years, in Washington D.C. and received so much information, contacts, and feeling of hope! We were able to travel to Capitol Hill and voice our stories and ask for help with research funding, awareness, and support in banning asbestos legislation to our state's representatives. We learned valuable information from the top researchers and doctors from around the world who focus on this disease. I plan to attend this Symposium year after year, and I vow to stay involved with the foundation because it creates hope for a cure for this terrible disease. It funds research grants, is in the process of making September 26 a Mesothelioma Awareness Day nation-wide, and helps thousands of people.

The Great!

I've personally experienced the results of this organization in...

Research grant funding and building awareness of this disease throughout the world.

Ways to make it better...

If I had to make changes to this organization, I would...

Find ways to spread awareness even more, especially on the fact that asbestos is not banned in the United States.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The contacts we have created and the feeling of community.

The kinds of staff and volunteers that I met were...

Amazingly kind, generous of their time, and well-organized. Very knowledgeable or would take the time to find answers if need be.

If this organization had 10 million bucks, it could...

Find a cure! There are so many researchers and doctors who have proposed ideas on how to help patients, but the organization has limits on how many it can fund do to its own resources.

Ways to make it better...

Not applicable

In my opinion, the biggest challenges facing this organization are...

Getting the word spread about this rare disease and its causes. Also, creating awareness for doctors about this disease and the treatment options, because there are very few experts in this disease.

One thing I'd also say is that...

Mesothelioma patients need help! They are suffering and the median survival rate is tragically low at about 12 months. My mother has been in constant treatment for over a year, and she wants to LIVE! She needs better treatment options now!

When was your last experience with this nonprofit?

2009

July 17, 2009

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July 17, 2009

Amazing group of people. The support they have given our family is overwhelming. They are advocates for patients and continue to fight for a cure and legislation to end this disease. My uncle lived 10 years with this disease. During that time MARF became a part of his daily life. He touched others with the disease thru MARF and gave them support. Hi wife also became part of MARF. She went from organizing school fund raiders to becoming a leader in national fund raising for MARF. She also supports patients and their families today. MARF helps those that are given a diagnosis that to many is a mystery.

The Great!

I've personally experienced the results of this organization in...

The people that are here today as a result of information given to them from MARF

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Seeing the relationships that are made by connecting people

The kinds of staff and volunteers that I met were...

Helpful and honest

If this organization had 10 million bucks, it could...

Stop the importing of asbestos by increasing awareness to the general public. This could end meso.

When was your last experience with this nonprofit?

2009

July 16, 2009

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July 16, 2009

I believe that MARF has truly helped my family members deal with the tragic news of having cancer in a way that I admire. The organization has helped them become members of a community of hope in a time when hope isn't easy to come by.

The Great!

I've personally experienced the results of this organization in...

the capacity of helping my family members through a very difficult time.

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When was your last experience with this nonprofit?

2009

July 16, 2009

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July 16, 2009

When my husband was diagnosed with Mesothelioma, we knew nothing about this disease.Even after his lung was removed until his death 8 months later, we knew very little.After I found MARF,I realized how many people are diagnosed with meso each year.I also found out about major treatments available for patients and tons of support for patients and the families. I have hope that one day with the work that is done by this non-profit organization [ Marf]and the funding for research that a cure will be found.

The Great!

I've personally experienced the results of this organization in...

The hope for patients.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue to get as much info as possible, and challenge all possible ways to raise funds , so a cure will eventually be possible.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The caring and knowledge that is found on this site.

The kinds of staff and volunteers that I met were...

very kind, very caring.

If this organization had 10 million bucks, it could...

Go a long way to finding a cure for meso.

Ways to make it better...

I had found it earlier.

In my opinion, the biggest challenges facing this organization are...

needing more funds for research.

One thing I'd also say is that...

Mesothelioma Applied Research Foundation deserves an award for the work it does.

When was your last experience with this nonprofit?

2009

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