Mesothelioma Applied Research Foundation Inc

Rating: 4.95 stars   101 reviews

Address:

1317 King Street Alexandria VA 22314 USA

Mission:

The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Programs:

The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.

2015 Top-Rated Nonprofit
Write a Review
Donate
Invite Reviews Share This Nonprofit

More Info

877-363-6376
www.curemeso.org

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Reviews for Mesothelioma Applied Research Foundation Inc

Rating: 5 stars  

Mesothelioma Applied Research Foundation Inc Is THE organization that drives awareness, fund raising for research, and life saving guidance for and about the deadly asbestos- caused cancer- mesothelioma. The Foundations symposia are the resource for both scientists and patients and their families. This is truly a life changing organization. It has made it possible for me to continue to live with hope.

 
Flag review
Rating: 5 stars  

2 people found this review helpful

Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

A great resource and support for mesothelioma patients and their families.

 
Flag review
Rating: 5 stars  

3 people found this review helpful

The Mesothelioma Research Foundation was an incredible source of hope and knowledge for me when I was diagnosed in 2007. They helped my husband get me to the right doctors and gave us support and the ability to interact with others who were going through the same situation. Over the last 8 years I have been able to use their wealth of knowledge to help me whenever I have questions or concerns. They have created a community for patients and caregivers that is essential when dealing with this disease.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

The Meso Foundation is one of a kind, literally. This wonderful non-profit serves many needs of the meso patients and their caregivers. From travel grants to the latest medical trials and research, our meso journey would not have been the same without this wonderful group of knowledgeable, compassionate people.

 
Flag review
Rating: 5 stars  

2 people found this review helpful

When I was told to contact the Mesothelioma Foundation after my husbands diagnosis I was apprehensive. Not sure if this was going to be another secretly fueled Lawyer website. I did call but was still unsure. There were so many questions about the disease and treatment. As well as the immediate unknown about how our life was going to change without an income.
It was only after I contacted another family that also had just been diagnosed with Mesothelioma and heard their first hand account of how the foundation had answered all the unknowns that I made my second call to the foundation.
And after that second call and over the next two years the foundation guided us through surgery, recovery, chemo, radiation by giving us the tools to make informed descisions. In addition, with the support (closed and private) groups online I could always ask another family a question and receive a firsthand opinion from someone or from many who have walked that mile in my shoes. The online support groups were the day to day support that helped me as a caregiver get through the best days and the worst days of my husbands treatment. As someone once told me "it's the worst way to meet the best people". I hold the Mesothelioma Applied Research Foundation in the highest esteem. The help and guidance we received was like being embraced by a family and guided by angels every step of the way.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

My father passed away from mesothelioma eight years ago. When he was diagnosed, it was almost impossible to find quality information about the disease or doctors who were experts, let alone familiar with this "orphan" form of cancer. Our entire family was extremely frightened, confused and had no idea how to help my dad cope with the journey which lay ahead of him By chance, my sister came across the name of the Foundation and spoke with Chris Hahn (who was there at the time) and later, Mary Hesdorffer. These individuals along with others, helped us to make sense of the available medical treatment (no cure) at the time, and gave us referrals to oncologists (and hospital programs) who were extremely experienced and who helped my father put up the most valiant fight he could and retain his dignity until the day he passed away. My dad (a Navy veteran and former Brooklyn Navy Yard employee) was put in touch with others battling the disease for information, support and friendship. The caregivers' support board and Mary were always available to answer questions and offer kind words in our time of need. I honestly do not know what we would have done without being able to turn to the Mesothelioma Applied Research Foundation and its incredible team of volunteers.









 
Flag review
Rating: 5 stars  

1 person found this review helpful

Totally run by professionals who work with Mesothelioma patients and families by educating and supporting them. There is no organization with better medical knowledge of this disease. Their nurse practioner knows and has contact with every mesotheioma specialist and is constantly up-to-date on newest clinical trials.

 
Flag review
1 previous review
Rating: 5 stars  

2 people found this review helpful

I volunteer to help others overcome living with Mesothelioma. This organization helped save my life, it's the least I can do to help it help other patients and community.

If I had to make changes to this organization, I would...

have the government require all oncologists to attend their conferences.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
Flag review
1 previous review
Rating: 5 stars  

2 people found this review helpful

MARF saved my life! Without the information or caring provided by this wonderful organization I would not have made the choices for treatment that is so hard to find for Mesothelioma. I saw a grandchild born and can watch her grow after being told I would die within a year. Without the research and patient connections this organization supports, most of us would think we are alone with this illness. I now help new patients, families and even my other doctors learn what the options are for surviving. My story can be found at the website, no need to tell it again. I am alive!

I've personally experienced the results of this organization in...

Patient outreach and the information given out to new patients and the increasing years of survivors.

What I've enjoyed the most about my experience with this nonprofit is...

Being able to help those that are affected with Mesothelioma and give them hope that surviving is possible, and to get the chance to meet the research and medical community to speak one on one to them each year at the international symposium.

The kinds of staff and volunteers that I met were...

are the most caring dedicated people who are all trying to believe there will be a cure.

When was your last experience with this nonprofit?

2009-6-01

 
Flag review
Rating: 5 stars  

2 people found this review helpful

The Mesothelioma Applied Research Foundation deserves a huge amount of credit for the fact that my husband is alive today.

In 2012, my husband was diagnosed with peritoneal mesothelioma. It was difficult to find resources because it's an exceptionally rare disease, and we needed someone with experience who could treat it in the abdomen -- unlike most meso patients who need treatment in the lungs. There are very few experienced surgeons in the U.S. for peritoneal mesothelioma, and it was daunting to wade through the internet to find one because even though we live in one of the largest cities in the country, there wasn't a single oncologist in town who specialized in treating peritoneal meso.

The Mesothelioma Applied Research Foundation not only helped us to find experienced onocological surgeons, but provided guidance and counsel. My husband's cancer didn't image on CT scans (it was found in the pathology after his appendix was removed), so moving forward with the drastic treatment of HIPEC--the standard of care for peritoneal meso--was scary. I can't imagine having done it without the experience, wisdom, and guidance of Mary Hefsdorffer at the Foundation.

After my husband's HIPEC surgery, there were tons of life-threatening complications. It has been and continues to be a rough road, but the Foundation has provided education and emotional support. They have helped us to attend conferences where we've learned first hand from doctors, researches, survivors and bereaved about this disease.

The Mesothelioma Applied Research Foundation has had an incredibly profound impact on my life. I'm forever grateful for everything they do!

 
Flag review
Rating: 5 stars  

1 person found this review helpful

The Mesolthelioma Applied Research Foundation is nothing short of wonderful in dealing with patients dealing with this disease and their caregivers. They are ALWAYS available to answer questions and are in the know on everything about this disease, whether it is related to doctors, drugs, clinical trials, etc.. I would, without a doubt, direct anybody facing this disease their way.

 
Flag review