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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Programs: The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.

Community Stories

58 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

Most amazing foundation truely dedicated to research.

1 Cheryl180

Client Served

Rating: 5

My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.

1

Client Served

Rating: 5

I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.

The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!

I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.

2

Client Served

Rating: 5

MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!

1

Client Served

Rating: 5

I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.

1

Client Served

Rating: 5

The Mesothelioma Applied Research Foundation brings together patients, physicians, policymakers, caregivers, researchers, the bereaved, donors, and activists in a community whose goals are the alleviation of suffering in current patients, the advancement of medical knowledge that can move us toward new treatments and perhaps a cure, the increase of awareness about the disease and the ubiquitous nature of its cause (asbestos), the constant and sophisticated support for the families who support the patients, and the necessary political advocacy to further funding to accomplish all of the former. It is a non-profit, alone in its field. The professionals running the Foundation are tireless, selfless, and indispensable.
I, like so many of my peers, am alive in no small part because of how these people live their lives.

1 Beth182

Client Served

Rating: 5

Meso Foundation has been awesome support to my family. My husband was diagnosed with Meso in 2014 and has undergone several types of treatments. The volunteers and staff at the foundation have been helpful in directing us to other options as well as supporting us emotionally through connecting us to others who have been through this.

3 Raya B.

Client Served

Rating: 5

Mesothelioma Applied Research Foundation Inc Is THE organization that drives awareness, fund raising for research, and life saving guidance for and about the deadly asbestos- caused cancer- mesothelioma. The Foundations symposia are the resource for both scientists and patients and their families. This is truly a life changing organization. It has made it possible for me to continue to live with hope.

3

Client Served

Rating: 5

Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.

2

Client Served

Rating: 5

A great resource and support for mesothelioma patients and their families.