MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC

Rating: 4.93 stars   75 reviews

Issues: Health, Cancer

Location: 1317 King Street Alexandria VA 22314 USA

Mission: The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.
Programs: The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.
2014 Top-Rated Nonprofit
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EIN 75-2816066
877-363-6376
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Community Reviews

Rating: 5 stars  

The ONLY organization related to mesothelioma that helps patients, caregivers find the right path.
When I was diagnosed in 2009, Mary was the only person who called me and asked how can we help you? What is you plan? who is your doctor/ you team?
Since then I have enormous respect and love for all the people working for MARF.
Plus, this is the only organization that connects all of us somehow related to Mesothelioma. With organizing Symposiums and events, the Meso family comes together - patients, caregivers, widowers, doctors, nurses... can be found in the same room.... where all questions can be asked and answered; happy news and worries shared with people who understand.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

Few days after my Meso diagnoses in 2009 (and online search) several organizations contacted me. Among those lawyers and whoever called me a nice lady named Mary stood out. She did not mention any kind of law case or money - she was focused on giving me information about treatment options, doctors and just my well-being. I loved her right away.
Once MARF moved to east coast I got more involved and only thing I can say is that I love everyone working or somehow connected to the organization. It is unique place where patients, caregivers, doctors even some lawyers come together for one cause - to find a cure.
And looking for the cure and financing research is what brought me close to MARF and all of these people. As a person diagnosed at 30years old, I am happy that I can be here, I am thankful that someone before me tried treatment that worked very well for me and I am more than pleased that research that my doctor does with my tissue (and is sponsored by MARF's grant) will help someone in the future.

Nowadays MARF offers support groups for patients, caregivers, for people who lost a loved ones to meso... MARF has created this amazing family that cares for each member, gives support and hope

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I have family members & thousands of families are in the US Asbestos Exposure Health Emergency of Libby, Montana. In seeking Life Saving Medical Treatment for my family, I called the National Cancer Institute (NCI), and explained my families health situations. The NCI informed me that there are Zero Designated Cancer Treatment Centers in the Whole State of Montana, and Referred me to the Mesothelioma Applied Research Foundation aka CureMeso. This said everything to me, that CureMeso is the Best.
To this day, I'm still working with Mary Hesdorffer at CureMeso, in obtaining help for my family members, and appreciate all the time and effort she has given to my family members. Asbestos exposure not only affects the Lungs, it also affects other vital organs of the body. My brother Diagnosed by Dr. Brad Black of Libby CARD Clinic, has had to have a Kidney removed, and his wife is in Double Kidney Failure, so not only am I appreciative of CureMeso, but also The Kidney Foundation and UHCancerCenter whom also is now working with my family to save their lives. I appreciate all whom are helping to save the lives of my family members, and others with Asbestos Related Diseases.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

This non profit organization has helped so many others. Whether you are fighting for your life, caring for a loved one, lost a loved one or want to support research, the great people at mesothelioma applied research can help guide, direct and comfort you in your personal journey!

If I had to make changes to this organization, I would...

Work for them myself. :)

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I came into contact with MARF in January of 2009 and started to volunteer in September 2012. This is a group of people who care about the whole person, not just the diagnosis, or the part of the body with Meso. They care about you and your family and all those affected by the diagnosis. And they offer support to each one. And unlike other Meso organizations, they are not a front for a law firm whose real interest is is getting you to sign on with them so they can get part of your money. This is THE go to place for the most current information on treatment and trial, for details on advocacy and legislation, and for people coming together in love and support. Read the other reviews! There is no finer organization. And I simply would not volunteer my time with any other organization.

If I had to make changes to this organization, I would...

give them unlimited financial resources.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

When my husband was diagnosised with Mesothelioma naturally fear set in . But somehow I/we found
Our way to MARF. This nonprofit is a godsend! They are not associated with any attorney's. The volunteers
Who call & talk with you, help you find the best care possible for your love ones. They are awesome people. The staff at MARF are always willing to help you. The caregivers support groups are super . I can go on & on. Simply put they saved me. Thank you to all the staff especially, Mary H...

If I had to make changes to this organization, I would...

Wish we lived closer to their headquarters

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

13 people found this review helpful

MARF is an awesome organization that truly cares about the patient as well as the care givers. They work really hard along with their members to get the word out regarding this orphaned disease and the research money it so badly needs to find a cure! If it was not for MARF I'm not sure how I would have survived these past 3 years! My husband was diagnosised on 8/31/06 and the foundation and it's resources have been terrific!!!!

I've personally experienced the results of this organization in...

my own family and friends of educating them as to what Meso is.

If I had to make changes to this organization, I would...

have a symposium on the east coast - Boston

What I've enjoyed the most about my experience with this nonprofit is...

the caring people and volunteers

The kinds of staff and volunteers that I met were...

GREAT and INFORMATIVE

If this organization had 10 million bucks, it could...

surely have research monies to find a cure or new treatments!

Ways to make it better...

I was more outgoing and could get my community more involved in MARF

In my opinion, the biggest challenges facing this organization are...

financial

One thing I'd also say is that...

we should never give up!!!!!!!

When was your last experience with this nonprofit?

2009-7-01

Was this review helpful? 
Rating: 5 stars  

19 people found this review helpful

I attended the Mesothelioma Applied Research Foundations Symposium in Washington DC in June 2009. I was impressed by the dedication of all involved. The Symposium was for patients, caregivers, doctors and researchers. Whatever the persons involvement, they were there with their whole heart. I was surprised to see so many people who have lost loved ones to Mesothelioma still so involved in the Foundation. It speaks alot to their dedication to finding a cure for meso. I was there as a volunteer and I know I will continue to help the Foundation in their fight to help ban asbestos and help to fund research to find a cure.

I've personally experienced the results of this organization in...

patients recieving the correct medical attention from a specialist in Mesothelioma. Great strides in research from grants from the Foundation.

What I've enjoyed the most about my experience with this nonprofit is...

the total involvement of the staff, patients, doctors and researchers.

The kinds of staff and volunteers that I met were...

caring and helpful.

If this organization had 10 million bucks, it could...

help find a cure for mesothelioma.

When was your last experience with this nonprofit?

2009-6-01

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Rating: 5 stars  

My husband was given 6 months to live after being diagnosised with peritoneal mesothelioma. This was in 1998. Thankfully we found a trial in NY and he survived 11 years. It was after the first or second year that the Meso Foundation opened it doors and we found them on the internet. They immediately began to give us the support we so disperately needed. They knew about about the disease and offered us hope. We began going to symposiums and meeting many other patients and caregivers. Craig began giving others hope as he continued to beat the odds and live a strong productive life. I found my niche in fundraising for the Foundation. It empowered us against a monster. The Foundation helps people get the help they need and provides much more than information. They provide support of other patients and that is priceless.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

20 people found this review helpful

I have had the privilage of working with people at the Mesothelioma Applied Research Foundation (MARF) since it began. It has literally helped to save hundreds of lives by giving not only hope but by actually giving advice to patients who are fighting an orphan disease. Most, if not all patients are told there is nothing that can be done for them when the are diagosised with this horrific cancer and given about 6 months to live. MARF not only given them HOPE but also helps with "scholoships" to help patients that don't have the means to get to their first doctors appointment. There are only a handful of specialiest that treat this disease and MARF raises more awareness and funding than government ever has. Having just lost my husband this past April to mesothelioma, I can tell that the MARF organization is an organization that is not only needed but is a lifeline for many that have no place else to turn. shellysbelieving

I've personally experienced the results of this organization in...

it is my belief that many lives have been saved and will continue to be saved.Many patients that have this disease have little or no information about this disease and are told to go home and die.MARF not only gives HOPE they give them valuable resources

When was your last experience with this nonprofit?

2009-1-01

Was this review helpful? 
Rating: 5 stars  

20 people found this review helpful

Mesothelioma has affected a dear friend of mine. Knowing about this disease, where it comes from, how we as Americans can stop others from being diagnosed and hopefully finding a cure. . . . has changed my life significantly. Julie Gunlach, a Mesothelioma "diagnosee" loves life more than almost any other person I know. She is an intelligent, loving, beautiful, courageous, brave, mother, daughter, sister, wife and wonderful friend. She deserves a cure as does everyone else diagnosed with this disease and everyone else in the future diagnosed.

What I've enjoyed the most about my experience with this nonprofit is...

X

The kinds of staff and volunteers that I met were...

X

If this organization had 10 million bucks, it could...

X

When was your last experience with this nonprofit?

2009-6-01

Was this review helpful? 
Rating: 5 stars  

18 people found this review helpful

MARF brings patients & families from the dark pit of no knowledge about a diagnosis of mesothelioma into the light of hope & treatment! Most patients diagnosed with meso are told there's no effective treatment available. There is & MARF has the connections to it! They have a talented, tuely caring nurse/practioner to work with patients & their families. The best specialists for this terrible cancer can be found through MARF. My daughter is a survivor & I am now a volunteer offering support where & how ever I can. I also advocate for awareness about asbestos & mesothelioma. The MARF staff genuinely care for their cause & the people they help. They do a great job of funding research to find better treatments &, hopefully a cure. The on-line community formed on the MARF web site really care for each other & offer hope, support, knowledge, comfort, & love. Everyone with a horrific illness like meso should be so lucky as those who find this foundation! Whether or not my cancer recurs I will continue to work as a volunteer & stay connected to my MARF "family".

I've personally experienced the results of this organization in...

patients lives saved who were told elsewhere that no treatment for mesothelioma was available.

If I had to make changes to this organization, I would...

try to advertise more so that more mesothelioma patients found this foundation.

What I've enjoyed the most about my experience with this nonprofit is...

the differences made in peoples lives when they realize that there is hope.

The kinds of staff and volunteers that I met were...

knowledgable, proffesional, dedicated, & caring.

If this organization had 10 million bucks, it could...

advertise to reach more patients & fund more research projects.

Ways to make it better...

I could find better ways to raise funds so that more research projects could continue.

In my opinion, the biggest challenges facing this organization are...

fund raising to continue the search for better treatments & a cure.

One thing I'd also say is that...

the government needs to ban asbestos & fully fund mesothelioma research, all things that MARF works to make happen.

When was your last experience with this nonprofit?

2009-7-01

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

In 2002, I was at what I thought was the peak of my life. I was a 52 year old nurse with a great career. I was weeks away from marrying the love of my life, and we had just bought our dream home together. I was physically active, an avid hiker, biker, snorkeler and free diver, and my fiancee and I looked forward to traveling the world together. My happiness was boundless. The only problem was a nagging cold that I couldn't seem to get rid of - my doctor felt antibiotics would do the trick, but took a chest xray "just in case". That xray was the key to a nightmare whose name was malignant pleural mesothelioma, a lethal type of cancer. My professional training, my doctors, and every thing I read on the Internet told me I was doomed to die within months - maybe a year if I was lucky. I have never felt so alone or so afraid, or so without hope. I could not stop crying. But then I found MARF - the Mesothelioma Foundation, and a small light began to shine in all the darkness that surrounded me. Here were people who gave me hope, information on treatment options that could help me, and put me in contact with other patients like myself. And they stayed with me, every step of the way, cheering me on and telling me not to give up. That was over 7 years ago. It has not been an easy road to travel, but I have never had to travel it alone - not for an instant. My fiance stuck with me (and became my husband) and so did the people at MARF. The clinical information they provided never failed to help me identify cutting edge treatments that gave me a fighting chance to live. Their unwavering support and encouragement saw me through the rough spots. They buoyed my spirits by sharing both my highs and my lows with unconditional compassion. Without this organization, I am certain I would have curled up into a terrified ball, given up, and died. I will never be able to adequately describe what they gave me: they gave me HOPE, the sweetest gift there is. They gave me back my life.

I've personally experienced the results of this organization in...

The hope engendered in patients and families who thought they had no where to turn and no hope for survival. People literally say to me that MARF "saved their lives". I know this to be true and not hyperbole, as it happened to me as well!

If I had to make changes to this organization, I would...

Try to make the public more aware of the risks that everyone faces of developing mesothelioma.

What I've enjoyed the most about my experience with this nonprofit is...

Communicating with other patients and families. Helping them helps me to grow.

The kinds of staff and volunteers that I met were...

Overwhelmingly dedicated and kind.

If this organization had 10 million bucks, it could...

Help more people, maybe even help find a cure for mesothelioma.

Ways to make it better...

I had known about this organization earlier.

In my opinion, the biggest challenges facing this organization are...

Increasing public awareness and finding funding in the current financial climate.

One thing I'd also say is that...

Thank you MARF for my life!

When was your last experience with this nonprofit?

2009-7-01

Was this review helpful?