Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
65 Reviews
1234.923085
| 1 ... 3 4 5...7 |
Write A Review
July 19, 2009

more

July 19, 2009

I attended the Mesothelioma Applied Research Foundations Symposium in Washington DC in June 2009. I was impressed by the dedication of all involved. The Symposium was for patients, caregivers, doctors and researchers. Whatever the persons involvement, they were there with their whole heart. I was surprised to see so many people who have lost loved ones to Mesothelioma still so involved in the Foundation. It speaks alot to their dedication to finding a cure for meso. I was there as a volunteer and I know I will continue to help the Foundation in their fight to help ban asbestos and help to fund research to find a cure.

The Great!

I've personally experienced the results of this organization in...

patients recieving the correct medical attention from a specialist in Mesothelioma. Great strides in research from grants from the Foundation.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the total involvement of the staff, patients, doctors and researchers.

The kinds of staff and volunteers that I met were...

caring and helpful.

If this organization had 10 million bucks, it could...

help find a cure for mesothelioma.

When was your last experience with this nonprofit?

2009

July 18, 2009

more

July 18, 2009

The doctors told my family that my father had about 6 months to live, and that he should get his affairs in order. When it seemed like all hope was shattered, I stumbled upon the Mesothelioma Applied Research Foundation. Their supportive staff helped my family to find specialists, learn about clinical trials, connect with others battling this cancer, and most importantly this foundation gave us hope.

The Great!

I've personally experienced the results of this organization in...

the eyes of my father. When the doctor gave my dad a 6-month death sentence, his hopes and dreams were shattered. However, when the Mesothelioma Applied Research Foundation connected my father with survivors, he was able to live again:)

More feedback...

When was your last experience with this nonprofit?

2009

July 17, 2009

more

July 17, 2009

The Mesothelioma Applied Research Foundation is THE source for mesothelioma awareness, medical guidance and other support for anyone impacted by mesothelioma. Mesothelioma awareness and research for better treatments and a cure are desperately needed, and only MARF can meet these needs. MARF is also attempting to establish September 26 as an annual Mesothelioma Awareness Day and assists individuals who are working with their state legislators for state recognition of this date. My 39-year-old son died of mesothelioma in 2006, and MARF continues wto support me and my efforts to promote mesothelioma awareness in his memory.

The Great!

I've personally experienced the results of this organization in...

providing information and medical advice and guidance not available elsewhere.

More feedback...

When was your last experience with this nonprofit?

2009

July 17, 2009

more

July 17, 2009

Amazing group of people. The support they have given our family is overwhelming. They are advocates for patients and continue to fight for a cure and legislation to end this disease. My uncle lived 10 years with this disease. During that time MARF became a part of his daily life. He touched others with the disease thru MARF and gave them support. Hi wife also became part of MARF. She went from organizing school fund raiders to becoming a leader in national fund raising for MARF. She also supports patients and their families today. MARF helps those that are given a diagnosis that to many is a mystery.

The Great!

I've personally experienced the results of this organization in...

The people that are here today as a result of information given to them from MARF

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Seeing the relationships that are made by connecting people

The kinds of staff and volunteers that I met were...

Helpful and honest

If this organization had 10 million bucks, it could...

Stop the importing of asbestos by increasing awareness to the general public. This could end meso.

When was your last experience with this nonprofit?

2009

July 17, 2009

more

July 17, 2009

MARF has been a tremendously helpful resource for our family. When my mother was diagnosed with mesothelioma, we had no idea what it was or knew anything about the disease. Now we have a network of people for support, info on the latest developments, and lots of hope.

The Great!

I've personally experienced the results of this organization in...

ways that have positively influenced us.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the personal support.

The kinds of staff and volunteers that I met were...

great!

If this organization had 10 million bucks, it could...

help find a cure for mesothelioma!

When was your last experience with this nonprofit?

2009

July 16, 2009

more

July 16, 2009

I believe that MARF has truly helped my family members deal with the tragic news of having cancer in a way that I admire. The organization has helped them become members of a community of hope in a time when hope isn't easy to come by.

The Great!

I've personally experienced the results of this organization in...

the capacity of helping my family members through a very difficult time.

More feedback...

When was your last experience with this nonprofit?

2009

July 16, 2009

more

July 16, 2009

When my husband was diagnosed with Mesothelioma, we knew nothing about this disease.Even after his lung was removed until his death 8 months later, we knew very little.After I found MARF,I realized how many people are diagnosed with meso each year.I also found out about major treatments available for patients and tons of support for patients and the families. I have hope that one day with the work that is done by this non-profit organization [ Marf]and the funding for research that a cure will be found.

The Great!

I've personally experienced the results of this organization in...

The hope for patients.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue to get as much info as possible, and challenge all possible ways to raise funds , so a cure will eventually be possible.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The caring and knowledge that is found on this site.

The kinds of staff and volunteers that I met were...

very kind, very caring.

If this organization had 10 million bucks, it could...

Go a long way to finding a cure for meso.

Ways to make it better...

I had found it earlier.

In my opinion, the biggest challenges facing this organization are...

needing more funds for research.

One thing I'd also say is that...

Mesothelioma Applied Research Foundation deserves an award for the work it does.

When was your last experience with this nonprofit?

2009

July 15, 2009

more

July 15, 2009

this is a great organization that has helped by friend Bonnie Anderson to be here for her grandaughter. thank you

More feedback...

If this organization had 10 million bucks, it could...

Find the cures that will help more people

When was your last experience with this nonprofit?

2009

July 15, 2009

more

July 15, 2009

MARF has been a life line for me with its wealth of information, caring and resourceful staff, and a wonderful community, a “family” of supporters on its website. My husband of 47 years died after courageous one year battle with mesothelioma, a cancer caused by asbestos. He had worked directly with asbestos some 40 years before and at various times since. That is one of the hardest parts to understand......that it could be in your system so long before anything surfaces. I wish whole heartily that there was some magic solution that would erase this whole meso mess, but there isn’t.....YET!!! Someday there will be a solution, there will be a cure.....I HAVE TO BELIEVE THAT!!!. And all those who have gone before, in some way or other, have helped with the research, the trials, etc, each little bit of knowledge gained will contribute towards that solution, that cure. I HAVE TO BELEIVE THAT!!!! MARF has been hard at work trying to reach that goal by researching for a cure, for treatment options, for better and earlier ways to detect meso, and most importantly for banning asbestos usage. With more funding, so much more can be done to reach this goal.

Photos

The Great!

I've personally experienced the results of this organization in...

genuine caring support and font of information and aid from all the MARF staff and all its on-line supportors

Ways to make it better...

If I had to make changes to this organization, I would...

continue the way they have been going, encouraging and inspiring more awareness.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the warm feeling of family with all.

The kinds of staff and volunteers that I met were...

THE GREATEST!!!!!

If this organization had 10 million bucks, it could...

do so much more....FIND THAT CURE!!!

Ways to make it better...

we had found MARF earlier and there was a cure already in place for meso.

In my opinion, the biggest challenges facing this organization are...

because of the relativity low numbers of "victims" a real lack of awareness of asbestos and of meso and then a lack of support and funding for research.

One thing I'd also say is that...

A GREAT BIG THANK YOU to all at MARF for the support they have given me.

When was your last experience with this nonprofit?

2009

July 14, 2009

more

July 14, 2009

When my father was diagnosed with Mesothelioma in October 2008, not knowing anything on the disease, I quickly began researching on the internet, which led me to MARF. I cannot say enough about MARF. I would give it 1 million stars if I could. Their website is the greatest resource for anyone seeking information on the disease or just moral support. Not only does their website provide an astounding amount of information on the disease, their boards connected my family and I to others who were once in our shoes, providing us with support and guidance. Additionally, Mary Hersdorffer, the medical liason, provided more help than imagineable. She connected us to medical resources we didn't even know existed! I credit her and the site's promptness in contacting my family to part of why my dad is still alive and fighting today. The site has provided inspiration, understanding, and hope to my family, as I'm sure with others as well. I don't know what we would have done had we not found MARF. Thank you from the bottoms of all our hearts!

The Great!

I've personally experienced the results of this organization in...

my father's case. After posting on the community board that my father was recently diagnosed, Mary Hersdorffer called us the next day providing us with guidance on what we needed to do. She (and MARF) has been with us every step of the way.

Ways to make it better...

If I had to make changes to this organization, I would...

do nothing different

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

that the community is like a large family. They are all there to provide support and guidance. They really help each and every one of us through the turmoils of having a loved one suffering from this nasty disease.

The kinds of staff and volunteers that I met were...

incredible! They are so extremely knowledgeable and willing to help all of us. It's truly a blessing.

If this organization had 10 million bucks, it could...

hopefully find a cure, or bring a cure much much closer to reality, for this horrible disease.

Ways to make it better...

(nothing would have made it better- it's already great!)

In my opinion, the biggest challenges facing this organization are...

I can't think of any challenges.

One thing I'd also say is that...

My family and I appreciate this organization so much. We really wish to see this organization continue to do all the great work it's done.

When was your last experience with this nonprofit?

2009

| 1 ... 3 4 5...7 |
Write A Review

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers