1 person found this review helpful
Meningioma Mommas, Inc.
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December 16, 2011
1 person found this review helpful
When I was diagnosed with a meningioma in 2008, I started researching immediately. I found Meningioma Mommas and I will forever be grateful. The information, the connections with others, the contributions to meningioma research has been built by committed leadership. My neurosurgeon saved my brain. Menigioma Mommas saved my sanity. Like I said, I will forever be grateful. Barbara
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2011
August 15, 2010
I have to concur with the previous review. While I found this forum to be very helpful in recovering from the trauma of a meningioma, along with connecting with other meningioma survivors, the administrators were very defensive and even combative at times which caused me to move on. It was unfortunate because I know the organization has been quite helpful to the cause of meningioma survivors.
The Great!
I've personally experienced the results of this organization in...
...the emotional recovery of a brain tumor.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2007
August 15, 2010
I have donated thousands of dollars to this organization and i was planning to hold a fundraiser for it in conjunction with my 50th birthday in 2010 at no expense to the organization but the executive director/founder became disgruntled when I asked about how its money is spent and whether she would appear at the fundraiser to speak on the illness. She then withdrew the organization from the fundraiser. She never publicly attempted to recruit volunteers to help do the fundraiser even though her organization would have been one of two beneficiaries. I should have done due diligence before I chose to include this organization in my fundraiser. Lesson learned.
The Great!
I've personally experienced the results of this organization in...
I used its website support when I was getting treatment for a brain tumor.
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When was your last experience with this nonprofit?
2010
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