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154 Reviews
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July 29, 2009

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July 29, 2009

I received a diagnosis of stage 1V melanoma and had no idea where to turn for help. I saw the MIF site and Catherine's offer to help if anyone had any questions. I emailed her a question about finding a Doctor, and within 5 minutes(I swear), she had responded with 2 names, one of whom is now my oncologist at Memorial Sloan.

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What I've enjoyed the most about my experience with this nonprofit is...

The ease of use of the website and the amount of information that is presented

When was your last experience with this nonprofit?

2009

July 29, 2009

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July 29, 2009

As a patient, I did not feel so alone. I am checking the MIF web site often for new information and cure.

Ways to make it better...

If I had to make changes to this organization, I would...

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What I've enjoyed the most about my experience with this nonprofit is...

lots of information.

If this organization had 10 million bucks, it could...

help find more treatments options.

Ways to make it better...

I would see more research done and explained to not only prevent but cure and find new treatments.

When was your last experience with this nonprofit?

2008

July 29, 2009

more

July 29, 2009

This is the place to go if you need to know the latest about Melanoma. The feed back, support is wonderful and if the answers to your question is not known, Catherine will go out and ask an expert to find out. It's a place where you feel part of a team, safe and secure, which after being diagnosised with any cancer is difficult to feel. They accomplish this with follow up, caring comments, great information and always posting the latest research which save someones life.

The Great!

I've personally experienced the results of this organization in...

the unspoken calm their comments bring about in the folks diagnosed with this frightening and life threatening disease,

Ways to make it better...

If I had to make changes to this organization, I would...

Not change a thing.

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What I've enjoyed the most about my experience with this nonprofit is...

reassurance.

The kinds of staff and volunteers that I met were...

Kind, experienced, helpful, understanding, reassuring, comforting.

If this organization had 10 million bucks, it could...

Keep the site going, offer more free clinics, offer sun awareness clinics, help researchers find something that will work to keep this cancer away.

Ways to make it better...

I'd never been diagnosed.

In my opinion, the biggest challenges facing this organization are...

The lack of new options available for a cure leaving little to recomment other than trials for advanced disease.

One thing I'd also say is that...

I am very happy I stumbled across this website. It's always available, night or day and you feel a friend is only a click away

When was your last experience with this nonprofit?

2009

July 28, 2009

more

July 28, 2009

Provided wonderful information, resources and support when my father was diagnosed with metastatic melanoma. Website and links were very helpful as were the founder and staff.

The Great!

I've personally experienced the results of this organization in...

the healing words that are found on their website from clients served. They provide great information and resources for those diagnosed with melanoma!

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When was your last experience with this nonprofit?

2009

July 28, 2009

more

July 28, 2009

I have received support from the Melanoma International Foundation for the past 6 years since my first diagnosis. The second diagnosis in 2005 and then some questions that were answered involving my daughters biospy. Making sure that it was read properly and a correct diagnosis was made. I truly appricaite everything this organization does and what they stand for they are an excellent non profit foundation, and truly care about people.

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The kinds of staff and volunteers that I met were...

Very pleasant and caring

If this organization had 10 million bucks, it could...

Hopefully, find a cure, or help the people who have advanced stage disease that there is no hope for.

When was your last experience with this nonprofit?

2008

July 28, 2009

more

July 28, 2009

I was diagnosed with Melanoma and had to have a WLE on 11/11/08. At 41 it was the scariest thing I had ever dealt with to date. I found the Melanoma Internation foundation and I still write in, Katherine Poole and other melanoma patients always respond with kind heartfelt honest responses. I have met two different women on this website that I speak to separately. I honestly don't know what I would have done without this site, it was a lifesaver over and over again. I LOVE this site it is the best site I ever found for my melanoma, by far!

The Great!

I've personally experienced the results of this organization in...

helping me get through the issues you deal with when told you have a melanoma diagnosis.

Ways to make it better...

If I had to make changes to this organization, I would...

do the same thing Katherine Poole does, respond personally to the emails.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The responses are quick, honest and real, these people have all had the disease or had it in their family, they know!

The kinds of staff and volunteers that I met were...

FANTASTIC!

If this organization had 10 million bucks, it could...

Help all people understand melanoma, the risks the fact that it can be very deadly, Frank McCourt the author just died of melanoma, people need to know more about this disease, how to look for it, everything.

Ways to make it better...

none it was perfect.

In my opinion, the biggest challenges facing this organization are...

If it grows then they won't get the personal attention unless they get others that have had it to be responders, educated responders, perhaps physicicans, or some people like that.

One thing I'd also say is that...

HONESTLY THIS SITE SAVED MY EMOTIONAL STATE SO MANY TIMES, they make you feel like your normal again, like there are others feeling the same way.

When was your last experience with this nonprofit?

2009

July 28, 2009

more

July 28, 2009

Over the last two years, I have battled melanoma. This sight was a god-send for me. I had thought I was the only one with this type of cancer and no one could provide me with support or answers to my questions. The MIF was not only there for me on-line, but I was able to call from another country (Canada) and receive immediate caring and kind assistance and follow up. I just can't say enough about the mental support and accurate information that was available.

The Great!

I've personally experienced the results of this organization in...

the amount of awareness and activities that they have provided.

Ways to make it better...

If I had to make changes to this organization, I would...

work to unite the different melanoma organizations to come together to raise awareness and funds to fight the disease.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

is their willingness to help us anytime and to follow up with me to see how I am doing. Catherine Poole is one amazing person.

The kinds of staff and volunteers that I met were...

unbelievable. Kind, interested, sharing and well-informed.

If this organization had 10 million bucks, it could...

put a great deal more resources into research and after care support for patients and families.

Ways to make it better...

The website forum was a bit easier to follow the conversation.

In my opinion, the biggest challenges facing this organization are...

funding and reducing the duplication of efforts of so many other organizations.

One thing I'd also say is that...

without their selfless efforts, I don't know that I would be as far along as I am today.

When was your last experience with this nonprofit?

2009

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