Melanoma International Foundation

Rating: 4.81 stars   154 reviews

Issues: Cancer

Location: 250 Mapleflower Rd Glenmoore PA 19343 USA

Mission: To reduce the burden and bring understanding to the journey of melanoma. Through our helpline, online forum, and personal email, we help thousands of patients who are diagnosed with melanoma.
Programs: 1. Patient Outreach: helpline, forum, email assistance to over 5000 patients a year2. Send out our book and other educational materials to thousands.3. Educate: k-8, Save Your Skin Pledge for tanning salon prevention, lunch and learn webinars for early detection to many corporate entities.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I was diagnosed with Stage IV melanoma last June in 2010. MIF was great in guiding me through the steps towards the right treatment and consultation with Doctors.

They also helped me financially with a small grant which help me pay for one of my trips to see my Oncologist.

MIF is a great source for information, support and guidance through the whole process.

I've personally experienced the results of this organization in...

Amazing! people...amazing service and support!

If I had to make changes to this organization, I would...

N/A

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Rating: 5 stars  

I am a stage 4 melanoma patient who has lived for each update that I receive from this group. I have met several people here that I have never met but are a strong part of my team to beat this cancer. I have had the pleasure of meeting one that moved from ND and now lives in Florida. She has become as close to me as any sister I could ever have. All because of this site.

I've personally experienced the results of this organization in...

Being able to know what side effects to expect and possible new trials coming up.

If I had to make changes to this organization, I would...

Do nothing. I really appreciate it.

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Rating: 5 stars  

MIF is the site of choice for people diagnosed with melanoma and for their loved ones. The information is up to date,accurate and provides a balance of individual experiences with information on the latest research/treatments. It is here that I come for information that our oncologist cannot give us (I think he is concerned that every case is unique and his answers would only be speculative) and it is here that I am heartened and saddened by peoples experiences but I am constantly amazed at the resiliency of cancer sufferers. MIF is a community of care and personal expertise. It is our lifeline to discuss this terrible disease with people who share it, treat it, have been through it and who can intimately relate to the life changing course of this diagnosis.

I've personally experienced the results of this organization in...

I rely on this organization for information and hope.

If I had to make changes to this organization, I would...

I would make no changes except perhaps to increase the amount of text you can use in the forum section of the website.

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Rating: 5 stars  

MIF is just amazing.

Unbelievably helpful and they really help to keep melanoma patients and their loved ones positive and upbeat.

This website and Catherine and her counselors are just outstanding.

John

I've personally experienced the results of this organization in...

Yes, my wife had a melanoma removed and had numeours other related scares. They have been a tremendous help throughout.

If I had to make changes to this organization, I would...

I wouldnt

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Rating: 5 stars  

MIF was an absolute lifesaver when when I was diagnosed with melanoma in 2010. I received tremendous support on the boards, was able to educate myself with all of the current research and facts on the site and even spoke to and emailed with Catherine. I was blown away by her care and response. I continue to read the boards daily.

I've personally experienced the results of this organization in...

Support, education, empowerment- the list goes on and on!

If I had to make changes to this organization, I would...

none

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Internet search

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

When I was diagnosed a year ago, I was told I had an early melanoma and was going to be fine. I always thought Melanoma had one outcome. No one gave me the background information I needed. I paniced after surfing the web. UNTIL I found MIF. They helped me put it in perspective and understand all the ins and outs of pathology reports, future risk and even what follow up I should receive. Most importantly, the forum helped me feel less alone when everyone else in my life kept saying "it's just skin cancer". It is so reassuring to know that my feelings were a normal part of the process and there are others out there going through the same thing. I stick around now to help reassure newly diagnosed patients since I was in their shoes and know how scary those first few weeeks can be. Knowledge is power and peace of mind, and Catherine and her staff provide that and much more!

I've personally experienced the results of this organization in...

education and support

If I had to make changes to this organization, I would...

provide more videos for educational purposes.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

web search

What, if any, change in your life has this group encouraged?

To relax and live in the moment. Also to remember I am not a statistic.

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

Catherine is the GREATEST ! She took a personal interest in me--helped connect me with an expert oncologist-and generally held my hand(remotely) as I journeyed through the battle of melanoma. Believe the organization is one of the best for helping and guiding melanoma patients !

I've personally experienced the results of this organization in...

guidance and some financial

If I had to make changes to this organization, I would...

none

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1 previous review
Rating: 5 stars  

5 people found this review helpful

I started my fight against melanoma 5 years ago and the information and support I received form MIF has been outstanding. Catherine has spoken with me on several occasions and been a friend to me as well as given excellent advice.

I've personally experienced the results of this organization in...

information distributed.

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

personal touch.

Ways to make it better...

more information was available.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-4-01

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Rating: 5 stars  

7 people found this review helpful

I was diagnosted with Melanoma in 2006. After my surgery and subsequent healing I found Melanoma International. Catherine Poole and the others that I speak with on the Forum have been tremendously supportive and I always feel like I know what I'm going through. It's such a great place to just discuss your fears or your hopes. The section for new diagnosis is super to help guide you through this new and sometimes terrifying diagnosis. I try to recommend this site to anyone that has Melanoma or has a family member affected by Melanoma

I've personally experienced the results of this organization in...

the support from Catherine and all the other contributors.

What I've enjoyed the most about my experience with this nonprofit is...

discussing my issues with others who understand.

The kinds of staff and volunteers that I met were...

wonderful and supportive!

If this organization had 10 million bucks, it could...

REALLY get its message out there and maybe lobby against the tanning bed usage that is pushing up the melanoma occurences in young people!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

8 people found this review helpful

I have advanced melanoma, and my wife first found MIF on the web. I soon started participating in one of the forums online, and found it extremely helpful, not only emotionally, but professionally. The director, Catherine Pool, called me and discussed my situation, offering phone contacts with leading experts in the field. I used them, and got in a very hopeful and beneficial clinical trial. Because she has a professional advisory board, she is able to give people excellent online advice as to where to seek hopeful treatment and clinical trials. That is perhaps a specialty, encouraging patients with advanced disease to get in hopeful trials, which is important for them, and for the development of good new treatments for the public. Education on sun damage is another emphasis.

I've personally experienced the results of this organization in...

Alterted to a new clinical trial that may be saving my life.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Role: Client Served
Rating: 5 stars  

9 people found this review helpful

Searching the web for info--I came across MIF and contacted them via E-mail--Catherine called me shortly after receiving my message and talked with me for quiet a while--she suggested a 2nd opinion and helped with transportation --what a blessing! This is a great organization !!

If this organization had 10 million bucks, it could...

Help a lot more Melanoma patients

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009-1-01

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