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June 9, 2011

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June 9, 2011

My father was diagnosed with Melanoma in early 2009 in China. As Melanoma is relatively rare disease in China, few doctors and pateint communities know about this disease not to mention the effective treatments. We felt very powerless, confused and helpless at the beginning. We turned to Melanoma International Foundation founder Katherine Poole for help after reading about her book about Melanoma in China. Katherine and her foundation community are very kind and helpful. They offer valuable information, provide guidance, even go to the great length to educate doctors in China about the pros and cons of various treatment options. Their help and online service really enpower the patients in China and around the world.

The Great!

I've personally experienced the results of this organization in...

helping my father understand better about Melanoma and making informed decision about the treatment path.

Ways to make it better...

If I had to make changes to this organization, I would...

promote this foundation to more melanoma patients around the world

June 9, 2011

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June 9, 2011

Melanoma Survivor-Stage 3. I have turned to MIF many times for information and I have found that their Web site is the most accurate and up to date. Their hosted bulletin board allows you to connect with other patients and caregivers while still providing accurate information.

The Great!

I've personally experienced the results of this organization in...

I have learned about my diagnosis. I have learned about possible treatments. I continue to follow medical advancements. I connect with fellow patients.

Ways to make it better...

If I had to make changes to this organization, I would...

add the ability to sort discussions by date it was originally added to the bulletin board.

June 9, 2011

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June 9, 2011

This organization provides much needed support and informationthat otherwise would not be found. They are wonderful.

The Great!

I've personally experienced the results of this organization in...

In my own life and helping find effective treatments for my mom.

Ways to make it better...

If I had to make changes to this organization, I would...

Help more people know about them and their cause.

June 9, 2011

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June 9, 2011

Very caring professionals and great advice, coaching and counseling. Words can't describe what a great foundation MIF Int'l is.

The Great!

I've personally experienced the results of this organization in...

Understanding risk and prevention around skin cancer better than the guidance you get at your Doctor's office

Ways to make it better...

If I had to make changes to this organization, I would...

help them grow further. Excellent staff and service.

June 9, 2011

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June 9, 2011

I was diagnosed with Stage IV melanoma last June in 2010. MIF was great in guiding me through the steps towards the right treatment and consultation with Doctors.

They also helped me financially with a small grant which help me pay for one of my trips to see my Oncologist.

MIF is
a great source for information, support and guidance through the whole process.

The Great!

I've personally experienced the results of this organization in...

Amazing! people...amazing service and support!

Ways to make it better...

If I had to make changes to this organization, I would...

N/A

June 9, 2011

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June 9, 2011

I am a stage 4 melanoma patient who has lived for each update that I receive from this group. I have met several people here that I have never met but are a strong part of my team to beat this cancer. I have had the pleasure of meeting one that moved from ND and now lives in Florida. She has become as close to me as any sister I could ever have. All because of this site.

The Great!

I've personally experienced the results of this organization in...

Being able to know what side effects to expect and possible new trials coming up.

Ways to make it better...

If I had to make changes to this organization, I would...

Do nothing. I really appreciate it.

June 8, 2011

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June 8, 2011

MIF is the site of choice for people diagnosed with melanoma and for their loved ones. The information is up to date,accurate and provides a balance of individual experiences with information on the latest research/treatments. It is here that I come for information that our oncologist cannot give us (I think he is concerned that every case is unique and his answers would only be speculative) and it is here that I am heartened and saddened by peoples experiences but I am constantly amazed at the resiliency of cancer sufferers. MIF is a community of care and personal expertise. It is our lifeline to discuss this terrible disease with people who share it, treat it, have been through it and who can intimately relate to the life changing course of this diagnosis.

The Great!

I've personally experienced the results of this organization in...

I rely on this organization for information and hope.

Ways to make it better...

If I had to make changes to this organization, I would...

I would make no changes except perhaps to increase the amount of text you can use in the forum section of the website.

June 8, 2011

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June 8, 2011

MIF is just amazing.

Unbelievably helpful and they really help to keep melanoma patients and their loved ones positive and upbeat.

This website and Catherine and her counselors are just outstanding.

John

The Great!

I've personally experienced the results of this organization in...

Yes, my wife had a melanoma removed and had numeours other related scares. They have been a tremendous help throughout.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldnt

June 7, 2011

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June 7, 2011

MIF was an absolute lifesaver when when I was diagnosed with melanoma in 2010. I received tremendous support on the boards, was able to educate myself with all of the current research and facts on the site and even spoke to and emailed with Catherine. I was blown away by her care and response. I continue to read the boards daily.

The Great!

I've personally experienced the results of this organization in...

Support, education, empowerment- the list goes on and on!

Ways to make it better...

If I had to make changes to this organization, I would...

none

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Internet search

When was your last experience with this nonprofit?

2011

June 7, 2011

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June 7, 2011

When I was diagnosed a year ago, I was told I had an early melanoma and was going to be fine. I always thought Melanoma had one outcome. No one gave me the background information I needed. I paniced after surfing the web. UNTIL I found MIF. They helped me put it in perspective and understand all the ins and outs of pathology reports, future risk and even what follow up I should receive. Most importantly, the forum helped me feel less alone when everyone else in my life kept saying "it's just skin cancer". It is so reassuring to know that my feelings were a normal part of the process and there are others out there going through the same thing. I stick around now to help reassure newly diagnosed patients since I was in their shoes and know how scary those first few weeeks can be. Knowledge is power and peace of mind, and Catherine and her staff provide that and much more!

The Great!

I've personally experienced the results of this organization in...

education and support

Ways to make it better...

If I had to make changes to this organization, I would...

provide more videos for educational purposes.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

web search

What, if any, change in your life has this group encouraged?

To relax and live in the moment. Also to remember I am not a statistic.

When was your last experience with this nonprofit?

2011

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