MELANOMA INTERNATIONAL FOUNDATION

Rating: 4.81 stars   154 reviews

Issues: Cancer

Location: 250 Mapleflower Rd Glenmoore PA 19343 USA

Mission: To reduce the burden and bring understanding to the journey of melanoma. Through our helpline, online forum, and personal email, we help thousands of patients who are diagnosed with melanoma.
Programs: 1. Patient Outreach: helpline, forum, email assistance to over 5000 patients a year2. Send out our book and other educational materials to thousands.3. Educate: k-8, Save Your Skin Pledge for tanning salon prevention, lunch and learn webinars for early detection to many corporate entities.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

MIF and its members have been a source of comfort, inspiration, and most of all information since my melanoma diagnosis almost three years ago.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

When diagnosed with Melanoma the questions I had were numerous and constantly popping into my mind. Thankfully I found this source which allayed some of my concerns and, fortunately for me, allowed me to realize that while I'm by no means "out of the woods", my situation isn't as dire as I immediately assumed it was. I simply didn't understand the prognosis and being able to come to this website with questions and have them answered same day most often was very helpful as my family and I faced this awful disease. I'm now more educated and have even been able to provide guidance to others who were recently diagnosed.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

I think this site is excellent. Catherine Poole the moderator is very informed and up-to-date on the latest treatments and research. She is also very kind, caring and supportive towards the patients and caregivers. I used this site almost daily after my brother, Wes, was diagnosed with Stage IV Melanoma in 2008. Catherine and the others on the site provided my family with wonderful information, support and encouragement. I will always take comfort in this.

I've personally experienced the results of this organization in...

Yes, because this organization provided invaluable support, guidance and information to me when my brother Wes was undergoing various treatments for Stage IV Melanoma.

If I had to make changes to this organization, I would...

I was somewhat disappointed that Catherine Poole wasn't as keen as I was on the cutting edge genome sequencing as I was. BUT I plan on having another conversation with her in light of the recent pulicity surrounding this topic. This however, is not at all a complaint, but just a matter of different information and experiences. I really cant think of any changes that are needed to the MIFF. As stated earlier I had only positive experiences.

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Rating: 4 stars  

I am a melanoma survivor. When I was first diagnosed I found this terrific organization and they have helped me to connect with fellow melanoma patients, research physicians and treatment options, and kept me abreast of activities surrounding this challenging disease. Their publication and email information is helpful, interesting and current.

I've personally experienced the results of this organization in...

the terrific information and resources they provide.

If I had to make changes to this organization, I would...

Have them provide information on activities going on in other parts of the country, specifically St. Louis where I live.

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Rating: 5 stars  

The forums were an enormous help when my brother was first diagnosed with stage IV metastatic melanoma. The users and moderator (Catherine Poole) supplied a wealth of knowledge about the most current clinical trials which were his only hope at the time. Feedback was quick and accurate.

I've personally experienced the results of this organization in...

My brother had metastaic melanoma and this organization was a huge place of comfort and support for me during his illness.

If I had to make changes to this organization, I would...

None

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Rating: 5 stars  

The MIF has been a huge psychological support for me, as well as the go to place when I want information on melanoma. I am always telling my doctors about this site. When they are impressed because of the knowledge I have, I give credit to the MIF.

I've personally experienced the results of this organization in...

This organization offers support and information.

If I had to make changes to this organization, I would...

There are no changes that I can think of.

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Rating: 5 stars  

MIF has been a wonderful source of accurate and reliable information for myself and my dealings with melanoma. I can honestly say the information and people found on this site are the best and without a doubt helped me cope with my two brushes with melanoma (both were diagnosed as "in situ).

The information is current and dead on accurate. The supportive forums are my lifelines. As any person who has heard the word "cancer" mentioned to them as a diagnosis will tell you, you need support and encouragement as much as you need the actual medical treatments.

Catherine Poole and her group are always available to answer questions on line or if you need more information she will also reach out to you personally. As a skin cancer survivor, she knows first hand what all of us are going through. She has blazed a skin cancer trail for others and I am grateful that she has.

I've personally experienced the results of this organization in...

Obtaining reliable and accurate information relating to my specific diagnosis and learning about other types of skin cancer. Their scientific information is accuate and you can feel comfortable with what they tell you. They also help with the emotional impact of a skin cancer diagnosis. They help keep things real and things in perspective.

If I had to make changes to this organization, I would...

I have no significant recommendations other than, KEEP UP THE GREAT WORK!!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Found it while browsing online one day trying to get good information about a skin cancer diagnosis.

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

I am the family researcher. Every family should have one, right? In 2008 my father was was extremely ill; advanced metastatic melanoma. In the process of leaving no stone unturned, I happened upon the Melanoma International Foundation website. I e-mailed Catherine Poole, President of Melanoma International Foundation, directly with some specific questions. She responded immediately, with wisdom and compassion. Her insight and the information she provided at such a desperate time will not be forgotten.

I've personally experienced the results of this organization in...

The thing about the Melanoma International Foundation is that they truly serve Melanoma patients and their families. They respond quickly, via e-mail and/or the telephone, they are 100% abreast of the latest developments in Melanoma treatment, they educate so that others may get the best possible care for their circumstances, and they do all of this without compensation. They are true patient advocates.

If I had to make changes to this organization, I would...

I have referred family and friends to Melanoma International Foundation. They have responded directly and with valuable information. I cannot speak highly enough of this organization. Please support this organization financially so they can keep doing what they do!

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Rating: 5 stars  

I am so grateful to have found Melanoma International Foundation on the internet. Connecting with others who are battling this disease has helped me in dealing with my diagnosis. Also, the moderators do an amazing job of making sure that accurate information is shared. It has been a valuable tool in my education about Melanoma.
Having Melanoma experts so available and willing to respond to questions has been truly amazing. Such a comfort when facing a life threatening disease.

I've personally experienced the results of this organization in...

I've become a smarter patient more able to advocate for my own care because of the information available through MIF

If I had to make changes to this organization, I would...

Support it financially and help it become more easily found by others facing Melanoma.

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Rating: 5 stars  

I found the Melanoma Foundation after just being diagnosed. I was not under general care, so was not receiving any kind of feedback from the surgeon who had removed the malignancy. After thirty days I had an appointment only to find I was being sent for further testing which they would receive within two days and I would have to wait another 30!!!! I requuested a copsy of my lab work and quicly submitted the info online to the Melanoma Foundation. Thank goodness I did! They were quick to tell me I was a low risk, and explain the results to me. Since my surgeon had zero compassion or bed side manner (this is not his specialty) and found it acceptible for me to live three months before giving me the all clear I was releived to talk/chat to other individuals going through the same thing as well as get some professional council on my results! I am happy to report that I feel I have made true friends on this website, and still communicate with some to this day. In addition I visit occasionally to lend my support to other newly diagnosed individuals. This site was a true blessing in my life at a time when it was so needed. God bless the individuals that spend their time to keep it up and runnin!

I've personally experienced the results of this organization in...

I live in Canada and was feeling very lost and alone!

If I had to make changes to this organization, I would...

I know of nothing I would personally change and am thankful to have found them!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Google

What, if any, change in your life has this group encouraged?

Support support support. I could post today and know I would receive support again at any time needed.

When was your last experience with this nonprofit?

2011

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