Since I first googled melanoma upon learning of my husband's diagnosis, the Melanoma International Foundation has been a source of information and support. Armed with the experiences of many others diagnosed with Stage III melanoma, my husband and I were able to intelligently challenge the direction we were given from his plastic surgeon and enabled to select a health care facility that was a Center of Excellence for Melanoma. My husband's melanoma has unfortunately progressed since I first found the MIF forum website but it continues to give us the help we have needed to make intelligent decisions about which treatment path to follow. Right now, Melanoma research is happening at a break-neck clip and being able to learn of other Melanoma patients first hand experience with brand new drugs has helped us feel like we are in control of this awful disease. MIF provides invaluable support for people with melanoma and thie families.
MIF has been very helpful in providing information during my sister's journey and subsequent death from melanoma. Our family has participated as a team in the annual MIF walk at Villanova University for the last 4 yrs. We have shared information about this excellent organization with other friends, relatives, coworkers and neighbors. The website is a great resource patient's, families and health care providers. It serves as a reliable information source which highlights the scope of this devastating disease .
As a mother of a child diagnosed with metastatic melanoma stage IV, I searched for all information available to help with our future journey. This web site for melanoma patients, caregivers and doctors was the best find possible. It carries the most current information from research around the globe with access to all selected articles. It also offers a forum for patients at various stages and one for caregivers like myself. My family has used this site to find the doctors and research available to us and have called and visited each of them. We do believe that this site has given us the tools to help our loved one continue her fight against this disease.
When my 34 year old son was diagnosed with stage IV melanoma I was shocked, terrified, and frantic. I found the Melanoma Internantional Foundation site on the internet and started reading. Almost at once I realized it was a highly acedemic yet user-friendly site. Catherine Poole, the founder, president, and a melanoma survivor personally counseled me on the phone when I posted my first blubbering, disjointed questions. I love that so many melanoma warriors and survivors post and counsel along with notable and reknown melanoma oncology specialists . The site is monitored for inaccurate information and filtered immediately. I am always confident in the quality and accuracy of the information I find on the site. The webinars are up to date and always on the cutting edge of any new findings in the melanoma world. I feel like I am making friends and building true relationships at MIF. The sincerity of the staff and bloggers is heart-felt and truely appreciated. I recommend the site anytime I can fit it into a conversation. Cindy Lock, Holyoke, Colorado
I was recently diagnosed and treated with a stage II melanoma. I was fortunate enough to stumble upon the MIF website through a search on the internet. I attended the recent 5K run at Villanova University which was fun, inspiring and informative, It was great feeling that your part of a family and not alone. I got a lot of great samples and information to keep me connected and educated. I also have posted questions on their forums. it nice not only to get professional answers but answers from real life survivors that have been down this road already. Keep up the great work.
Misdiagnosed by GP's for for 3 1/2 years. Slow rolled by General surgeon for 8 months after being diagnosed with melanoma. Went to Stage IV before learned of this site. That was overf 5 years ago. I am still here at stage IV and not NED. Catherine Poole is an amazing lady that helps us understand what this disease is and how to work it.
Melanoma International Foundation is an outstanding organization dedicated to helping patients and families of those afflicted with melanoma. Their forums and educational resources are invaluable. The forums were especially helpful in finding trials for new medications for melanoma.
I was diagnosed with melanoma and found myself under-informed overwhelmed with emotions and knew no one else who had melanoma. The MIF web site provided me with a source of credible current information and a communication mechanism to others. It was an important resource to see me through the first six months. I try and return the favour by sharing my experiences and giving support to others
My sister was diagnosed with Stage 4 Melanoma. After consulting with 3 doctors at 3 different hospitals, we were given 3 very different treatment recommendations. We used this site extensively to help understand the options and experiences of other melanoma patients. I believe will made the right choice after doing this research, particularly the information contained on this site. Questions most often are answered within a few hours, many times by Dr. Poole.