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154 Reviews
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October 27, 2014
3 people found this review helpful

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2 previous reviews - show all
June 24, 2010

I started out as a client served. My husband found this great organization almost 4yrs ago while desperately searching for answers after receiving my stage IIIC diagnosis. Catherine spent many hours... more

October 27, 2014
3 people found this review helpful

Nothing but praise for this organization. As a stage IIIC survivor for 8 yrs. My husband called Catherine in the middle of the night looking for answers and was treated with kindness and respect.
When I recurred at my 3 yr mark she was one of the first people I called. She was more
knowledgeable about some of the trials than my own doctors. She was always willing to search for answers from one of the advisory board drs if she was unable to answer a question herself.
We really feel she was our guardian angel.
June 24, 2010
1 person found this review helpful

I started out as a client served. My husband found this great organization almost 4yrs ago while desperately searching for answers after receiving my stage IIIC diagnosis. Catherine spent many hours on the phone with us during our most difficult times and offered us accurate information and much needed support. I became involved in the forums when she started them, and have watched them grow into a place where people come from all over the world for support and accurate information. Although I'm currently doing well, she was the first person I turned to when I had my recur last summer. I know she works hard to keep informed of the latest developments. Great Job MIF! Shirley Z

The Great!

I've personally experienced the results of this organization in...

My battle with melanoma, and the contributions she so willing makes to the forums answering questions and supplying accurate information.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

July 29, 2009

I was diagnosed in 2006 with stage IIIC melanoma. My husband found this site and we were so impressed by the immediate outpouring of information and compassion by Catherine Poole. She answered her own hotline and stuck by us during every step of our battle. We know that we can receive accurate and reliable information because the cite is hon code approved. This means alot.

The Great!

I've personally experienced the results of this organization in...

The many events that they work so hard to sponsor to bring about awareness of melanoma. The sense of caring and accurate advise people receive when visiting the forums. I'm proud to be a part of this wonderful community.

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What I've enjoyed the most about my experience with this nonprofit is...

The genuine caring . The accuracy of the information.

The kinds of staff and volunteers that I met were...

Wonderful!

If this organization had 10 million bucks, it could...

Continue with the mission that they do so well. Perhaps be able to raise even more awareness.

When was your last experience with this nonprofit?

2009

October 27, 2014
2 people found this review helpful

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October 27, 2014
2 people found this review helpful

My sister has been fighting melanoma for many years. She is a highly intelligent nurse practitioner and her husband is a doctor. They have made it their life's work to investigate treatments for this disease and pass that information on to those in need. She does that through a blog and also through forums such as MIF. If she notices an inaccurate statement concerning these treatments, she will address it with the assumption that others share her concerns. However, the founder of this site apparently does not agree with this premise. In fact, she appears to have ulterior motives. My sister corrected a grossly inaccurate statement made by the founder about the success rate of one treatment option. Instead of being appreciative that this mistake could be corrected, the founder of this site was extremely rude. This is not the first time she treated my sister poorly on this site. I made a post expressing my disappointment. This post was promptly removed and I was "banned for life" from the site. She also removed an entire thread soliciting reviews for this site. I do not feel that the founder has other's best interest at heart.
October 24, 2014
3 people found this review helpful

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October 24, 2014
3 people found this review helpful

Thank you Catherine Poole and MIF. You are an invaluable resource for all melanoma patients, Stages I through IV. The support provided by the forum is wonderful and the information Catherine and her board provides is the most up to date information a melanoma patient can hope for.
October 24, 2014
3 people found this review helpful

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October 24, 2014
3 people found this review helpful

15 months ago, I was diagnosed with Stage IIIc melanoma. After speaking with various doctors and melanoma specialists, I found MIF and Catherine Poole. What a godsend! This resource has been invaluable to me and my family for advice, support, and guidance. I wish I could give it 10 stars.
October 23, 2014
2 people found this review helpful

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October 23, 2014
2 people found this review helpful

I was diagnosed with a melanoma on my cheek just a year ago this coming week. As I did my research on the Internet I came across the melanoma international foundation and Catherine Poole. They helped me find the right doctor and gave me great advice in dealing with my treatment. I had a successful surgery and one year later I am doing great and feeling great. Melanoma international foundation helped me get thru a difficult time.
October 3, 2014

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October 3, 2014

The MIF Online Forum was a great help to me by providing accurate information and emotional support when I was first diagnosed with melanoma. The site is very well moderated. Members are free to speculate about treatments, but misinformation is never allowed to remain on the site. It's a supportive, safe environment and I am certain it has actually saved a number of lives via the accurate info-sharing it facilitates. Kudos to MIF for hosting this excellent and essential forum!
October 27, 2013

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October 27, 2013

During my biopsies and treatment period IMF was very helpful and informItive.


I want to thank them for their time in answering my questions.

Sincerely,

Frank

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

August 23, 2013

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August 23, 2013

I was diagnosed in 2011 with stage IV unkown primary. The information I was reading was devastating on line until I found this website. It gave me hope and knowledge. Anytime I am feeling overwhelmed I get reassurance that I am doing the right things and the most up to date therapies etc. Thank you for giving this mom of 4 boys hope!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 10, 2013

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June 10, 2013

MIF rocks! The site contains info on incredibly Cutting edge treatments, trials, and resources. The knowledgable, caring and supportive advisors and moderator are phenomenal. There is even a separate forum for care givers. The comraderie is outstanding.

Ways to make it better...

If I had to make changes to this organization, I would...

Can't think of a single thing.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 10, 2013

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June 10, 2013

I am so blessed to have discovered MIF. I am a caregiver and found their forum board to be an active wealth of information. and, Catherine Poole is always so prompt to point people in the right direction to get answers if they can't find answers there on the forum. Catherine gave me the contact information and informed me about a clinical trial for my partner who was going down hill quickly and my partner's own melanoma specialist didn't even know where trials were. Within a few weeks she was on the trial and has been doing so much better. I feel this is one non profit that is large enough to be helpful, but has kept true to its mission in that they are attentive to the individual. They are personable, caring, professional and you really feel like you have an advocate. I can't describe what a difference MIF has made in our journey.

Ways to make it better...

If I had to make changes to this organization, I would...

Can't think of any.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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