This is a wonderful organization that truly puts the patient first in all that they do. I have had the pleasure of volunteering at many of the annual Safe From The Sun walk/5k events, and witnessed so many patients inspired to fight together against this terrible disease. I cannot wait for the next event!
When first diagnosed with Stage2 Melanoma I,like most others turned to the Internet. I was looking for info but also looking for patients. I found a few but this seemed superior to others. There was a moderator(Catherine Poole), there was scientific advisors and it followed the honor code. I have since become Stage 4 and the info I need is found with other posts and Catherine helping suggest trials for patients. The site is current, and very User friendly. It helps to have a Melanoma family. Nobody understands like the people walking in your shoes! Catherine Poole has made this work just like it should.
MIF is an invaluable source for Melanoma Patients. I found the site soon after being diagnosed with Stage 2 and continue to use it since progressig to Stage 3. The info on the site is reliable and the emotional support from other members has helped me through some hard times. Catherine is always there with an answer when needed.
MIF is an exceptional source of information and support for Melanoma patients and provides much-needed and always up-to-date information in a cancer without established standard of care. The last years have brought a novel therapies in Melanoma and staying informed is already difficult for medical doctors, let alone patients in an emotionally challenging situation. In a disease with many options but few defined ways, information is key. The MIF webinars are simply impressive, easy to understand primers on the latest of what's going on in Melanoma. The forums have been valuable for us time over time- to discuss treatment options, how to deal with side effects and also the emotional impact of being diagnosed with a disease with such poor prognosis. Despite the grim setting, the foundation's approach is positive and pro-active (e.g. the matching grants to support Melanoma research) which distinguishes them from other websites. Catherine Poole, the founder, is an impressive and never-tiring presence who does not hold back to personally reach out to Melanoma experts to help a specific patient. We have made (first virtual, then real) friends over this website. Melanoma is terrible but having a place like MIF was simply wonderful.
My wife has advanced muscosal melanoma. Catherine Poole and everybody on the Stage 4 and Caregivers forums have been of tremendous support and encouragement. They are truly my brothers and sisters with Catherine our big sister. We care, support and coach each other without hesitation. The best cancer forum Im proud to be a member of. JeffB
I was diagnosed with Clark level III/IV in 2006 depth .43...so I guess u could say I'm one of the lucky ones I've been told. I've had 3 PetCt since some showed hot spots in my jaw/juggler /and cortid but have all subsided on there own, except the one on my parotid still remains at 2.9. My oncologist seems to feel as long as it dose t act up its best to leave well enough alone. I did not do Chemo nor did I have my nodes cked due to I was old about elephantiasis. The melanoma was taken from my left inner thigh. After several months of complaints of left groin pain. Ultra sound of left groion showed mild inflammation in a fewnode but nothing to be ''concerned'' about. So here I am, waiting on the as we all know 7-10yr recurrance issue. Somewhat scary if ask me since I haven't been scanned in 4 yrs now. I do go for my regular screenings and I'm on number 17 for Basel Cell Carcinomas. Tell me am I just being parinoid about thinking it might be time for another PetScan...???
As a stage 4 melanoma patient, interacting with other patients and caregivers to share information about treatments and research options is essential. The Melanoma International Foundation provides this much-needed experience through its dedicated patient and caregiver forums, allowing people everywhere to connect with each other and share knowledge, experience, and hope. There are not a lot of treatment options for us, and survival statistics are poor. It is easy to lose hope. Being able to easily connect with others going through the same experience has been a key component of my emotional stability during this journey. Without the advice and support of others, I would be lost and alone. The Melanoma International Foundation is a wonderful, caring, supportive organization. I don't know what I would do without it. It deserves every recognition possible.
The Melanoma International Foundation is a wondeful organization. The individuals involved are truly the most caring people you'll ever meet.