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September 5, 2012

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September 5, 2012

MIF is an exceptional source of information and support for Melanoma patients and provides much-needed and always up-to-date information in a cancer without established standard of care. The last years have brought a novel therapies in Melanoma and staying informed is already difficult for medical doctors, let alone patients in an emotionally challenging situation. In a disease with many options but few defined ways, information is key. The MIF webinars are simply impressive, easy to understand primers on the latest of what's going on in Melanoma. The forums have been valuable for us time over time- to discuss treatment options, how to deal with side effects and also the emotional impact of being diagnosed with a disease with such poor prognosis. Despite the grim setting, the foundation's approach is positive and pro-active (e.g. the matching grants to support Melanoma research) which distinguishes them from other websites. Catherine Poole, the founder, is an impressive and never-tiring presence who does not hold back to personally reach out to Melanoma experts to help a specific patient. We have made (first virtual, then real) friends over this website. Melanoma is terrible but having a place like MIF was simply wonderful.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 17, 2012

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August 17, 2012

My wife has advanced muscosal melanoma. Catherine Poole and everybody on the Stage 4 and Caregivers forums have been of tremendous support and encouragement. They are truly my brothers and sisters with Catherine our big sister. We care, support and coach each other without hesitation. The best cancer forum Im proud to be a member of. JeffB

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

July 15, 2012

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July 15, 2012

I was diagnosed with Clark level III/IV in 2006 depth .43...so I guess u could say I'm one of the lucky ones I've been told. I've had 3 PetCt since some showed hot spots in my jaw/juggler /and cortid but have all subsided on there own, except the one on my parotid still remains at 2.9. My oncologist seems to feel as long as it dose t act up its best to leave well enough alone. I did not do Chemo nor did I have my nodes cked due to I was old about elephantiasis. The melanoma was taken from my left inner thigh. After several months of complaints of left groin pain. Ultra sound of left groion showed mild inflammation in a fewnode but nothing to be ''concerned'' about. So here I am, waiting on the as we all know 7-10yr recurrance issue. Somewhat scary if ask me since I haven't been scanned in 4 yrs now. I do go for my regular screenings and I'm on number 17 for Basel Cell Carcinomas. Tell me am I just being parinoid about thinking it might be time for another PetScan...???

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

None

Did the organization use your time wisely?

Okay

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

July 13, 2012

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July 13, 2012

As a stage 4 melanoma patient, interacting with other patients and caregivers to share information about treatments and research options is essential. The Melanoma International Foundation provides this much-needed experience through its dedicated patient and caregiver forums, allowing people everywhere to connect with each other and share knowledge, experience, and hope. There are not a lot of treatment options for us, and survival statistics are poor. It is easy to lose hope. Being able to easily connect with others going through the same experience has been a key component of my emotional stability during this journey. Without the advice and support of others, I would be lost and alone. The Melanoma International Foundation is a wonderful, caring, supportive organization. I don't know what I would do without it. It deserves every recognition possible.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 8, 2013

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2 previous reviews - show all
June 9, 2011

MIF is an invaluable source for Melanoma Patients. I found the site soon after being diagnosed with Stage 2 and continue to use it since progressig to Stage 3. The info on the site is reliable and the... more

June 8, 2013

When first diagnosed with Stage2 Melanoma I,like most others turned to the Internet. I was looking for info but also looking for patients. I found a few but this seemed superior to others. There was a moderator(Catherine Poole), there was scientific advisors and it followed the honor code. I have since become Stage 4 and the info I need is found with other posts and Catherine helping suggest trials for patients. The site is current, and very User friendly. It helps to have a Melanoma family. Nobody understands like the people walking in your shoes! Catherine Poole has made this work just like it should.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 9, 2011

MIF is an invaluable source for Melanoma Patients. I found the site soon after being diagnosed with Stage 2 and continue to use it since progressig to Stage 3. The info on the site is reliable and the emotional support from other members has helped me through some hard times. Catherine is always there with an answer when needed.

The Great!

I've personally experienced the results of this organization in...

helping with treatment decisions

Ways to make it better...

If I had to make changes to this organization, I would...

none

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

June 24, 2010

MIF has helped me through a very difficult time. With the help of this site I have been able to make informed decisions about my treatment. When I feel anxious and alone I know I can get not only the latest info but the emotional support I need by talking to people who have been there.Thank you Catherine for making this site the great place that it is.

The Great!

I've personally experienced the results of this organization in...

Helping me make decisions regarding my treatment

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

August 28, 2009

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August 28, 2009

The Melanoma International Foundation is a wondeful organization. The individuals involved are truly the most caring people you'll ever meet.

The Great!

I've personally experienced the results of this organization in...

Helping at their events

Ways to make it better...

If I had to make changes to this organization, I would...

I can't think of anything.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

They are genuine and follow their mission.

The kinds of staff and volunteers that I met were...

The best!!!

If this organization had 10 million bucks, it could...

Put an end to suffering from Melanoma

Ways to make it better...

I found this organization years ago.

In my opinion, the biggest challenges facing this organization are...

The simple fact that most people love the outdoors and it's difficult to get people to be careful with something they love.

One thing I'd also say is that...

They are real!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

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