MELANOMA INTERNATIONAL FOUNDATION
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July 20, 2012
I was recently diagnosed and treated with a stage II melanoma. I was fortunate enough to stumble upon the MIF website through a search on the internet. I attended the recent 5K run at Villanova University which was fun, inspiring and informative, It was great feeling that your part of a family and not alone. I got a lot of great samples and information to keep me connected and educated. I also have posted questions on their forums. it nice not only to get professional answers but answers from real life survivors that have been down this road already. Keep up the great work.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
July 19, 2012
Misdiagnosed by GP's for for 3 1/2 years. Slow rolled by General surgeon for 8 months after being diagnosed with melanoma. Went to Stage IV before learned of this site. That was overf 5 years ago. I am still here at stage IV and not NED. Catherine Poole is an amazing lady that helps us understand what this disease is and how to work it.
The Great!
I've personally experienced the results of this organization in...
Hope and quality of life.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
How did you find this group?
Luck searching the internet.
What, if any, change in your life has this group encouraged?
To not surrender to what a general oncologist said was a death sentence within 6 months.
July 18, 2012
Melanoma International Foundation is an outstanding organization dedicated to helping patients and families of those afflicted with melanoma. Their forums and educational resources are invaluable. The forums were especially helpful in finding trials for new medications for melanoma.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
July 18, 2012
I am patient and I mentiene in contact with other patients and current treatment options. This page contains me in ways unimaginable.
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Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2012
July 18, 2012
This is the only organizations that offers personalzed help for any issue, concern or matter related to melanoma. The dedicated staff ensures that each person helped is treated with respect. Their knowledge and expertise is incredible which bodes well for helping to navigate any person. I would highly recommend anyone with melanoma, or caring for a loved one with melanoma, reach out to MIF.
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Will you volunteer or donate to this organization beyond what is required of advisors?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2012
July 16, 2012
I had Melenoma in 2007 and the Melenoma International Foundation was exactly what I needed in a time of uncertainty. I was able to get accurate information from people who really cared about what I was going through.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
July 16, 2012
I was amazed and great full for the response that I received regarding this awful disease. The level of professionalism and most importantly I felt like an individual and that someone cared. Catherine is an amazing person and I thank her for her time.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
July 16, 2012
I was diagnosed with melanoma and found myself under-informed overwhelmed with emotions and knew no one else who had melanoma. The MIF web site provided me with a source of credible current information and a communication mechanism to others. It was an important resource to see me through the first six months. I try and return the favour by sharing my experiences and giving support to others
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
July 15, 2012
My sister was diagnosed with Stage 4 Melanoma. After consulting with 3 doctors at 3 different hospitals, we were given 3 very different treatment recommendations. We used this site extensively to help understand the options and experiences of other melanoma patients. I believe will made the right choice after doing this research, particularly the information contained on this site. Questions most often are answered within a few hours, many times by Dr. Poole.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
July 15, 2012
I was diagnosed with Clark level III/IV in 2006 depth .43...so I guess u could say I'm one of the lucky ones I've been told. I've had 3 PetCt since some showed hot spots in my jaw/juggler /and cortid but have all subsided on there own, except the one on my parotid still remains at 2.9. My oncologist seems to feel as long as it dose t act up its best to leave well enough alone. I did not do Chemo nor did I have my nodes cked due to I was old about elephantiasis. The melanoma was taken from my left inner thigh. After several months of complaints of left groin pain. Ultra sound of left groion showed mild inflammation in a fewnode but nothing to be ''concerned'' about. So here I am, waiting on the as we all know 7-10yr recurrance issue. Somewhat scary if ask me since I haven't been scanned in 4 yrs now. I do go for my regular screenings and I'm on number 17 for Basel Cell Carcinomas. Tell me am I just being parinoid about thinking it might be time for another PetScan...???
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
None
Did the organization use your time wisely?
Okay
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2011
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