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138 Reviews
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June 9, 2011

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June 9, 2011

The Melanoma Internation Foundation supported my family by helping me understand my husbands diagnosis. Catherine was so informative along with everyone that chimed in with answers to my questions. If it wasn't for MIF I would not have know what to expect or even the right questions to ask. The website is a God Send.

The Great!

I've personally experienced the results of this organization in...

Getting the answers that I was looking for and couldn't find anywhere else.

Ways to make it better...

If I had to make changes to this organization, I would...

There isn't one thing that I would change.

June 8, 2011

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June 8, 2011

This is a wonderful site and a relief to have when dealing with this disease. Members are informative, supportive, and quick to respond to new member postings. It has been an incredible resource for me and my family.

The Great!

I've personally experienced the results of this organization in...

the last year this organization has been very helpful in dealing with a new diagnosis.

Ways to make it better...

If I had to make changes to this organization, I would...

add links to leading melanoma cancer center research pages from around the world.

June 8, 2011

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June 8, 2011

MIF is the site of choice for people diagnosed with melanoma and for their loved ones. The information is up to date,accurate and provides a balance of individual experiences with information on the latest research/treatments. It is here that I come for information that our oncologist cannot give us (I think he is concerned that every case is unique and his answers would only be speculative) and it is here that I am heartened and saddened by peoples experiences but I am constantly amazed at the resiliency of cancer sufferers. MIF is a community of care and personal expertise. It is our lifeline to discuss this terrible disease with people who share it, treat it, have been through it and who can intimately relate to the life changing course of this diagnosis.

The Great!

I've personally experienced the results of this organization in...

I rely on this organization for information and hope.

Ways to make it better...

If I had to make changes to this organization, I would...

I would make no changes except perhaps to increase the amount of text you can use in the forum section of the website.

June 8, 2011

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June 8, 2011

MIF is hands-down THE best melanoma site on the net. This nonprofit is filled with the latest information, it's scientifically solid, and it's compassionate and supportive. I just cannot imagine a better combination. This site is a godsend.

The Great!

I've personally experienced the results of this organization in...

Helping me further understand melanoma and the treatment options.

Ways to make it better...

If I had to make changes to this organization, I would...

? Don't know?

June 8, 2011

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June 8, 2011

MIF is just amazing.

Unbelievably helpful and they really help to keep melanoma patients and their loved ones positive and upbeat.

This website and Catherine and her counselors are just outstanding.

John

The Great!

I've personally experienced the results of this organization in...

Yes, my wife had a melanoma removed and had numeours other related scares. They have been a tremendous help throughout.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldnt

June 7, 2011

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June 7, 2011

MIF was an absolute lifesaver when when I was diagnosed with melanoma in 2010. I received tremendous support on the boards, was able to educate myself with all of the current research and facts on the site and even spoke to and emailed with Catherine. I was blown away by her care and response. I continue to read the boards daily.

The Great!

I've personally experienced the results of this organization in...

Support, education, empowerment- the list goes on and on!

Ways to make it better...

If I had to make changes to this organization, I would...

none

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Internet search

When was your last experience with this nonprofit?

2011

June 7, 2011

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June 7, 2011

When I was diagnosed a year ago, I was told I had an early melanoma and was going to be fine. I always thought Melanoma had one outcome. No one gave me the background information I needed. I paniced after surfing the web. UNTIL I found MIF. They helped me put it in perspective and understand all the ins and outs of pathology reports, future risk and even what follow up I should receive. Most importantly, the forum helped me feel less alone when everyone else in my life kept saying "it's just skin cancer". It is so reassuring to know that my feelings were a normal part of the process and there are others out there going through the same thing. I stick around now to help reassure newly diagnosed patients since I was in their shoes and know how scary those first few weeeks can be. Knowledge is power and peace of mind, and Catherine and her staff provide that and much more!

The Great!

I've personally experienced the results of this organization in...

education and support

Ways to make it better...

If I had to make changes to this organization, I would...

provide more videos for educational purposes.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

web search

What, if any, change in your life has this group encouraged?

To relax and live in the moment. Also to remember I am not a statistic.

When was your last experience with this nonprofit?

2011

May 24, 2011

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1 previous review
July 28, 2009

I started my fight against melanoma 5 years ago and the information and support I received form MIF has been outstanding. Catherine has spoken with me on several occasions and been a friend to me as w... more

May 24, 2011

Catherine is the GREATEST ! She took a personal interest in me--helped connect me with an expert oncologist-and generally held my hand(remotely) as I journeyed through the battle of melanoma. Believe the organization is one of the best for helping and guiding melanoma patients !

The Great!

I've personally experienced the results of this organization in...

guidance and some financial

Ways to make it better...

If I had to make changes to this organization, I would...

none

July 28, 2009

I started my fight against melanoma 5 years ago and the information and support I received form MIF has been outstanding. Catherine has spoken with me on several occasions and been a friend to me as well as given excellent advice.

The Great!

I've personally experienced the results of this organization in...

information distributed.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

personal touch.

Ways to make it better...

more information was available.

When was your last experience with this nonprofit?

2009

July 1, 2010

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July 1, 2010

I was diagnosted with Melanoma in 2006. After my surgery and subsequent healing I found Melanoma International. Catherine Poole and the others that I speak with on the Forum have been tremendously supportive and I always feel like I know what I'm going through. It's such a great place to just discuss your fears or your hopes. The section for new diagnosis is super to help guide you through this new and sometimes terrifying diagnosis. I try to recommend this site to anyone that has Melanoma or has a family member affected by Melanoma

The Great!

I've personally experienced the results of this organization in...

the support from Catherine and all the other contributors.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

discussing my issues with others who understand.

The kinds of staff and volunteers that I met were...

wonderful and supportive!

If this organization had 10 million bucks, it could...

REALLY get its message out there and maybe lobby against the tanning bed usage that is pushing up the melanoma occurences in young people!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 27, 2010

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June 27, 2010

I have advanced melanoma, and my wife first found MIF on the web. I soon started participating in one of the forums online, and found it extremely helpful, not only emotionally, but professionally. The director, Catherine Pool, called me and discussed my situation, offering phone contacts with leading experts in the field. I used them, and got in a very hopeful and beneficial clinical trial. Because she has a professional advisory board, she is able to give people excellent online advice as to where to seek hopeful treatment and clinical trials. That is perhaps a specialty, encouraging patients with advanced disease to get in hopeful trials, which is important for them, and for the development of good new treatments for the public. Education on sun damage is another emphasis.

The Great!

I've personally experienced the results of this organization in...

Alterted to a new clinical trial that may be saving my life.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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