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154 Reviews
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June 22, 2011

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June 22, 2011

I think this site is excellent. Catherine Poole the moderator is very informed and up-to-date on the latest treatments and research. She is also very kind, caring and supportive towards the patients and caregivers. I used this site almost daily after my brother, Wes, was diagnosed with Stage IV Melanoma in 2008. Catherine and the others on the site provided my family with wonderful information, support and encouragement. I will always take comfort in this.

The Great!

I've personally experienced the results of this organization in...

Yes, because this organization provided invaluable support, guidance and information to me when my brother Wes was undergoing various treatments for Stage IV Melanoma.

Ways to make it better...

If I had to make changes to this organization, I would...

I was somewhat disappointed that Catherine Poole wasn't as keen as I was on the cutting edge genome sequencing as I was. BUT I plan on having another conversation with her in light of the recent pulicity surrounding this topic. This however, is not at all a complaint, but just a matter of different information and experiences. I really cant think of any changes that are needed to the MIFF. As stated earlier I had only positive experiences.

June 13, 2011

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June 13, 2011

I am a melanoma survivor. When I was first diagnosed I found this terrific organization and they have helped me to connect with fellow melanoma patients, research physicians and treatment options, and kept me abreast of activities surrounding this challenging disease. Their publication and email information is helpful, interesting and current.

The Great!

I've personally experienced the results of this organization in...

the terrific information and resources they provide.

Ways to make it better...

If I had to make changes to this organization, I would...

Have them provide information on activities going on in other parts of the country, specifically St. Louis where I live.

June 13, 2011

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June 13, 2011

I had a close family friend diagnosed with melanoma and went to the Melanoma International Foundation website to get information and a better understanding of what was he was going through. Unfortunately our friend passed away less than 4 months of being diagnosed but this website was a fantastic resource and very cathartic in assisting me with the loss. MIF also provided insight on how I could avoid melanoma. The personal input by others that had been affected directly or loved ones was great solace during a very trying time. Everyone please put on sunscreen!

The Great!

I've personally experienced the results of this organization in...

using its resources to learn more about melanoma and what to do to assist in avoiding getting melanoma

Ways to make it better...

If I had to make changes to this organization, I would...

get them more funding to spread the word about melanoma

More feedback...

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

Death of close friend to melanoma

Why did you make your donation at this time?

Just learned of the website when I had a friend diagnosed with melanoma

What would you tell others about this organization?

Use it resources and wear sunscreen!

When was your last experience with this nonprofit?

2011

June 13, 2011

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June 13, 2011

The forums were an enormous help when my brother was first diagnosed with stage IV metastatic melanoma. The users and moderator (Catherine Poole) supplied a wealth of knowledge about the most current clinical trials which were his only hope at the time. Feedback was quick and accurate.

The Great!

I've personally experienced the results of this organization in...

My brother had metastaic melanoma and this organization was a huge place of comfort and support for me during his illness.

Ways to make it better...

If I had to make changes to this organization, I would...

None

June 11, 2011

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June 11, 2011

The MIF has been a huge psychological support for me, as well as the go to place when I want information on melanoma. I am always telling my doctors about this site. When they are impressed because of the knowledge I have, I give credit to the MIF.

The Great!

I've personally experienced the results of this organization in...

This organization offers support and information.

Ways to make it better...

If I had to make changes to this organization, I would...

There are no changes that I can think of.

June 11, 2011

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June 11, 2011

MIF has been a wonderful source of accurate and reliable information for myself and my dealings with melanoma. I can honestly say the information and people found on this site are the best and without a doubt helped me cope with my two brushes with melanoma (both were diagnosed as "in situ).

The information is current and dead on accurate. The supportive forums are my lifelines. As any person who has heard the word "cancer" mentioned to them as a diagnosis will tell you, you need support and encouragement as much as you need the actual medical treatments.

Catherine Poole and her group are always available to answer questions on line or if you need more information she will also reach out to you personally. As a skin cancer survivor, she knows first hand what all of us are going through. She has blazed a skin cancer trail for others and I am grateful that she has.

The Great!

I've personally experienced the results of this organization in...

Obtaining reliable and accurate information relating to my specific diagnosis and learning about other types of skin cancer. Their scientific information is accuate and you can feel comfortable with what they tell you. They also help with the emotional impact of a skin cancer diagnosis. They help keep things real and things in perspective.

Ways to make it better...

If I had to make changes to this organization, I would...

I have no significant recommendations other than, KEEP UP THE GREAT WORK!!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Found it while browsing online one day trying to get good information about a skin cancer diagnosis.

When was your last experience with this nonprofit?

2011

June 11, 2011

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June 11, 2011

I am the family researcher. Every family should have one, right? In 2008 my father was was extremely ill; advanced metastatic melanoma. In the process of leaving no stone unturned, I happened upon the Melanoma International Foundation website. I e-mailed Catherine Poole, President of Melanoma International Foundation, directly with some specific questions. She responded immediately, with wisdom and compassion. Her insight and the information she provided at such a desperate time will not be forgotten.

The Great!

I've personally experienced the results of this organization in...

The thing about the Melanoma International Foundation is that they truly serve Melanoma patients and their families. They respond quickly, via e-mail and/or the telephone, they are 100% abreast of the latest developments in Melanoma treatment, they educate so that others may get the best possible care for their circumstances, and they do all of this without compensation. They are true patient advocates.

Ways to make it better...

If I had to make changes to this organization, I would...

I have referred family and friends to Melanoma International Foundation. They have responded directly and with valuable information. I cannot speak highly enough of this organization. Please support this organization financially so they can keep doing what they do!

June 11, 2011

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June 11, 2011

I am so grateful to have found Melanoma International Foundation on the internet. Connecting with others who are battling this disease has helped me in dealing with my diagnosis. Also, the moderators do an amazing job of making sure that accurate information is shared. It has been a valuable tool in my education about Melanoma.
Having Melanoma experts so available and willing to respond to questions has been truly amazing. Such a comfort when facing a life threatening disease.

The Great!

I've personally experienced the results of this organization in...

I've become a smarter patient more able to advocate for my own care because of the information available through MIF

Ways to make it better...

If I had to make changes to this organization, I would...

Support it financially and help it become more easily found by others facing Melanoma.

June 10, 2011

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June 10, 2011

I found the Melanoma Foundation after just being diagnosed. I was not under general care, so was not receiving any kind of feedback from the surgeon who had removed the malignancy. After thirty days I had an appointment only to find I was being sent for further testing which they would receive within two days and I would have to wait another 30!!!! I requuested a copsy of my lab work and quicly submitted the info online to the Melanoma Foundation. Thank goodness I did! They were quick to tell me I was a low risk, and explain the results to me. Since my surgeon had zero compassion or bed side manner (this is not his specialty) and found it acceptible for me to live three months before giving me the all clear I was releived to talk/chat to other individuals going through the same thing as well as get some professional council on my results! I am happy to report that I feel I have made true friends on this website, and still communicate with some to this day. In addition I visit occasionally to lend my support to other newly diagnosed individuals. This site was a true blessing in my life at a time when it was so needed. God bless the individuals that spend their time to keep it up and runnin!

The Great!

I've personally experienced the results of this organization in...

I live in Canada and was feeling very lost and alone!

Ways to make it better...

If I had to make changes to this organization, I would...

I know of nothing I would personally change and am thankful to have found them!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Google

What, if any, change in your life has this group encouraged?

Support support support. I could post today and know I would receive support again at any time needed.

When was your last experience with this nonprofit?

2011

June 10, 2011

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June 10, 2011

My Father has Stage IV malignant Melanoma and for the past two years I have been coming to Melanoma International Foundation for help understanding the Doctor's statements, resources available, new ideas for treatments..etc
Melanoma International Foundation's community and its founder
Catherine Poole have been amazing and I am really glad that I can go there for help and support. Thank you from the bottom of my heart
Alexandre

The Great!

I've personally experienced the results of this organization in...

helping my Father with Cancer treatments

Ways to make it better...

If I had to make changes to this organization, I would...

not change

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