I started my fight against melanoma 5 years ago and the information and support I received form MIF has been outstanding. Catherine has spoken with me on several occasions and been a friend to me as w... more
MELANOMA INTERNATIONAL FOUNDATION
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Catherine is the GREATEST ! She took a personal interest in me--helped connect me with an expert oncologist-and generally held my hand(remotely) as I journeyed through the battle of melanoma. Believe the organization is one of the best for helping and guiding melanoma patients !
The Great!
I've personally experienced the results of this organization in...
guidance and some financial
Ways to make it better...
If I had to make changes to this organization, I would...
none
I started my fight against melanoma 5 years ago and the information and support I received form MIF has been outstanding. Catherine has spoken with me on several occasions and been a friend to me as well as given excellent advice.
The Great!
I've personally experienced the results of this organization in...
information distributed.
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
personal touch.
Ways to make it better...
more information was available.
When was your last experience with this nonprofit?
2009
I was diagnosted with Melanoma in 2006. After my surgery and subsequent healing I found Melanoma International. Catherine Poole and the others that I speak with on the Forum have been tremendously supportive and I always feel like I know what I'm going through. It's such a great place to just discuss your fears or your hopes. The section for new diagnosis is super to help guide you through this new and sometimes terrifying diagnosis. I try to recommend this site to anyone that has Melanoma or has a family member affected by Melanoma
The Great!
I've personally experienced the results of this organization in...
the support from Catherine and all the other contributors.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
discussing my issues with others who understand.
The kinds of staff and volunteers that I met were...
wonderful and supportive!
If this organization had 10 million bucks, it could...
REALLY get its message out there and maybe lobby against the tanning bed usage that is pushing up the melanoma occurences in young people!
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
I have advanced melanoma, and my wife first found MIF on the web. I soon started participating in one of the forums online, and found it extremely helpful, not only emotionally, but professionally. The director, Catherine Pool, called me and discussed my situation, offering phone contacts with leading experts in the field. I used them, and got in a very hopeful and beneficial clinical trial. Because she has a professional advisory board, she is able to give people excellent online advice as to where to seek hopeful treatment and clinical trials. That is perhaps a specialty, encouraging patients with advanced disease to get in hopeful trials, which is important for them, and for the development of good new treatments for the public. Education on sun damage is another emphasis.
The Great!
I've personally experienced the results of this organization in...
Alterted to a new clinical trial that may be saving my life.
More feedback...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
I started out as a client served. My husband found this great organization almost 4yrs ago while desperately searching for answers after receiving my stage IIIC diagnosis. Catherine spent many hours on the phone with us during our most difficult times and offered us accurate information and much needed support. I became involved in the forums when she started them, and have watched them grow into a place where people come from all over the world for support and accurate information. Although I'm currently doing well, she was the first person I turned to when I had my recur last summer. I know she works hard to keep informed of the latest developments. Great Job MIF! Shirley Z
The Great!
I've personally experienced the results of this organization in...
My battle with melanoma, and the contributions she so willing makes to the forums answering questions and supplying accurate information.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2009
I was diagnosed in 2006 with stage IIIC melanoma. My husband found this site and we were so impressed by the immediate outpouring of information and compassion by Catherine Poole. She answered her own hotline and stuck by us during every step of our battle. We know that we can receive accurate and reliable information because the cite is hon code approved. This means alot.
The Great!
I've personally experienced the results of this organization in...
The many events that they work so hard to sponsor to bring about awareness of melanoma. The sense of caring and accurate advise people receive when visiting the forums. I'm proud to be a part of this wonderful community.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The genuine caring . The accuracy of the information.
The kinds of staff and volunteers that I met were...
Wonderful!
If this organization had 10 million bucks, it could...
Continue with the mission that they do so well. Perhaps be able to raise even more awareness.
When was your last experience with this nonprofit?
2009
Melanoma International Foundation gives people a place to learn reliable information about their disease and talk about it with people who have been there. MIF also does a great deal of education and outreach with the public to try to prevent melanoma. I have found the site, its members and especially the staff helpful, caring, knowledgeable and understanding. MIF is a wonderful resource.
The Great!
I've personally experienced the results of this organization in...
In referring me to products to help reduce the chance of melanoma returning. In discussing and learning about treatment options. In calming me down about my fears.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
Searching the web for info--I came across MIF and contacted them via E-mail--Catherine called me shortly after receiving my message and talked with me for quiet a while--she suggested a 2nd opinion and helped with transportation --what a blessing! This is a great organization !!
More feedback...
If this organization had 10 million bucks, it could...
Help a lot more Melanoma patients
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
2009
The Melanoma International Foundation is a wondeful organization. The individuals involved are truly the most caring people you'll ever meet.
The Great!
I've personally experienced the results of this organization in...
Helping at their events
Ways to make it better...
If I had to make changes to this organization, I would...
I can't think of anything.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
They are genuine and follow their mission.
The kinds of staff and volunteers that I met were...
The best!!!
If this organization had 10 million bucks, it could...
Put an end to suffering from Melanoma
Ways to make it better...
I found this organization years ago.
In my opinion, the biggest challenges facing this organization are...
The simple fact that most people love the outdoors and it's difficult to get people to be careful with something they love.
One thing I'd also say is that...
They are real!
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
2009
My husband was diagnosed with Melanoma in 2008; we didn't know where to turn. Our family doctor wanted surgery as soon as possible but we didn't know if the treatment was correct. I researched Melanoma and the Melanoma International Foundation came up, I don't know what made me call, but am glad that I did. The people at the foundation answered my questions and helped us find the right doctor for us. My husband is now under treatment and doing great, we thank our lucky stars everyday for the foundation.
More feedback...
If this organization had 10 million bucks, it could...
inform people about this form of cancer.
When was your last experience with this nonprofit?
2008
Our first contact with Melanoma International Foundation was February 23, 2007, the day after our 32 year old daughter, Erica, learned (after four and one half years of her original surgery) the melanoma had spread to her liver. Three weeks before she and her husband had just run a marathon. She contacted MIF and they responded immediately offering encouragement in her contacting her original doctors who were experts in the caring of melanoma patients. From February 2007 through her treatments & surgeries & beyond MIF communicated with Erica,checking on how she was doing & if she needed any help, until her death in April 2008. Since then MIF has kept in contact with us, Erica's family. Erica's husband & friends ran in a relay marathon in memory of Erica raising funds for MIF. MIF's philosophy of prevention, early dection & awareness is extremely important as melanoma is on the increase, especially in the younger population. Our family participated in an MIF sponsored event just one year after Erica's death where an award was given in her name. The staff of many volunteers, melanoma survivors, persons being treated with melanoma, & family members were all very gracious & we felt like we had known those we met for years, not just a few hours. MIF has supported our other daughter as she gives talks on Safe From the Sun Awareness with sharing of their literature & handouts on melanoma. We have been extremely pleased with MIF in the way they kept up with our daughter & now our family without any pressure for donations. Thank you MIF!
The Great!
I've personally experienced the results of this organization in...
the way they care for the patient and family members by offering assistance, support & encouragement.
Ways to make it better...
If I had to make changes to this organization, I would...
Continue to push public awareness of safe from the sun, early detection & prevention.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The way they reached out to my daughter during her illness & now toher family after her death.
The kinds of staff and volunteers that I met were...
gracious, informative, caring & very supportive.
If this organization had 10 million bucks, it could...
promote prevention , detection & cure!
Ways to make it better...
I might have been aware of the organization in September of 2002.
In my opinion, the biggest challenges facing this organization are...
getting the public to be more aware of prevention & early detection & make each person be an advocate for their own health.
One thing I'd also say is that...
be your own advocate & insist on medical attention for any changes in/of your skin.
When was your last experience with this nonprofit?
2009
MIF is a great organization that works with melanoma patients and families. Donations go toward making the families and patients feel comfortable, and help them deal with the situation. They are caring and wonderful people.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
they really care about what they are doing, and are very appreciative of all of the help that they get.
When was your last experience with this nonprofit?
2009
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