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June 9, 2011

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June 9, 2011

We have greatly benefited from the Melanoma International Foundation website. I was able to get all the latest research information when my mother was first diagnosed. I found an article on a particular clinical trial and connected her with a wonderful doctor. We have viewed several webinars which have allowed us to hear a doctor's perspective on a drug or treatment option before going through the long process of eligibility tests and screenings. I am so thankful for this foundation. It is truly a blessing for me and my family. My mother is doing really well for her stage of disease and has been diagnosed for almost a year! The information we've received from the website may have played a crucial role in her present condition.

The Great!

I've personally experienced the results of this organization in...

My mother has been able to participate in all the latest research and clinical trials.

Ways to make it better...

If I had to make changes to this organization, I would...

I can not think of any changes I'd make.

June 9, 2011

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June 9, 2011

After being diagnosed with melanoma in 2007, I found MIf after having seen so much mis-information on the web and even from the medical comunity. MIf has provided clarity on the options availble and the the truth about melanoma. Through the information from MIF I have taken the approiate steps need to help ensure my longterm survial.

The Great!

I've personally experienced the results of this organization in...

Treatment of melanoma

Ways to make it better...

If I had to make changes to this organization, I would...

None

June 9, 2011

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June 9, 2011

My father was diagnosed with Melanoma in early 2009 in China. As Melanoma is relatively rare disease in China, few doctors and pateint communities know about this disease not to mention the effective treatments. We felt very powerless, confused and helpless at the beginning. We turned to Melanoma International Foundation founder Katherine Poole for help after reading about her book about Melanoma in China. Katherine and her foundation community are very kind and helpful. They offer valuable information, provide guidance, even go to the great length to educate doctors in China about the pros and cons of various treatment options. Their help and online service really enpower the patients in China and around the world.

The Great!

I've personally experienced the results of this organization in...

helping my father understand better about Melanoma and making informed decision about the treatment path.

Ways to make it better...

If I had to make changes to this organization, I would...

promote this foundation to more melanoma patients around the world

June 9, 2011

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June 9, 2011

Melanoma Survivor-Stage 3. I have turned to MIF many times for information and I have found that their Web site is the most accurate and up to date. Their hosted bulletin board allows you to connect with other patients and caregivers while still providing accurate information.

The Great!

I've personally experienced the results of this organization in...

I have learned about my diagnosis. I have learned about possible treatments. I continue to follow medical advancements. I connect with fellow patients.

Ways to make it better...

If I had to make changes to this organization, I would...

add the ability to sort discussions by date it was originally added to the bulletin board.

June 9, 2011

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June 9, 2011

This organization provides much needed support and informationthat otherwise would not be found. They are wonderful.

The Great!

I've personally experienced the results of this organization in...

In my own life and helping find effective treatments for my mom.

Ways to make it better...

If I had to make changes to this organization, I would...

Help more people know about them and their cause.

June 9, 2011

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June 9, 2011

I have beend diagnosed with metastatic melanoma four separate times. My most recent diagnosis this past March left me with little to zero options outside of surgery. I was desperate for help and kept turning for more answers. I was on-line at work one day and searched for Melanoma and came in contact with the Melanoma Internation Foundation. I called the number and spoke with the most knowledgable staff peron. She discussed clinical trials and she was very familiar with the doctors in Colorado and the other treatments I had endured up to that point. I was so thankful to have her in my corner. She knew what I was going through and had been through already. She was positive, encouraging and most of all, full of valuable information.

The Great!

I've personally experienced the results of this organization in...

Treatments and advancements with Melanoma.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing!!!!

June 9, 2011

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June 9, 2011

Very caring professionals and great advice, coaching and counseling. Words can't describe what a great foundation MIF Int'l is.

The Great!

I've personally experienced the results of this organization in...

Understanding risk and prevention around skin cancer better than the guidance you get at your Doctor's office

Ways to make it better...

If I had to make changes to this organization, I would...

help them grow further. Excellent staff and service.

June 9, 2011

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June 9, 2011

I was diagnosed with Stage IV melanoma last June in 2010. MIF was great in guiding me through the steps towards the right treatment and consultation with Doctors.

They also helped me financially with a small grant which help me pay for one of my trips to see my Oncologist.

MIF is
a great source for information, support and guidance through the whole process.

The Great!

I've personally experienced the results of this organization in...

Amazing! people...amazing service and support!

Ways to make it better...

If I had to make changes to this organization, I would...

N/A

June 9, 2011

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June 9, 2011

As a newly diagnosed melanoma patient, I found lots of support and a wealth of information for all the questions I had regarding my diagnosis. I also received lots of comfort and support from others on the site and it helped to put my mind and ease more than I can ever express!!! Wonderful site doing wonderful work!!!

The Great!

I've personally experienced the results of this organization in...

support and comfort

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 9, 2011

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June 9, 2011

I am a stage 4 melanoma patient who has lived for each update that I receive from this group. I have met several people here that I have never met but are a strong part of my team to beat this cancer. I have had the pleasure of meeting one that moved from ND and now lives in Florida. She has become as close to me as any sister I could ever have. All because of this site.

The Great!

I've personally experienced the results of this organization in...

Being able to know what side effects to expect and possible new trials coming up.

Ways to make it better...

If I had to make changes to this organization, I would...

Do nothing. I really appreciate it.

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