MELANOMA INTERNATIONAL FOUNDATION
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October 22, 2012
I found the support and help on the forums and the educational webinars extremely helpful for me as a caregiver. The webinars were great at helping understand the treatment alternatives and the members in the forum have been very helpful with both support and info on where to turn. I think this forum is invaluable to patients and families who are dealing with Melanoma.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 18, 2012
1 person found this review helpful
MIF has really impacted my life. My father is suffering from Malignant Melanoma. This is rare disease in India (where we live) and even reputed oncologists are unaware of the treatment. After searching for Melanoma on Google, I found MIF. MIF has helped me throughout the course of treatment. Firstly, my doctors were adamant on just WBRT(whole brain radio therapy) But I was always skeptical about it. I started discussing the issue and asked MIF's help. I got more pertinent answers from MIF rather than from doctors. Armed with the advanced knowledge from MIF, I discussed the issue again with my doctors who then referred us to another hospital having advanced machine. After that, I started discussing my father's case with MIF regularly. They guided me throughout the treatment. From NRAS mutation test to C-KIT, each and every crucial step was discussed. Moreover, I benefited immensely by the experiences shared by other senior members. It is indispensable for people who do not have access to advanced medical services in the field of Melanoma. Apart from creating awareness about Melanoma treatment, MIF provides a lot of emotional support. It provides a vent to all the frustration through which Melanoma Caregiver goes through. I had some ethical issues which were weighing a lot on my mind. I discussed it with MIF and fortunately, I found a senior member who went through the exact same situation. I wont mince my words but it literally helped me decide the most appropriate and peaceful way in which my father will die. I could not expect more.
The Great!
I've personally experienced the results of this organization in...
the treatment and overall well being of my father and hence, the whole family.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
How did you find this group?
Internet Search
What, if any, change in your life has this group encouraged?
From the kind of help I got from MIF, I think I have become more helpful to people in general. Now helping somebody provides me a little bit more joy than it used to earlier.
September 18, 2012
Since I first googled melanoma upon learning of my husband's diagnosis, the Melanoma International Foundation has been a source of information and support. Armed with the experiences of many others diagnosed with Stage III melanoma, my husband and I were able to intelligently challenge the direction we were given from his plastic surgeon and enabled to select a health care facility that was a Center of Excellence for Melanoma. My husband's melanoma has unfortunately progressed since I first found the MIF forum website but it continues to give us the help we have needed to make intelligent decisions about which treatment path to follow. Right now, Melanoma research is happening at a break-neck clip and being able to learn of other Melanoma patients first hand experience with brand new drugs has helped us feel like we are in control of this awful disease. MIF provides invaluable support for people with melanoma and thie families.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
September 10, 2012
This is a great resource to have in Pennsylvania. Our non profit (Walk On Foundation Inc) which helps assist those with medical needs is from Pennsylvania and is glad to see different disease specific non profits emerge for all kinds of illnesses. God Bless you and everything you do!
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Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
September 5, 2012
MIF is an exceptional source of information and support for Melanoma patients and provides much-needed and always up-to-date information in a cancer without established standard of care. The last years have brought a novel therapies in Melanoma and staying informed is already difficult for medical doctors, let alone patients in an emotionally challenging situation. In a disease with many options but few defined ways, information is key. The MIF webinars are simply impressive, easy to understand primers on the latest of what's going on in Melanoma. The forums have been valuable for us time over time- to discuss treatment options, how to deal with side effects and also the emotional impact of being diagnosed with a disease with such poor prognosis. Despite the grim setting, the foundation's approach is positive and pro-active (e.g. the matching grants to support Melanoma research) which distinguishes them from other websites. Catherine Poole, the founder, is an impressive and never-tiring presence who does not hold back to personally reach out to Melanoma experts to help a specific patient. We have made (first virtual, then real) friends over this website. Melanoma is terrible but having a place like MIF was simply wonderful.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
August 17, 2012
My wife has advanced muscosal melanoma. Catherine Poole and everybody on the Stage 4 and Caregivers forums have been of tremendous support and encouragement. They are truly my brothers and sisters with Catherine our big sister. We care, support and coach each other without hesitation. The best cancer forum Im proud to be a member of. JeffB
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
August 3, 2012
The Melanoma International Foundation website provides outstanding support to anyone who needs to learn about and deal with Melanoma. MIF makes finding the information easy even when the subject is not easy. By providing the forum MIF gives us access to professionals, fellow patients and caregivers all experienced with this terrible disease. If an answer cannot be found, Catherine Poole of MIF will go find it and bring it to the forum. As a caregiver for my father diagnosed with Stage IV Melanoma, this website has been the most helpful resource to me and my family. I have learned so much and feel connected with others, because of MIF I feel I can provide the best support to my father.
More feedback...
Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
July 24, 2012
MIF has been very helpful in providing information during my sister's journey and subsequent death from melanoma. Our family has participated as a team in the annual MIF walk at Villanova University for the last 4 yrs. We have shared information about this excellent organization with other friends, relatives, coworkers and neighbors. The website is a great resource patient's, families and health care providers. It serves as a reliable information source which highlights the scope of this devastating disease .
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
July 23, 2012
As a mother of a child diagnosed with metastatic melanoma stage IV, I searched for all information available to help with our future journey. This web site for melanoma patients, caregivers and doctors was the best find possible. It carries the most current information from research around the globe with access to all selected articles. It also offers a forum for patients at various stages and one for caregivers like myself. My family has used this site to find the doctors and research available to us and have called and visited each of them. We do believe that this site has given us the tools to help our loved one continue her fight against this disease.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
July 21, 2012
When my 34 year old son was diagnosed with stage IV melanoma I was shocked, terrified, and frantic. I found the Melanoma Internantional Foundation site on the internet and started reading. Almost at once I realized it was a highly acedemic yet user-friendly site. Catherine Poole, the founder, president, and a melanoma survivor personally counseled me on the phone when I posted my first blubbering, disjointed questions. I love that so many melanoma warriors and survivors post and counsel along with notable and reknown melanoma oncology specialists . The site is monitored for inaccurate information and filtered immediately. I am always confident in the quality and accuracy of the information I find on the site. The webinars are up to date and always on the cutting edge of any new findings in the melanoma world. I feel like I am making friends and building true relationships at MIF. The sincerity of the staff and bloggers is heart-felt and truely appreciated. I recommend the site anytime I can fit it into a conversation. Cindy Lock, Holyoke, Colorado
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
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