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February 12, 2014

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February 12, 2014

I was diagnosed with advanced prostate cancer and could not find any help or support from anyone or from another place. Malecare Is a fantastic programm for men like me. They provide meaningful education and support for men with metastatic prostate cancer . They are the only ones I know that do this

They are accurate not clogged with advertisements and speak to my situation. No other organization seems to care the way they do. I wish I had a million dollars tog give them, it would be worth it.

Ways to make it better...

If I had to make changes to this organization, I would...

Do even more of the great things they do

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

June 29, 2011

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June 29, 2011

I am indebted to Daryl and the folks at Malecare because years ago when I received my diagnosis of prostate cancer, I desperately sought help and information and they were there for me (and anyone else). I was upset and confused with loads of questions. Malecare provided support and a wealth of useful information in the form of websites, writings, personal information, etc. that I could not find any where else.

The Great!

I've personally experienced the results of this organization in...

I have changed my way of treating my problem.

Ways to make it better...

If I had to make changes to this organization, I would...

try to make it available to more.

June 28, 2011

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June 28, 2011

In early 2006, my son, Jeremy, was diagnosed with advanced metastatic prostate cancer. He had never had any symptoms, had no family history and he led an extremely healthy and balanced life. He was 34 at the time and because of his emotional and physical fitness and determination, he fought this heinous disease for 18 months before succumbing, at 36 in November, 2007. Jeremy's disease was too advanced for him to have "options," (surgery vs. watch and wait vs radiation), so he was treated with methods to prolong, rather than save, his life. However, as his parents, we never stopped looking for miracles and support. We wanted information about incidence in younger men and clinical trials that offered hope. We reached out to every known institution and group that we could. No one responded until ZERO-The Project to end Prostate Cancer reached back and this was after my son's death. I am now a board member of that organization and it is through ZERO that I became acquainted with Darryl Mittledorf o Malecare and have learned about the kind of support they to all men concerning their prostate health. Their web site is a great source of information concerning options, explanations about diagnoses, local support and guidance. They work tirelessly to bring awareness to the public about mens' issues and diseases. They are the only source of support that I know of specifically for gay men which I find impressive and also very necessary. Their passion and compassion combine to make them a top notch organization. They have not slowed in their commitment to lighting the White House Blue during September, "Prostate Cancer Month." I wish I had know about Malecare when my son was ill. Although he was not gay, I know that I could have gotten information and the emotional support that I needed. Now that I am part of the prostate cancer community and an organization that is focused on increasing funding for prostate cancer research, I know the value of Malecare and would hope that they will become more visible to the general population at large.

The Great!

I've personally experienced the results of this organization in...

Compassion. Sharing of new and specific information about prostate cancer. Lifetime friends among those men doing battle every day with this disease. I recently met a contact person at the NM Cancer Center who happens to be a gay man and who is frustrated that there is "no information or help for gay men with prostate cancer." Now he knows that there is.

Ways to make it better...

If I had to make changes to this organization, I would...

Publicize, publicize, publicize!

June 28, 2011

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June 28, 2011

As a 6 yr prostate cancer survivor I have visited many PCa charitable websites and the quality and depth of content that Malecare offers is unparalleled. In addition they offer men with special needs like advanced cancer or gay a forum to share their experiences. In addition to their online presence they do a great job with promoting awareness and advocacy and offer valuable local support groups.

The Great!

I've personally experienced the results of this organization in...

I have used their websites, forums and attended a local support group meeting. Quality of info is tops.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue to raise awareness of Malecare resources.

June 27, 2011

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June 27, 2011

When I was diagnosed with prostate cancer, I was lucky enough to have learned about Malecare and it was and remains the best prostate cancer group one can have. The men in the group are the most informed of anyone - including doctors - since they have the disease and it's their lives that are at stake so they are constantly searching the Internet and learning the latest treatments, efficacy of those treatments and, most importantly, they are totally giving of this information to newly diagnosed men with prostate cancer. I can not recommend this group enough. In addition, they are extraordinary in their support for fellow members and deal with each man individually. There is no cant or rigidity in their help. They assess what you tell them about your illness, including active surveillance and/or treatment - surgery or radiation. They respect both your physical needs and your emotional points of view. Bravo to them!

I also can not give enough praise to Darryl Mittledorf, who started the group and remains the best possible source of new information. This man deserves a medal...

SO, do NOT waste any time... GET CONNECTED to the best prostate group in America....By far!

The Great!

I've personally experienced the results of this organization in...

When diagnosed, I was lucky to find out about Malecare. (See my assessment above)

Ways to make it better...

If I had to make changes to this organization, I would...

None that I can think of, at the moment

June 27, 2011

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June 27, 2011

A great resource. As a Prostate Cancer Survivor, I highly endorse this wonderful group.

The Great!

I've personally experienced the results of this organization in...

My personal experience with results of this organization include Information from heathcare professionals and from those individuals having personal experience with Prostate Cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

N?A

July 20, 2009

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July 20, 2009

I find this useful before and after surgery for Prostate Cancer. both support from posters on the Yahoo group and information/education.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Free exchange of experience and the rational tone. Very little ranting and no commercial bias.

When was your last experience with this nonprofit?

2009

July 17, 2009
1 person found this review helpful

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July 17, 2009
1 person found this review helpful

Prostatecancerandgaymen is an active, helpful group, well monitored. Its specific focus is as needed as it is rare. The sharing is generous and hopeful.

The Great!

I've personally experienced the results of this organization in...

giving accurate and timely address to physical and emotional issues.

More feedback...

When was your last experience with this nonprofit?

2009

July 16, 2009

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July 16, 2009

I have friends with PC and I frequent this site as it is the most informative, yet, informal in their approach. Without malecare many men would be without knowledge they need and deserve!

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What I've enjoyed the most about my experience with this nonprofit is...

the care and concern given one and all without hassle and without blowing their whistle that they are the best, even though, THEY ARE THE BEST!

If this organization had 10 million bucks, it could...

ensure more hope to each and every man concerned.

When was your last experience with this nonprofit?

2009

June 25, 2009

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June 25, 2009

An important resource for gay men who seek information and support for dealing and living with prostate cancer. The guest speakers are among the most prominent experts in the medical field.

The Great!

I've personally experienced the results of this organization in...

Providing information to men living with prostate cancer before and after treatment.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

Ways to make it better...

More written materials were made available

When was your last experience with this nonprofit?

2009

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