MALECARE

Rating: 4.91 stars   55 reviews

Issues: Civil Rights, LGBTQ, Health, Cancer

Location: 419 Lafayette Street New York NY 10003 USA

Mission: Malecare, Inc. is a 501(c) (3) nonprofit organization, founded in 1997.; Malecare develops practical, life saving programs for cancer survivors. Malecare is largest mens cancer survivor support and advocacy national nonprofit organization.
Target demographics: Men diagnosed with cancer.
Geographic areas served: Global
2011 Top-Rated Nonprofit
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EIN 13-4057382
212-673-4920
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

Malecare is careful and open in its dissemination of information, supportive in its help of men with prostate cancer at early stages and in advanced disease, and a font of information and encouragement to families, caregivers, professionals and clinicians and clinical researchers worldwide. Its support of clinical trials and all kinds of research ideas through the brilliantly conceived StartACure links crowd sourced funding with real projects that can both support researchers and teach the general reader how to appreciate and understand how research works. And Malecare's attention to the needs of ALL men -- gay and straight, old and young, with illness and worried well, of all ethnic and racial backgrounds, in NY and across the world -- is true to its name. Thanks to founder Darryl Mitteldorf, LCSW, to Joel, to the board and volunteers for providing a real service.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

1 person found this review helpful

Malecare is a Non-profit organization that brings men from all walks of life together who have or have had prostate cancer. It offers support to individuals who previously would have felt or been isolated. Under the leadership of Daryl Mittendorf the group focuses on all issues regarding the disease and brings to the vanguard health awareness. Darryl shares his time and expertise at no cost and contributes much to the well being of its participants.

I've personally experienced the results of this organization in...

Because of Malecare I went on a progressive course in dealing with and treating this situation.

If I had to make changes to this organization, I would...

Expand its services and bring greater awareness.

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Rating: 5 stars  

It's hard for men to meet other men diagnosed with cancer. Malecare provides safe and informative group meetings that guys thrive in. It's a great nonprofit and helps thousands of men all across America

I've personally experienced the results of this organization in...

I've helped set up groups where guys get together and talk about cancer

If I had to make changes to this organization, I would...

build a better donation base

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Rating: 5 stars  

I found myself diagnosed with prostate cancer in 2006. After searching for prostate cancer organizations to volunteer with, I found Malecare. Unlike all of the other national prostate cancer so called non profits, Malecare seems to honestly care about providing quality resources, rather than spending insane amounts of time on fund raising. Three cheers to Malecare and it's great advocacy work.

I've personally experienced the results of this organization in...

Malecare helps men feel important in their fight against cancer

If I had to make changes to this organization, I would...

More people should become involved with prostate cancer advocacy

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Rating: 5 stars  

Twelve years ago, I was diagnosed with PCa. With the help of the internet, I was lucky enough to run across Darryl and fellow prostate cancer survivors who were able to steer me in the direction of good health care and emotional support. The info I receive via Malecare and Darryl is extremely helpful. Kudos and thank you to Darryl and all the people who continue the quest for a cure.

I've personally experienced the results of this organization in...

In addition to valuable info, I realized I am not alone with my PCa.

If I had to make changes to this organization, I would...

Broaden its base and make sure it is involved in all the major cancer centers and hospitals in this country and beyond.

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Rating: 5 stars  

By talking directly and getting answers with fellow prostate cancer patients/survivors can bring a level of calmness to everybody who is newly diagnosed. Then by constantly interacting with members, vigilance is reinforced and help avoid pitfalls for whatever procedure one chooses to be treated with. It is indeed very important for everybody's well-being to be aware of what's going on in our body that could have been affected from some medicines/hormones we took as part of a treatment. While we knew that there is no magic bullet yet to fight any form of cancer, we need to be careful of what we take, as it may be the cause for the sudden demise of anybody who wasn't aware of side-effects. In that case, one might be able to claim as having won the fight against cancer by dying from something else !

I've personally experienced the results of this organization in...

The members feedback help me determined what procedure should I consider based on accumulated info that have been provided for my case.

If I had to make changes to this organization, I would...

This organization has the resource to provide cancer researchers wide array data that could help them in their research as each member have unique experiences that can be shared with them.

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Rating: 5 stars  

MaleCare is a fantastic group that was very welcoming to me on my first day. i have a PSA of 38 and a Gleason score of 3+4=7. Everyone in the group has a different story and a personal approach to their situation. This group is empowering its members to get the best information from each other and be proactive in gaining information from doctors. It is a medium large group, about 25 people, the perfect size. i will be going back.

I've personally experienced the results of this organization in...

Making informed choices for my treatment.

If I had to make changes to this organization, I would...

It could expand to other cities.

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

I am a prostate cancer survivor and this site help me in some choices about my condition

I've personally experienced the results of this organization in...

N/A

If I had to make changes to this organization, I would...

None

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Rating: 5 stars  

When I was first diagnosed with advanced prostate cancer I was lost as I looked for support and help from different organizations. Malecare's different support group system (weekly without lectures) answered my need to find support and then challenged me to become involved and work to expand its services to other men and their loved ones. It is an amazing organization for any man fighting cancer. As the logo says: Men Fighting Cancer, Together.

I've personally experienced the results of this organization in...

Finding support and learning from other members of the organization. I have also been challenged to help other men with cancer.

If I had to make changes to this organization, I would...

find a way to raise more money to expand both its reach and its programs.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Helped me deal with my own needs being a multi-cancer survivor

How did this volunteer experience make you feel?

excellent

When was your last experience with this nonprofit?

2011

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1 previous review
Rating: 5 stars  

14 people found this review helpful

To clarify, I am both a volunteer and a client served. Malecare is the only national organization that serves both straight, gay and transgender men diagnosed with cancer. It is also the only organization that has developed support programs for men with advanced and recurrent prostate cancer. When I was first diagnosed with recurrent prostate cancer I searched from one organization to another, went from one support group to another and was unable to find any program that attempted to meet my personal needs. This was despite the fact that I lived in New York City! Malecare's weekly support group was the only group I attended that reached out to me and helped me deal with my individual situation. The men who participated and the group leader provided much needed support in a time of my life that was most difficult. The leadership of Malecare (all of whom are volunteers) was flexible enough and interested in my general concerns about the lack of support programs for men with advanced disease. With the organizations support and encouragement, I was able to join with Malecare and start additional, nationally based programs designed specifically for men diagnosed with advanced disease and their families. Malecare is a true grassroots organization that is vital to our society and meeting needs of the under-served population.

I've personally experienced the results of this organization in...

the assistance it provides to both men and their families when faced with the terrible diagnosis of cancer. Men come to the organization in a confused and crisis state and are helped to make decisions and deal with the rest of their life.

If I had to make changes to this organization, I would...

do a better job publicizing its work with all men and their families.

What I've enjoyed the most about my experience with this nonprofit is...

its flexibility to deal with the ituation as it arises.

The kinds of staff and volunteers that I met were...

All professional volunteers!

If this organization had 10 million bucks, it could...

rock the world of cancer support.

Ways to make it better...

It could not be better

In my opinion, the biggest challenges facing this organization are...

Since it is all volunteer (no paid staff or workers)the work it does accomplish is diluted by the limits its volunteers have on time.

One thing I'd also say is that...

Malecare uses a very limited budget and makes it go a long, long way.

When was your last experience with this nonprofit?

2009-6-01

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Rating: 5 stars  

10 people found this review helpful

Great way to help other young men with prostate cancer and find new insights in reducing side effects of surgery.

I've personally experienced the results of this organization in...

Helping young men under 50 get PSA testing and the prostate cancer treated while it is curable before it is stage 3.

If I had to make changes to this organization, I would...

Lobby for FDA & healthcare reform

What I've enjoyed the most about my experience with this nonprofit is...

Sharing research.

If this organization had 10 million bucks, it could...

Raise awareness for testing PSA (and better tests when FDA approves them), Fund research & lobby congress.

Ways to make it better...

We got more active in banning BisPhenol A and other cancer causing substances.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-6-01

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