Malecare is careful and open in its dissemination of information, supportive in its help of men with prostate cancer at early stages and in advanced disease, and a font of information and encouragement to families, caregivers, professionals and clinicians and clinical researchers worldwide. Its support of clinical trials and all kinds of research ideas through the brilliantly conceived StartACure links crowd sourced funding with real projects that can both support researchers and teach the general reader how to appreciate and understand how research works. And Malecare's attention to the needs of ALL men -- gay and straight, old and young, with illness and worried well, of all ethnic and racial backgrounds, in NY and across the world -- is true to its name. Thanks to founder Darryl Mitteldorf, LCSW, to Joel, to the board and volunteers for providing a real service.
Malecare is a Non-profit organization that brings men from all walks of life together who have or have had prostate cancer. It offers support to individuals who previously would have felt or been isolated. Under the leadership of Daryl Mittendorf the group focuses on all issues regarding the disease and brings to the vanguard health awareness. Darryl shares his time and expertise at no cost and contributes much to the well being of its participants.
It's hard for men to meet other men diagnosed with cancer. Malecare provides safe and informative group meetings that guys thrive in. It's a great nonprofit and helps thousands of men all across America
I found myself diagnosed with prostate cancer in 2006. After searching for prostate cancer organizations to volunteer with, I found Malecare. Unlike all of the other national prostate cancer so called non profits, Malecare seems to honestly care about providing quality resources, rather than spending insane amounts of time on fund raising. Three cheers to Malecare and it's great advocacy work.
Twelve years ago, I was diagnosed with PCa. With the help of the internet, I was lucky enough to run across Darryl and fellow prostate cancer survivors who were able to steer me in the direction of good health care and emotional support. The info I receive via Malecare and Darryl is extremely helpful. Kudos and thank you to Darryl and all the people who continue the quest for a cure.
By talking directly and getting answers with fellow prostate cancer patients/survivors can bring a level of calmness to everybody who is newly diagnosed. Then by constantly interacting with members, vigilance is reinforced and help avoid pitfalls for whatever procedure one chooses to be treated with. It is indeed very important for everybody's well-being to be aware of what's going on in our body that could have been affected from some medicines/hormones we took as part of a treatment. While we knew that there is no magic bullet yet to fight any form of cancer, we need to be careful of what we take, as it may be the cause for the sudden demise of anybody who wasn't aware of side-effects. In that case, one might be able to claim as having won the fight against cancer by dying from something else !
MaleCare is a fantastic group that was very welcoming to me on my first day. i have a PSA of 38 and a Gleason score of 3+4=7. Everyone in the group has a different story and a personal approach to their situation. This group is empowering its members to get the best information from each other and be proactive in gaining information from doctors. It is a medium large group, about 25 people, the perfect size. i will be going back.
When I was first diagnosed with advanced prostate cancer I was lost as I looked for support and help from different organizations. Malecare's different support group system (weekly without lectures) answered my need to find support and then challenged me to become involved and work to expand its services to other men and their loved ones. It is an amazing organization for any man fighting cancer. As the logo says: Men Fighting Cancer, Together.
To clarify, I am both a volunteer and a client served. Malecare is the only national organization that serves both straight, gay and transgender men diagnosed with cancer. It is also the only organization that has developed support programs for men with advanced and recurrent prostate cancer. When I was first diagnosed with recurrent prostate cancer I searched from one organization to another, went from one support group to another and was unable to find any program that attempted to meet my personal needs. This was despite the fact that I lived in New York City! Malecare's weekly support group was the only group I attended that reached out to me and helped me deal with my individual situation. The men who participated and the group leader provided much needed support in a time of my life that was most difficult. The leadership of Malecare (all of whom are volunteers) was flexible enough and interested in my general concerns about the lack of support programs for men with advanced disease. With the organizations support and encouragement, I was able to join with Malecare and start additional, nationally based programs designed specifically for men diagnosed with advanced disease and their families. Malecare is a true grassroots organization that is vital to our society and meeting needs of the under-served population.
Great way to help other young men with prostate cancer and find new insights in reducing side effects of surgery.