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June 29, 2011

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June 29, 2011

I am indebted to Daryl and the folks at Malecare because years ago when I received my diagnosis of prostate cancer, I desperately sought help and information and they were there for me (and anyone else). I was upset and confused with loads of questions. Malecare provided support and a wealth of useful information in the form of websites, writings, personal information, etc. that I could not find any where else.

The Great!

I've personally experienced the results of this organization in...

I have changed my way of treating my problem.

Ways to make it better...

If I had to make changes to this organization, I would...

try to make it available to more.

June 29, 2011

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June 29, 2011

In the 18 months since my prostate cancer was diagnosed, Malecare has been hugely helpful to me. Its weekly discussions are a vast source of specific information and ideas, as well as a font of psychological guidance and support. Darryl does a splendid job of steering the ship between these two goals. And thanks to his wisdom and diplomacy, the experience has made me feel much less alone. A prostate cancer diagnosis is terrifying and confusing. But the Malecare meetings have made it much easier to take. I recommend Malecare, and Darryl, whole-heartedly.

Bill B.

The Great!

I've personally experienced the results of this organization in...

in managing my prostate cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

no changes

June 29, 2011

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June 29, 2011

I found myself diagnosed with prostate cancer in 2006. After searching for prostate cancer organizations to volunteer with, I found Malecare. Unlike all of the other national prostate cancer so called non profits, Malecare seems to honestly care about providing quality resources, rather than spending insane amounts of time on fund raising. Three cheers to Malecare and it's great advocacy work.

The Great!

I've personally experienced the results of this organization in...

Malecare helps men feel important in their fight against cancer

Ways to make it better...

If I had to make changes to this organization, I would...

More people should become involved with prostate cancer advocacy

June 29, 2011

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June 29, 2011

After I was diagnosed with prostate cancer, I found Malecare via Google. Their weekly support group was of great value not only as an information exchange, but of great psychological help in getting through the whole diagnosis/decision/treatment/recovery process.

The Great!

I've personally experienced the results of this organization in...

Helping me cope with my PCa.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand it to other locations.

June 29, 2011

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June 29, 2011

Twelve years ago, I was diagnosed with PCa. With the help of the internet, I was lucky enough to run across Darryl and fellow prostate cancer survivors who were able to steer me in the direction of good health care and emotional support. The info I receive via Malecare and Darryl is extremely helpful. Kudos and thank you to Darryl and all the people who continue the quest for a cure.

The Great!

I've personally experienced the results of this organization in...

In addition to valuable info, I realized I am not alone with my PCa.

Ways to make it better...

If I had to make changes to this organization, I would...

Broaden its base and make sure it is involved in all the major cancer centers and hospitals in this country and beyond.

June 28, 2011

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June 28, 2011

I have found male care to be extremely helpful in alerting me to the latest treatments for prostate cancer.
As a male who is dealing with this disease I find the website very supportive.Keep up the wonderful work

The Great!

I've personally experienced the results of this organization in...

my treatment program

Ways to make it better...

If I had to make changes to this organization, I would...

its perfect the way it is

June 28, 2011

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June 28, 2011

I am indebted to Daryl and the folks at Malecare because, over a year ago when I received my diagnosis of prostate cancer, they were there for me. I was upset and confused and swimming in questions. Malecare provided a wealth of useful information in the form of websites and writings on various topics concerned with prostate cancer. Moreover, I was able to attend a couple sessions of the support group that meets in Manhattan and hear the stories of others who were where I was. The counsel I received at the support group gave me the information I needed to make the right decision for me. I underwent a radical prostatectomy at Memorial Sloan Kettering Cancer Center and, although my cancer was more serious than suspected, I came through the operation fine and have had no recurrance. My PSA continues to be zero. Malecare helped A LOT. I continue to be on their mailing list and know they are there to help in the future should I need it. Thanks Malecare.

The Great!

I've personally experienced the results of this organization in...

See above

Ways to make it better...

If I had to make changes to this organization, I would...

Get them fully funded and staffed.

June 28, 2011

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June 28, 2011

I have a friend who was diagnosed with Prostate Cancer and who attended Malecare support group. The Malecare support group seemed to help him ALOT. HE seemed so much more relaxed and confident about his treatment choices after attending the group.

The Great!

I've personally experienced the results of this organization in...

I've seen Malecare help a friend

Ways to make it better...

If I had to make changes to this organization, I would...

spread out to more cities

June 28, 2011

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June 28, 2011

I have prostate cancer wnad Malecare is one of the better sites to keep informed about treatments.

The Great!

I've personally experienced the results of this organization in...

Hearing how other men deal with prostate cancer and learn what best practices are. It also gives updates on emerging treatments before they are generally know to the public.

Ways to make it better...

If I had to make changes to this organization, I would...

Get it more exposure.

June 28, 2011

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June 28, 2011

In early 2006, my son, Jeremy, was diagnosed with advanced metastatic prostate cancer. He had never had any symptoms, had no family history and he led an extremely healthy and balanced life. He was 34 at the time and because of his emotional and physical fitness and determination, he fought this heinous disease for 18 months before succumbing, at 36 in November, 2007. Jeremy's disease was too advanced for him to have "options," (surgery vs. watch and wait vs radiation), so he was treated with methods to prolong, rather than save, his life. However, as his parents, we never stopped looking for miracles and support. We wanted information about incidence in younger men and clinical trials that offered hope. We reached out to every known institution and group that we could. No one responded until ZERO-The Project to end Prostate Cancer reached back and this was after my son's death. I am now a board member of that organization and it is through ZERO that I became acquainted with Darryl Mittledorf o Malecare and have learned about the kind of support they to all men concerning their prostate health. Their web site is a great source of information concerning options, explanations about diagnoses, local support and guidance. They work tirelessly to bring awareness to the public about mens' issues and diseases. They are the only source of support that I know of specifically for gay men which I find impressive and also very necessary. Their passion and compassion combine to make them a top notch organization. They have not slowed in their commitment to lighting the White House Blue during September, "Prostate Cancer Month." I wish I had know about Malecare when my son was ill. Although he was not gay, I know that I could have gotten information and the emotional support that I needed. Now that I am part of the prostate cancer community and an organization that is focused on increasing funding for prostate cancer research, I know the value of Malecare and would hope that they will become more visible to the general population at large.

The Great!

I've personally experienced the results of this organization in...

Compassion. Sharing of new and specific information about prostate cancer. Lifetime friends among those men doing battle every day with this disease. I recently met a contact person at the NM Cancer Center who happens to be a gay man and who is frustrated that there is "no information or help for gay men with prostate cancer." Now he knows that there is.

Ways to make it better...

If I had to make changes to this organization, I would...

Publicize, publicize, publicize!

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