Making Headway Foundation Inc

Rating: 5 stars   60 reviews

Issues: Health, Cancer

Location: 115 King St Chappaqua NY 10514 USA

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”
Results: Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.
Target demographics: Children with Pediatric Brain or Spinal Cord Tumor
Geographic areas served: NY, NJ, CT
Programs: support services for during treatment, ongoing care post treatment and funding for medical research.
2015 Top-Rated Nonprofit
Write a Review

See How $25 Can Help

See How 3Hrs Can Help

More Info

EIN 13-3906297
914-238-8384
Invite people to share their experience with this nonprofit!

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Community Reviews

profile
Role: Professional with expertise in this field
Rating: 5 stars  

My greatest privilege is working with parents and siblings in those cases when the child does not survive the impact of a brain tumor. Most people do not understand that tumors in children , benign or malignant, are catastrophic for the development of sibling's, as well as for the cohesive marriage of the parents. The guilt, anger and depression, as well as issues of childhood neglect, can be carried by siblings for the rest of their lives if not treated quickly and appropriately. This dramatically effects their chances of reaching their full human potential. Making Headway is the finest and the only foundation I know that seriously treats the spreading impact of this disease throughout the whole family. Without Making Headway, many more parent marriages would end in divorce, and many more siblings would fail to develop a normal, healthy response to the life experience. Making Headway does critically needed work at every level.

 
Flag review
1 previous review
Rating: 5 stars  

My concern is for all the siblings of our patients at Making Headway. By giving them equal love, respect and attention, they are growing up with far less anger, depression, and despair. Making Headway is the only dedicated foundation that treats the WHOLE FAMILY so that each survives and thrives to their highest potential. The medical research and care for kids with brain tumors at NYU is recognized around the world, but it takes a village like MH to recover the patient and family together. It's true that whatever happens, life will never be the same, but it's also true that the staff and volunteers at MH are happily determined to make life meaningful and beautiful again. As a bereavement counselor, I have never seen a team of professionals like these anywhere else.
10,000 stars for Maya and Edward Manley, and 10'000 more for our kids at Making Headway.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

 
Flag review
Rating: 5 stars  

The Making Headway Organization is amazing in so many ways. Not only do they give direct support to families who are going through various brain/cancer treatments they actively raise funds to continue ground breaking research. I have personally seen the reach and affect this group has on peoples lives and particularly on children struggling with the treatment of their disease. I hope this non profit is around for many many years to come. Dedication like this is rare, but the big hearts on board are even harder to find.

 
Flag review
profile
Role: Professional with expertise in this field
Rating: 5 stars  



I have always been impressed by The Making Headway Foundation. They provide support in many areas to children with brain and spinal cord tumors during their hospitalization(s) and to their families. In addition the foundation also provides on-going care services for the children and and their families when they are discharged from the hospital.

THIS ASPECT OF THE MAKING HEADWAY FOUNDATION IS UNIQUE AND VERY NEEDED. THEY PROVIDE EDUCATIONAL CONSULTATION AND PSYCHO-SOCIAL SERVICES FOR THE CHILDREN AND THEIR FAMILIES. I WISH THAT THIS WAS DONE MORE FREQUENTLY BY OTHER NOT-FOR-PROFITS. IN ADDITON THEY ALSO PROVIDE RESOURCES FOR RESEARCH TO FIND A CURE.

THE ENTIRE MAKING HEADWAY TEAM IS HARD WORKING, DEDICATED, EXPERTS IN THE FIELD AND CARING. IT IS A PLEASURE TO WORK HARD AND HELP THE FAMILIES NAVIGATE THE COMPLEX SCHOOL SYSTEM AND MAKE SURE THAT THEIR CHILDREN RECEIVE THE SERVICES THEY NEED.

Patty Weiner
Educational Consultant, The Making Headway On-Going Care Team

If I had to make changes to this organization, I would...

None

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

 
Flag review
profile
Role: Professional with expertise in this field
Rating: 5 stars  

Making Headway is truly a special organization. The organization as whole has a genuine care for people that should be bottled up and served around the world. Maya and Edward are special people and I feel honored to work for them. I have witnessed first hand how their generosity and compassion has helped many children through a very difficult time. It is an organization that should serve as a model for how to truly help when help is needed.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
Flag review

Thank you for being a part of our team, Sabina!

Role: Professional with expertise in this field
Rating: 5 stars  

The Making Headway Foundation goes far beyond foundations that are also raising money to do research with the hopes of finding a cure!

The emphasis on ' Quality of Life Issues' is superior. The foundation has formed an On-Going Care team to help families with many issues that they face with a child with a brain or spinal cord tumor. Beyond research and the importance of a cure The Making Headway Foundation places a great emphases on care for the chidren and their families both when they are hospitalized and when they return home.

Making Headway provides comfort supports during a child's hospitalization and also cares deeply about the child's family offering many comfoting services like massage therapy.

In addition when a child is able to return to home, services such as school planning, counseling for the family, therapy for the siblings and for the ill child and family are put in place. I have worked in healthcare for over 35 years and it is rare that a foundation considers 'on-going' care to be so important.

Kudos to the Board for making sure so many critical issues are supported by an amazing foundation!



If I had to make changes to this organization, I would...

make none.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

Making Headway is the best non profit I've ever worked with. Their care and dedication supporting patients and families is comprehensive and since. That level of care and support includes the well being of those who work with them. They deserve all the praise and more.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
Flag review

On behalf of Making Headway, thank you for this kind review!

profile
Role: Professional with expertise in this field
Rating: 5 stars  

I have been involved with Maya & Ed Manley & Making Headway Foundation for over 20 years - first at NYU, then Beth Israel & back again at NYU. I am a practicing Neuroradiologist & former Neurosurgeon.
Treating & Diagnosing Tumors, infections & tauma in pediatric & young adults is for me very difficult. Making Headway has always helped me by being able to "give back" "to help" these same paietents - in a non medical way - so that the patients become people. Thank you for letting me help.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
Flag review

Thank YOU for helping!

1 previous review
Rating: 5 stars  

A fabulous organization ran by fantastic people - helping numerous children & their families cope with horrrific devistating neurological diese.Thanjk Hashem for Making Headway & Mya & Ed

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

 
Flag review