MAKING HEADWAY FOUNDATION INC

Rating: 5 stars   46 reviews

Issues: Mental Health, Health

Location: 115 King St Chappaqua NY 10514 USA

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”
Results: Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.
Target demographics: Children with Pediatric Brain or Spinal Cord Tumor
Geographic areas served: NY, NJ, CT
Programs: support services for during treatment, ongoing care post treatment and funding for medical research.
2014 Top-Rated Nonprofit
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EIN 13-3906297
914-238-8384
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Community Reviews

Rating: 5 stars  

When my 8 week old daughter, Minty, began her battle with brain cancer, we were drowning in a sea of help. But it wasn't always good help. 2 organizations stood out in this din of misguided inefficiency: "Friends Of Karen", and MAKING HEADWAY. It is not enough to simply "want" to help. If the help is un-researched, un-thought out, badly managed, ignorant - the help will make no impact. In fact, quite the opposite. It is no easy feat to really truly help people, when they need it most. Making Headway truly enriched my daughter's life and for this I will forever be indebted. Thank you Maya and Ed. Mei Lai.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2010

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Rating: 5 stars  

The Making Headway Foundation has been an incredible source of inspiration and strength for me over the past ten years as a cancer survivor. With an amazing staff, and vast amounts of programming, they have given my life meaning and value - something I thought I had lost after being diagnosed in 2003. I can't thank them enough for all they have done, and wouldn't know where I'd be today without them... Thank you!
-Steven Hazlett

If I had to make changes to this organization, I would...

Implement more young adult programming.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 

Thank you, Steven. We'd love to hear your ideas about what young adults would like!

Rating: 5 stars  

Making Headway continues to assist our son
& us after he was diagnosed & treated for brain
cancer 10 years ago. They are an amazing
organization. They take care of the WHOLE
patient & family prior to, during & after treatment.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

Our daughter was diagnosed with a brain tumor 7 years ago, at ten years of age. The Making Headway Foundation has stood by us every step of the way since then, providing our daughter and our whole family with an amazing array of supportive services. Their kindness, compassion, empathic understanding of the stresses we live with and their generous and thoughtful determination to ease our burden is beyond measure. They consistently and creatively find ways to help children and families cope with the impact of this serious medical diagnosis, providing help during treatment as well as continuing their assistance, addressing the child's ongoing educational and emotinal needs. There is no organization I hold in higher esteem.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

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We appreciate your review!

Rating: 5 stars  

This foundation has worked tirelessly to advocate and fund research for children with bran tumors. As a parent of such a child who was diagnosed over 20 years ago , it is remarkable and quite selfless to me how the members and health professionals work together to help those afflicted as well as their families. It would be even more of a challenge to face the stress of a child facing surgery and treatments and Making Headway brings a wealth of information and support for the victims of brain and spinal diseases.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2005

Was this review helpful? 

It's our pleasure to assist you.

Rating: 5 stars  

Our daughter Allison was diagnosed with a PNET. THEY WERE THERE FOR A FAMILY FROM THE BEGINNING TO THE END. They offered so many services and helpful information it was amazing!!

If I had to make changes to this organization, I would...

More pastors involved.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 

We like your idea of more Pastors, Gregory. Good suggestion.

Rating: 5 stars  

It seems impossible to believe, my family was introduced to Making Headway almost 15 years ago. This was when our then 7 year old daughter was diagnosed with a life threatening brain tumor. The combination of the medical expertise of the specialists at NYU/Langone and the kindness and caring of all the wonderful Making Headway people made a frightening journey a journey of growth and compassion. Making Headways was there from the beginning making sure our daughter could still be a kid in the midst of all our worry. The various services Making Headway provides families, sustained us through all the difficult days with the compassion and humanity they provide. Making Headway more than fills the gap that sometimes exists because hospitals and doctors just do not engage in. We are so grateful.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 

We are the ones who are grateful...to have families such as yours as part of our organization.

1 previous review
Rating: 5 stars  

Making Headway is a loving caring group of folks who always remember that our ids are just kids. Maybe extraordinary kids, but they need the same love, care and fun that all kids should get.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 

Lovely review. Thank you.

1 previous review
Rating: 5 stars  

Making Headway was there for us when we needed them 14 years ago. Their help and support through a very difficult time is immeasurable. Their devotion to their clients is truly inspirational. They support children and their families in many ways. Additionally, they are dedicated to helping fund research to improve the treatment of and find a cure for brain and spinal chord tumors.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

The Making Headway Foundation changes lives every day. The volunteers and professionals involved with this non-profit are caring, committed, and tops in their respective fields - seeking constantly to improve the quality of life for children with brain tumors and their families and caregivers. From the research they support to the hugs they offer a parent in a waiting room and from the vast knowledge they put at parents' fingertips to the fun social activities they offer for the kids, the people at Making Headway are on mission to improve lives, one minute and one day at a time. This great organization provided such incredible comfort and support during the very difficult years for our son and family - just knowing there was a team of very qualified people to answer our questions and there was a friendly place where our then five-year-old son could comfortably wait for appointments. And even as our 19-year-old son becomes an adult, we know that Making Headway is still "there" for us and more importantly, for him!

How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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It's an honor to help all of our families. Thank you.

Rating: 5 stars  

My then 16 year old daughter was diasgnosed with an hermangioma on her brain. Dr. Fred Epstein performed the successful operation. Maya and Ed Manley, co-creators of the Making Headway foundation were there every step of the way, prior to and after the operation as well as yeas later inviting us to the picnic that Making Headway has every year at the Manley residence.
Maya and Ed are extremely warm, caring and affectionate to all who come in contact with them. Be it , the patirent, doctor, parents, etc. All of them are given extreme care, understanding, and love by the Manleys' and the rest of this wonderful organization. I can't imagine what that time of our lives would have been like if it wasn't for the Making Headway Foundation.
My daughter is now 32 years old, I have a wonderful 21/2 year old grandaughter, and every year we don't forget the Making Headway Foundation. Especially Ed and Maya Manley whose slow , low manners lulls you into their submission and generosity, love, caring and affection.
Thank God for the Making Headway Foundation

Patrick and Linda Imbriale

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

1997

Was this review helpful? 

Thank you for your kind words. All of us at Making Headway appreciate the trust you place in us.

Rating: 5 stars  

My daugter was diagnosed in 1998. Her DR hooked us up with Making Headway and they have been part of our lives ever since. They do a wonderful job making the kids feel comfortable while waiting for treatment and helping parents get the support they need. We look forward to seeing them at their wonderful events for the kids and reconnecting with parents who have similar stories. It breaks me up when I see all of these wonderful kids together who have thrived despite horrendous odds. Thank God for Ed and Maya.

How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 

We are so happy we can be of help to families such as yours.