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Nonprofit Overview

Causes: Brain Disorders Research, Cancer, Cancer Research, Health, Pediatrics Research

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”

Results: Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.

Target demographics: Children with Pediatric Brain or Spinal Cord Tumor

Geographic areas served: NY, NJ, CT

Programs: support services for during treatment, ongoing care post treatment and funding for medical research.

Community Stories

28 Stories from Volunteers, Donors & Supporters

2 justamom17

Client Served

Rating: 5

My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.

Comments ( 1 )

Catherine Lepone Thank you so much. Your family re-pays us in many ways and we are grateful to have you as part of the Foundation.

Client Served

Rating: 5

Our 3 year old daughter was diagnosed with Leukemia in 2012. Over the course of her 2 years and 6 months treatment I'm not sure how we would have made it thru without the love and support of Maya and everyone at Making Headway. This outstanding organization puts children first, reminds us that children heal through love and laughter and not just by chemotherapy alone. My daughter looked forward to her weekly treatment visits because of all the activities that Making Headway supports at her oncology clinic. Their arms stretch out not only to the patient but the entire family...knowing that cancer affects the patient, siblings and family as a whole.

Client Served

Rating: 5

Making Headway is a wonderful foundation that has done so much to help my son giving him the support and advocating for him to receive the best services he needs in school. The fun activities they have for the kids, my son is so much looks forward to attend.

2 justamom17

Client Served

Rating: 5

My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.

Comments ( 1 )

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Catherine Lepone 07/27/2015

Thank you so much. Your family re-pays us in many ways and we are grateful to have you as part of the Foundation.

Previous Stories

Client Served

Rating: 5

It seems impossible to believe, my family was introduced to Making Headway almost 15 years ago. This was when our then 7 year old daughter was diagnosed with a life threatening brain tumor. The combination of the medical expertise of the specialists at NYU/Langone and the kindness and caring of all the wonderful Making Headway people made a frightening journey a journey of growth and compassion. Making Headways was there from the beginning making sure our daughter could still be a kid in the midst of all our worry. The various services Making Headway provides families, sustained us through all the difficult days with the compassion and humanity they provide. Making Headway more than fills the gap that sometimes exists because hospitals and doctors just do not engage in. We are so grateful.

Comments ( 1 )

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Catherine Lepone 06/17/2014

We are the ones who are grateful...to have families such as yours as part of our organization.

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Client Served

Rating: 5

We can't say enough positive things about this amazing organization that has helped our entire family since our son's brain tumor diagnosis in 2005. Educational support, counseling, sibling programs, fun activities and healthy snacks are just some of the ways we have directly benefited from this program. We love Making Headway!

1

Client Served

Rating: 5

Making Headway supported not only my 2 year old when he was diagnosed with a brain tumor in 2003 but my other 2 children as well. Without them I honestly don't know how I would have survived the worst year of my life. Their work and dedication has made a difference in my family's life and the lives of countless others.

Client Served

Rating: 5

An amazing organization that has helped my family immensely. They provide us with an advocate that helps work with my daughter's school. Don't know how I would have come this far without them. Thank you Maya & Edward and your wonderful staff for all you do for families like ours.

1

Client Served

Rating: 5

It's nice to know people who understand what it's like to have a child with a disease. Making headway helps us enjoy all the good days!

Client Served

Rating: 5

The Making Headway foundation has done more for me and my family then i can ever thank them for. ever since i was diagnosed with my brain tumor. The Making Headway Foundation has Been there for me and my family. from support in the hospital during treatment and doctors visits, or just various events that we are invited to. when we are around people who are so caring it makes things so much easier to deal with The Making Headway Foundation is such a great foundation Words cant even explain.

Client Served

Rating: 5

When my 8 week old daughter, Minty, began her battle with brain cancer, we were drowning in a sea of help. But it wasn't always good help. 2 organizations stood out in this din of misguided inefficiency: "Friends Of Karen", and MAKING HEADWAY. It is not enough to simply "want" to help. If the help is un-researched, un-thought out, badly managed, ignorant - the help will make no impact. In fact, quite the opposite. It is no easy feat to really truly help people, when they need it most. Making Headway truly enriched my daughter's life and for this I will forever be indebted. Thank you Maya and Ed. Mei Lai.

Client Served

Rating: 5

The Making Headway Foundation has been an incredible source of inspiration and strength for me over the past ten years as a cancer survivor. With an amazing staff, and vast amounts of programming, they have given my life meaning and value - something I thought I had lost after being diagnosed in 2003. I can't thank them enough for all they have done, and wouldn't know where I'd be today without them... Thank you!
-Steven Hazlett

Comments ( 1 )

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Catherine Lepone 06/17/2014

Thank you, Steven. We'd love to hear your ideas about what young adults would like!