LUPUS FOUNDATION OF NORTHERN CALIFORNIA

Rating: 4.74 stars   108 reviews

Issues:

Location: 2635 N First Street 211 San Jose CA 95134 USA

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.
Geographic areas served: Northern California
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EIN 94-2469741
408-954-8600
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Community Reviews

Rating: 5 stars  

Lupus Foundation is a great organization. I've participated in the 5k walk to support my mother-in-law. and thought the run was a very good experience. I plan to come back next year to be a part of it again. I may even try jogging.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I first came to learn about the Lupus Foundation when a co-worker of mine revealed that he had lupus. I didn't know what lupus was, so I searched the Internet and found the Foundation's website. I learned a lot of information about this disease through them. That year, I also started participating in their 5K Run and Walk to help spread awareness about lupus and to do what little I can to help raise funds for lupus research. I hope there would be more resources like the Lupus Foundation all over the country.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

For two years in a row now, I have been asked by a friend with lupus to join her team for the 5K Run and Walk for Lupus in Saratoga, California. It was my pleasure to support my friend and donate some money to the Foundation. I was very impressed with their annual event. This year's event was even better than the last -- very well-organized and there was something for everyone: from snacks to free t-shirts, goodies, good information and great entertainment! Volunteers were very helpful and the crowd was just very friendly and passionate about the cause!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The Lupus Society of Northern California helped us when my daughter was diagnosed with lupus 28 years ago. They explained what Lupus was to us and we signed up with for the newsletter, offered us videos to take home and were so patient. Before we talked to them we had no clue, yes the doctor explained but when we heard Lupus we stopped listening... We thought it was leukemia. Ever since I have been a donor. Jo Dewhirst was wonderful and since she has left the Lupus Society has continued to improve. I appreciate the emails of the newsletters and up to date notifications of new drugs and studies that are taking place, as well as other patients' outcomes. This year we participated in the Lupus 5K and will continue to support this wonderful organization that helps so many.

Was your donation impactful?

Unsure

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

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Review from Guidestar
Rating: 5 stars  

this organization has been very helpful to my wife, who has Lupus. If it weren't for the foundation we wouldn't have had any resources to review in our area. Additionally, they have been very supportive to my wife when she needed their help coping with the disease.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar
Rating: 5 stars  

My Mother died from this disease in 1971 at the very young age of 32. As if that was not hard enough to bear, a very good friend of mine also passed away from Lupus at the prime of her life! Finally, I have a step-sister who also has the disease, but she is managing the symptoms wonderfully, thank goodness. For some reason this disease has been a big part of my life. The Lupus Foundation is a place I feel I can help with donations, and in the long run help other people who have this disease! I am comforted to have this organization keep me informed of the latest developments in curing Lupus! I also look forward to the annual Run?Walk for Lupus!! Keep up the great work!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar
Rating: 5 stars  

6 people found this review helpful

I found the organization on Facebook. Years ago a friend of mine revealed to me about his lupus diagnosis, so I tried to read up and research about this little-known disease. Through their website and their eNewsletters I've learned much about lupus. Lots of useful information, especially on research development. I've made it a point to donate to the organization whenever there is the opportunity. Glad to support such a great organization.

I've personally experienced the results of this organization in...

Their fundraising events and their online materials

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

4 people found this review helpful

I was diagnosed with SLE 33 years ago. At that time the prognosis was very poor. Shortly after being diagnosed and starting prednisone, I became pregnant. In my fifth month of pregnancy I went into full blown eclampsia with grand mal seizures, kidney involvement (spilling 8 grams of protein) and fetal demise. An emergency c-section was performed and after suture removal I suffered wound separation and remained in the hospital for 3 weeks. After all this we were advised not to try another pregnancy. During these past years my lupus has not been in remission and I remain on varying doses of prednisone supplimented with chemotherpy drugs when needed. Lupus has been a true challenge in my life but I am grateful to have a supportive husband and frequent times when my symptoms are mild. I have learned to deal with all this by taking one day at a time and knowing that my condition could be a lot worse. I am grateful to the Lupus Foundation of Northern California for providing information on current studies and treatments and for educatiing the public on this debilitating disease.

I've personally experienced the results of this organization in...

Look forward to receiving news thru e-mail

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

5 people found this review helpful

I have many friends who have been touched by lupus, and want to do all I can to help. The Lupus Foundation has brought awareness to my community by humbly but confidently asking for specific support through donations, education, and many other services.

I've personally experienced the results of this organization in...

Observing my friends receive fabulous services for her family, and watching her gain momentum through the Lupus Foundation as she spreads awareness about lupus.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-3-01

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