Lupus Foundation Of Northern California

Rating: 4.77 stars   120 reviews

Issues: Health, Cancer

Location: 2635 N First Street 211 San Jose CA 95134 USA

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.
Geographic areas served: Northern California
2015 Top-Rated Nonprofit
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More Info

EIN 94-2469741
408-954-8600
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Community Reviews

Rating: 4 stars  

I have been involved with the Lupus Foundation of No. Calif since I was first diagnosed with lupus in 1996. At that time they served my needs by providing information and teaching me how important it was to educate myself. I have volunlteered, done fundraising, served on the Board and started a support group with a grant from the LFNC 10 years ago. I have seen the organization change to meet the current needs of all lupus patients. They have especially stepped up efforts to provide support and information to young people with lupus through social networks. I am very proud to be associated with the LFNC.

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

 
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Review from Guidestar
1 previous review
Rating: 5 stars  

5 people found this review helpful

When I was first diagnosed with Lupus in 1996, I found their newsletter in my rheumatologist's office with a timely article that applied specifically to me. I became a member of the organization and through their services I learned about lupus and how to manage my disease in a pro-active positive way.

I've personally experienced the results of this organization in...

Knowledge is power and the LFNC has provided me with the knowledge and power to not only help myself but others as well.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

 
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Rating: 5 stars  

LFNC has a dedicated team of volunteers that are committed to helping patients with lupus. They provide vital local services that the larger lupus organizations cannot provide.

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Likely

When was your last experience with this nonprofit?

2012

 
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Review from Guidestar
Rating: 5 stars  

The LFNC is a great organization with a rich history of helping those afflicted with Lupus. By offering education, events, and most important, awareness, to the Lupus cause, the LFNC is an important champion in helping people live with Lupus.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

 
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Review from Guidestar
Rating: 5 stars  

6 people found this review helpful

For six years I saw the Lupus Foundation help lupus patients by assuring that current and pertinent information was available. With a clear focus on education and promoting awareness, the Foundation helps patients to find their way with a disease so often mis-diagnosed or overlooked. By conducting conferences with medical experts; producing and circulating literature and newsletters; maintaining a web-site with current information; monitoring the latest lupus research; and working with national research organizations, the Foundation makes itself highly relevant to the lupus community.

I've personally experienced the results of this organization in...

As a member of the board I have personally helped to assure the results of this organization and have personally viewed the results.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

 
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Rating: 5 stars  

8 people found this review helpful

My sister was diagnosed with lupus in 2005. Our family knew very little about the disease. The LFNC was instrumental in provided us the resources and information we needed to learn about this disease. The education classes and confereneces were so helpful to my sister. I was so impressed with this organization and what they offered to lupuis patients that I knew I wanted to be more involved and so joined the Board.

I've personally experienced the results of this organization in...

My sister has lupus and has attended many of the educational classes and conferences the the LFNC offers. It has been so helpful in providing her the information that she needs.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

 
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Rating: 5 stars  

8 people found this review helpful

I have been involved on the Board of LFNC and applaud the commitment of its members, staff and supporters, to provide ongoing education and counseling for those affilcted with Lupus. Through their efforts, they bring answers to troubling questions about the disease and guidance for those in need of assistance.

I've personally experienced the results of this organization in...

Participation on the Board

What I've enjoyed the most about my experience with this nonprofit is...

The highly talented managment and their forward thinking ideas for the Organization.

The kinds of staff and volunteers that I met were...

Committed to providing the best education and counseling possible regarding the lupus disease.

If this organization had 10 million bucks, it could...

Provide much more outreach and awareness of the organizations services to the public.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

 
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Rating: 5 stars  

5 people found this review helpful

I met Jo to interview for a Board position and it was her passion and vision for LFNC that helped start me on my five year learning journey. I had never even heard of Lupus and now I have gratefully been able to refer clients and friends for services and for donations. The whole community of volunteers is amazing and I am proud to have been a part of such a genuinely dedicated group of men and women.

I've personally experienced the results of this organization in...

...the awareness of the disease, the symptoms and the courageous battles so many women face.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-2-01

 
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