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108 Reviews
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September 4, 2013

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September 4, 2013

I joined this to support my mother in law as well as all the other victims of lupus. It was a great experience and I believe participating in this helped to promote the awareness of this auto-immune disease and to get more people to help contribute for a good cause.

Ways to make it better...

If I had to make changes to this organization, I would...

None

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

September 4, 2013

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September 4, 2013

I always wanted to do a run to support something and the Lupus Foundation made my very first experience really memorable. Everyone was just so dedicated and nice, and the event itself was a blast! I had lots of fun and also became more aware of what Lupus is at the same time.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

October 16, 2012

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1 previous review
July 11, 2012

Thank you for putting out such great information for those who suffer from Lupus. This site not only helps the client, but their families. Thank you for keeping us informed! more

October 16, 2012

Thank you for all you do! Your newsletters are filled with very useful informaiton.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

July 11, 2012

Thank you for putting out such great information for those who suffer from Lupus. This site not only helps the client, but their families. Thank you for keeping us informed!

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

July 30, 2012

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July 30, 2012

Attended a few of their seminars to gain knowledge regarding Lupus. I gained so much information and gained valuable knowledge about the Lupus disease, the organization . The people, staff, medical personnel ,who volunteered their time in the local, San Jose chapter are so generously helpful to anyone, Is one of the organizations that deserve , truly one of the best .

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

July 23, 2012

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July 23, 2012

Although I no longer belong to a regular lupus support group nor do I attend functions, I do try to keep informed by reading the LFNC newsletter and searching for online info about SLE. In July 2012 I saw a workshop being held in San Francisco ttitled "Lupup Self Management/Holistic Nutritional Approaches for Lupus". At 48 years of age and having been diagnosed with SLE in high school, I have come across all sorts of info on these topics and they are pretty much the same--stay positive, avoid nightshade foods, sun screen, sun screen. For some reason, though, I decided to sign up and attend anyway. In a word AWESOME ! The attendees--all of whom were strangers to me--were friendly and welcoming, the speakers were knowledgeable and very personable, there was tasty, healthy food, and it was free. I was--and still am--experiencing a flare-up and was planning on staying home but I am so glad that I attended. A significant amount of the information I heard was new and definitely inspiring. That outing actually made me feel better. Thanks LFNC for making programs like this available and for changing my mind about support group meetings.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

July 14, 2012

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July 14, 2012

I have Lupus It REALLY helps to get information about what one can do it help be as healthy as one can:D I'm on SSA + SSI I don't have $$ or health to help!

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

July 10, 2012

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Review from Guidestar
July 10, 2012

I support and appreciate all that the Lupus Foundation does to help both those affected by Lupus.

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

July 1, 2010

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July 1, 2010

LFNC has provided me with so many supportive oppurtunites for me since I found about them over a year ago. They run a youth support group that has been so helpful to me. I love getting together with other people my age that understand what I am going through. I participated in a webcast with LFNC about teens with lupus. I had never experienced anything like that before and loved having the chance to be part of it! The annual walk that is put on by LFNC is always a great time. It is so good to see so many people coming together for such a good cause.

The Great!

I've personally experienced the results of this organization in...

Being part of the youth support group run by LFNC.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 30, 2010

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June 30, 2010

When my sister, Sophia Lin's third child was born, she already didn't have enough time in the day. It was completely frustrating to try to pin down the different ailments that began to plague her, such as swollen glands, stiff fingers, constant fatigue and on on on while caring for a new born and his two siblings. Prescriptions, never ending concern, doctors, teaching hospitals were all added to my sister's already impossible schedule. While we as her family loved and supported her there was little that we knew and understood. Then one day, my sister was diagnosed with Lupus. This part of the journey led us to LFNC. A one stop resource that both patient and loved ones could learn from through current conversations, networking, professional research, invaluable peer support, and organized pro-activity to make a difference in a heretofore little known mystery disease.

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The Great!

I've personally experienced the results of this organization in...

Learning through the written resources and panels provided, having a sister who is much more confident in taking charge of her disease through her participation with LFNC.

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What I've enjoyed the most about my experience with this nonprofit is...

knowledge and support

The kinds of staff and volunteers that I met were...

heros!

If this organization had 10 million bucks, it could...

go further with research and provide more outreach to Lupus Sufferers

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 28, 2010

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June 28, 2010

My sister was diagnosed with Lupus 5 years ago after fighting for her life for 2 weeks. The doctors had no idea what was wrong with her. All they knew was she was dying and they didn't know why. After she was diagnosed, she had learn about Lupus and what she needed to do to keep it under control. Lupus isn't well known, so I am so grateful for The Lupus Foundation and their efforts to provide information, programs, education and services for those effected by Lupus and to help promote Lupus awareness. It was so great to see the number of people who came out to participate or support participates in the 5K Lupus Run/Walk.

The Great!

I've personally experienced the results of this organization in...

seeing the support it provides by sister and the spreading the awareness of Lupus.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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