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95 Reviews
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May 9, 2013

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1 previous review
July 10, 2012

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor... more

May 9, 2013

Lupus can be a very confusing disease. LFNC puts on regular "mini-conferences" which bring together knowledgeable speakers with relevant information. The ones 'Ive attended on the latest developments in the treatment of Lupus have allowed me to be an informed partner in discussions with my doctors.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 10, 2012

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor. LFNC not only sends out frequent announcements of new information, along with links to the full explanation of the announcement, but also sponsors frequent classes with a variety of experts who first talk, then take questions. They hold these classes in a variety of Northern California locales, maximizing the opportunity to attend for people who might not be able to make it to the main office in San Jose. Over the past couple of years, I've had at least 3 links to relevant information or an actual seminar come up just as I was realizing I needed more information on an issue.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

April 23, 2013

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2 previous reviews - show all
July 30, 2012

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confide... more

April 23, 2013

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 30, 2012

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confident after a talk with with them. They will never let someone be left in the dark about autoimmune issues. They are the light that gets us through and they ask us for nothing but what we can give at the time. Sometimes that is going in and stuffing envelopes and its a blast! They are a great team.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 24, 2010

I received my diagnosis in 1995 and as time went on things just kept changing. You have a little of this and a little of that with a touch of this. I felt like one of my grandmothers old receipes. I turned to the foundation for assitance in understanding what the heck this disease was doing to me and what else to expect. They gave me the tools to try and help my family understand what kind of disease this really is and how it was weakening my body. They also gave me all the info on the new drugs so I could find the right treatment and assistance plans so I could get help to pay for them. They never let me down when I needed them. I am not a diagnosis I am a person with a name. Kathleen Soto of San Jose Ca 44 yrs old

The Great!

I've personally experienced the results of this organization in...

The new drug information and presenting it to my doctor in order to start Rituxan for a better treatment. Watching the Bylsta data now

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What I've enjoyed the most about my experience with this nonprofit is...

The are always eager to help and always have an answer.

The kinds of staff and volunteers that I met were...

were very informative and compassionate.

If this organization had 10 million bucks, it could...

Help so many people and reach those who are to shy to call

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

April 22, 2013

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April 22, 2013

Lupus of No. Calif. has helped me greatly over the past 11 years since being diagnosed with lupus and other autoimmune diseases. I live in the country and having the latest info. at my fingertips has been so reassuring. I have used their library and enjoy their newsletters. They have helped me with strategies for coping. I appreciate them being my advocate.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

November 7, 2012

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November 7, 2012

I have Lupus. The LFNC keeps me updated with very helpful research information, educational classes, and and lifestyle tips for keeping my self healthy.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

November 5, 2012

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November 5, 2012

I decided to classify myself as a client served as I am living with lupus and other autoimmune diseases and the LFNC has been a helpful advocate for this never-ending fight. I consider myself and all lupus fighters, warriors, and I thank LFNC for providing us the tools (or weapons) to fight effectively while trying to continue our contributions to society. Thank you so much! Please keep it up! I'll be walking again next year. This time under team Craftego. My new handmade craft shop, because I will never give in to this... lupus.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 23, 2012

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July 23, 2012

Having Lupus can be very isolating. Healthy people often don't understand how someone who looks okay can be suffering pain and fatigue. The information and support I get from this organization helps me in so, so many ways from: Up to date medical research information; Tips on day to day living; inspirational stories from other patients; as well as a caring voice on the other end of the phone. The Lupus Foundation of Northern California is my partner in achieving a healthier life.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 23, 2012

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July 23, 2012

I was diagnosed with lupus in 2006 at the age of 35 and felt truly lost in the dark. As I began coping with the illness, I discovered the LFNC, and from reading the articles and personal stories, I began feeling a sense of support and community, without even meeting anyone in person. I signed up for the annual lupus walk with my family of 12, and was completely inspired by all the other members walking. I continue to receive the email newsletter from LFNC and look forward to reading the latest news about lupus. I have also recommended LFNC to a friend recently diagnosed with lupus.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 23, 2012

more


1 previous review
June 26, 2010

I have used Lupus Foundation of Northern California a lot. When I was first diagnosed I ordered information from them and went to several lectures. Through a lecture I found a local support group. ... more

July 23, 2012

I was diagnosed with Lupus in 1986. Through the Lupus Foundation I have learned much about what Lupus is and how to treat it. Most importantly for me has been the ongoing information on how to live my life to the fullest while dealing with the fatigue, pain and other symptoms of Lupus.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 26, 2010

I have used Lupus Foundation of Northern California a lot. When I was first diagnosed I ordered information from them and went to several lectures. Through a lecture I found a local support group. I got most of my information about lupus from this information and lectures. I still look forward to my newsletters and updates from LFNC. A very good foundation!

The Great!

I've personally experienced the results of this organization in...

my education about Lupus.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 19, 2012

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Review from Guidestar
July 19, 2012

When first diagnosed with Lupus my Rheumatologist suggested I contact the LFNC for information and support. I did so, and attended a conference for those newly diagnosed with SLE. The conference was informative, and most important to me, I knew I was getting up to date and correct information. Now, over 20 years later, I am still a member and I continue to learn from the newsletters - the LFNC provides an invaluable service to patients and family. I would highly recommend teh LFNC to anyone who has SLE or any type of immune system disease.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 17, 2012

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July 17, 2012

LFNC DOES A GREAT JOB OF GETTING THE INFORMATION OUT ABOUT LUPUS. MUCH OF THE GENERAL POPULATION DOES NOT KNOW MUCH ABOUT THIS PREVALENT DISEASE. THE NEWSLETTERS ARE INFORMATIVE AND ARE UP TO DATE WITH THE NEWEST INFORMATION ON PERTINENT RESEARCH AND NEW DEVELOPMENTS IN THE FIELD. THERE ARE OFTEN STORIES OF PATIENTS WHO HAVE HAD SUCCESS OR GOOD ADVICE FOR FELLOW PATIENTS. THE E-NEWSLETTERS ALSO HAVE INFORMATION ON INSURANCE ISSUES WHICH CAN BE SO IMPORTANT TO PATIENTS WITH CHRONIC DISEASE. PATIENTS WHO WANT SUPPORT GROUPS OR SOURCES FOR MORE INFORMATION CAN FIND THESE AT LFNC.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

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