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Nonprofit Overview

Causes: Health, Health Support, Nerve, Muscle & Bone Diseases, Specifically Named Diseases

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.

Target demographics: lupus patients and their families

Geographic areas served: Northern California

Programs: support services, education events, advocacy activity and research.

Community Stories

48 Stories from Volunteers, Donors & Supporters

1 cvonraesfeld

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

lfnc Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

1 cvonraesfeld

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

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lfnc 10/29/2016

Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

Previous Stories
2

Client Served

Rating: 5

Until the past year, my only association was the LFNC was the annual walk, which I felt was my obligation as a person with lupus. Until the past year, I did not realize what an integral part of my life it has become. Not only have I gotten much needed support, but I have made great friends in the lupus community and expanded my knowledge of my disease by hosting seminars and conferences. I am happy to be one of the charter members of the lupus buddy program and went through the patient education class. I can't imagine my life without the LFNC I just wish I had discovered I needed them earlier, might have helped me through some tough times. Thank you to everyone at the LFNC for your hard work and dedication.

Client Served

Rating: 5

It was wonderful to have a connection and a place to call for resources when I was diagnosed five years ago. My physician didn't give me any information or links to begin educating myself on the disease. My emails from the LFNC kept me up to date with research and resources. I was very grateful and participated in their 5k by organizing a team. The LFNC is vital to our community!

Client Served

Rating: 5

When I was diagnosed with Lupus I felt lost. I found on the internet that Lupus Foundation of Northern California was giving educational class about the disease for new patients and families and I went to learn more about Lupus. I left that day with knowledge that was so important to my health and helped my family to get information and also support. Their support group has helped me tremendously to find strategies to cope, make new friends too. I hope that they can help many others the way they helped me.

3 Setareh B.

Client Served

Rating: 5

This non profit has been so helpful and inspirational to my life. They have provided support and guidance to dealing with a very difficult illness. I have not only benefitted from their services but have chosen to become a volunteer because I believe in their cause so much. I'm thankful for the benefit they have provided to my life and the lives of so many others!

Client Served

Rating: 5

I am a parent of a young lupus patient. LFNC is an invaluable resource for our family. It provides excellent information, education and support. And, even more valuable is it's consistent messaging that, through research and sharing of knowledge, there is hope lupus will become a curable disease.

Client Served

Rating: 4

Lupus can be a very confusing disease. LFNC puts on regular "mini-conferences" which bring together knowledgeable speakers with relevant information. The ones 'Ive attended on the latest developments in the treatment of Lupus have allowed me to be an informed partner in discussions with my doctors.

Previous Stories

Client Served

Rating: 4

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor. LFNC not only sends out frequent announcements of new information, along with links to the full explanation of the announcement, but also sponsors frequent classes with a variety of experts who first talk, then take questions. They hold these classes in a variety of Northern California locales, maximizing the opportunity to attend for people who might not be able to make it to the main office in San Jose. Over the past couple of years, I've had at least 3 links to relevant information or an actual seminar come up just as I was realizing I needed more information on an issue.

ksoto

Client Served

Rating: 5

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

Previous Stories

Client Served

Rating: 5

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confident after a talk with with them. They will never let someone be left in the dark about autoimmune issues. They are the light that gets us through and they ask us for nothing but what we can give at the time. Sometimes that is going in and stuffing envelopes and its a blast! They are a great team.

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Client Served

Rating: 5

Lupus of No. Calif. has helped me greatly over the past 11 years since being diagnosed with lupus and other autoimmune diseases. I live in the country and having the latest info. at my fingertips has been so reassuring. I have used their library and enjoy their newsletters. They have helped me with strategies for coping. I appreciate them being my advocate.

Client Served

Rating: 5

I have Lupus. The LFNC keeps me updated with very helpful research information, educational classes, and and lifestyle tips for keeping my self healthy.

Chrissy D.

Client Served

Rating: 5

I decided to classify myself as a client served as I am living with lupus and other autoimmune diseases and the LFNC has been a helpful advocate for this never-ending fight. I consider myself and all lupus fighters, warriors, and I thank LFNC for providing us the tools (or weapons) to fight effectively while trying to continue our contributions to society. Thank you so much! Please keep it up! I'll be walking again next year. This time under team Craftego. My new handmade craft shop, because I will never give in to this... lupus.